Multiple Sclerosis

In this module, patients talk about their experiences in dealing with multiple sclerosis (MS). MS is a chronic inflammatory and most common disease of the nervous system. The effects of its multilayered symptoms and different forms of the disease can reach into all areas of people’s lives. They can vary from a mild form, so that an impairment is hardly noticeable in everyday life, to more severe forms, in which physical and mental health is considerably affected. The first symptoms can appear already in adolescence, at the age of 20 to 40 years or after the age of 45.

In short films, text or audio contributions, those affected tell their personal story about how they deal with MS. For example, they report on the treatments they receive, how they cope with the everyday life effects of MS, where they find help and information or how their lives have changed since they were diagnosed.

The contributions in this module aims to help people understand what it means to live with MS, the disease with a thousand faces, according to the motto: “Nothing about us without us”.

This module was financially supported by the Swiss Multiple Sclerosis Society.

If you would like to share your story, please contact us.

  • Credits

    This module was financially supported by the Swiss Multiple Sclerosis Society.

    Researchers

    Andrea Glässel

    Andrea Glässel has been a member of the DIPEx Swiss (Database of Individual Patient Experiences) team at the Institute for Biomedical Ethics and History of Medicine (IBME) since 2017. She coordinates the module on experiencing multiple sclerosis (MS) from the point of view of patients. In addition to her research work at IBME, Andrea is a professor at the Zurich University of Applied Sciences (ZHAW) in Winterthur, where she teaches students from various healthcare professions. She has been a trained physiotherapist since 1991 and worked for ten years in inpatient and outpatient neurorehabilitation. Since her studies in health sciences, she has been researching a holistic concept of biopsychosocial health, functioning and disability of the World Health Organization (WHO). In 2012, she wrote her doctoral thesis on: “Functioning and Disability after stroke: The perspective of the patient and medical professionals”.

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