Module presentation (DEM)

Manya presents the module on Dementia. Subtitles available.

Credits

Manya Hendriks

Manya Hendriks is a postdoctoral researcher in bioethics, who studied medical anthropology and bioethics in the Netherlands and Belgium. During her studies she has worked with the Right-to-Die Association in the Netherlands and investigated the international debate on end-of-life and palliative care in the Netherlands, Oregon (United States) and Switzerland. Since 2014 she has been living in Switzerland where she conducted her PhD on the attitudes and values of parents, health care professionals, and Swiss society on end-of-life care for extremely premature infants. She joined the DIPEx team at the end of 2017 and coordinates the module about experiences with dementia.

Share on

I would like to share my personal experience on this topic. Get in contact with us

Module presentation (DEM)

I am Manya Hendricks. I am from the Netherlands.

I am responsible for the DIPEx module about dementia, memory problems and Alzheimer. We know that every year there are more people being diagnosed with dementia,  and since dementia can affect anyone and affects more and more people, it is not only an individual challenge but also a social one.

Living with dementia affect many people. It affects the patients themselves, but also their families and friends. More than the half part of people with dementia live at home and are attended by their relatives. The family caregivers face often different kind of problems: social, financial or health related.

To ensure the best possible life, information and support are very important. The aim of this project is to collect the experiences of patients and their family caregivers.

We would like to know how patients experienced the diagnosis, how their loved ones reacted to it, and what kind of support was helpful to them. In addition, we would like to know how the family caregivers deal with the situation. The contributions on DIPEx.ch should help to better support the future of patients and their relatives.

This project has been possible thanks to the contributions of the Foundation Alzheimer Switzerland. And of course, it would not have been possible without the support of the participants in this project.

 

Dementia

Dementia is the generic term for more than 100 different diseases that affect brain function. Dementia particularly affects mental faculties, so-called cognitive abilities such as thinking, memory, orientation and language. Those affected are increasingly limited in their daily and/or work activities and need help as dementia develops.

It happens to be forgetful; some more often, some less. There is no need to worry if sometimes you are not sure if you have closed the front door or if you think you have lost your glasses. If, however, you notice that forgetfulness is on the increase and concerns various aspects of your daily life, you should consult your doctor, your family doctor. However, memory loss is only one of the symptoms of dementia. Depending on its form, dementia can also express itself differently, for example by changing social behaviour.

For more information on dementia, please visit Alzheimer’s Switzerland.

In this project, people with dementia and their families talk about their lives with dementia, their medical experiences, changes in their daily lives and the support they receive. You can watch these stories as videos, listen to them or read them as text.
Their contributions are intended to help provide better support for future patients and relatives: today’s patients help tomorrow’s patients.

This module is made possible by financial support from Alzheimer’s Switzerland.

Credits

Manya Hendriks

Manya Hendriks is a postdoctoral researcher in bioethics, who studied medical anthropology and bioethics in the Netherlands and Belgium. During her studies she has worked with the Right-to-Die Association in the Netherlands and investigated the international debate on end-of-life and palliative care in the Netherlands, Oregon (United States) and Switzerland. Since 2014 she has been living in Switzerland where she conducted her PhD on the attitudes and values of parents, health care professionals, and Swiss society on end-of-life care for extremely premature infants. She joined the DIPEx team at the end of 2017 and coordinates the module about experiences with dementia.

Share on