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Young hemato-oncological patients

Module presentation (YHP)

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Giovanni presents the module on young people with hemato-oncological diseases. Subtitles available.

Credits

Giovanni Spitale

Giovanni Spitale is a PhD student in Bioethics at the University of Zurich. He studied Philosophy and Philosophical Sciences in Italy, where he also worked as a teacher, educator and communication expert. He has collaborated and collaborates with numerous associations related to the donation of blood, organs and bone marrow, concrete practices of humanity to which he has dedicated much of his studies and on which he has written two books: “Il Dono nelle Donazioni” (2015) and “Hestia” (2017).
He is a member of DIPEx.ch since the end of 2017, contributing as a research data manager and coordinator of the module on the experiences of young adults with hemato-oncological diseases.

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Module Presentation (DBS)

Introduction

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Module presentation (YHP)

Hi, there. My name is Giovanni Spitale. I am a PhD student in Bioethics at the Institute of Biomedical Ethics and History of Medicine at the University of Zurich and I’m in charge of this DIPEx module on young hemato-oncological Patients.

Talking about hemato-oncological diseases is always complicated. From a scientific point of view, these are neoplasms that affect the bone marrow, which is the tissue responsible for the production of blood cells. From a human point of view, it’s news that forces you to change many things in your life and reorganize everything.

But talking about it is useful.
For who tells the story, to make it clearer, to better understand what’s going on, and for the listeners, to understand what it means to live with a hemato-oncological disease.

This is our goal: to collect, understand, study and then share the stories of young people, aged between 15 and 34,who are confronted every day with a hemato-oncological disease.

In a nutshell, what we want to do is to gather the knowledge of this community and to “distill” it, and then make it available to others who may benefit from it: the medical staff, to better understand what patients live; researchers, to study how to improve the processes of care for these diseases; but above all for other patients, for other people who, knowing these stories, can decide how to direct their own.

Thank you for your time. Have a good day.

Young hemato-oncological patients

Talking about hemato-oncological diseases is always complicated.

From a scientific point of view, these are neoplasms that affect bone marrow, the tissue that produces blood cells.

From a human point of view, it is almost always news that disarrays your life, radically changing it and forcing you to reorganize everything. That’s why it’s so complicated to talk about things like leukemia, lymphoma, myeloma, myelodysplasia, especially for young people.

Nevertheless, talking about these diseases is useful: for those who tell their own story, as a tool to put thoughts in order; for those who listen to it, as a way to deal with the lives of others to decide how to direct their own.

This is the objective of this module: to collect, understand and share the experiences of young people (15-34 years old) who are facing – or have faced – a hemato-oncological disease; to “distill” the knowledge of this community and make it available to the community itself.

Download the information sheet

If you are interested in our project and want to contribute by sharing your experiences, you could start by participating in this quick survey.

Credits

Giovanni Spitale

Giovanni Spitale is a PhD student in Bioethics at the University of Zurich. He studied Philosophy and Philosophical Sciences in Italy, where he also worked as a teacher, educator and communication expert. He has collaborated and collaborates with numerous associations related to the donation of blood, organs and bone marrow, concrete practices of humanity to which he has dedicated much of his studies and on which he has written two books: “Il Dono nelle Donazioni” (2015) and “Hestia” (2017).
He is a member of DIPEx.ch since the end of 2017, contributing as a research data manager and coordinator of the module on the experiences of young adults with hemato-oncological diseases.

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