Evelyne E.

Ms. Eveline E. has memory problems and feels that she was sometimes unnoticed.

Ms Eveline E. listened to the private conversations of the nursing staff, who acted as if she was not present and sometimes felt unnoticed.

Credits

Corine Mouton-Dorey

Corine Mouton-Dorey focuses her research on patient agency and accountability. Her PhD work on biomedical ethics identified the importance of the patients’voices in medical practice for better care, trust and justice in health. She has a practical experience with patients both as a cardiologist and as a qualitative researcher. She supports  the french-speaking part of the DIPEx project and work on the possibilities to enrich DIPEx process and outcomes with digital technology.

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Ms. Eveline E. has memory problems and feels that she was sometimes unnoticed.

“I felt like I was next to everybody, not really in the middle. I saw that I was put in a chair, but I don’t remember when I got out of bed for example; I was in the chair, and then there were two girls talking to each other. They were obviously students because they were talking about their classes, their teaching; they were saying that you have to practice to repeat. Then I’m thinking but what am I doing here in between? I didn’t understand what I was doing.

I: Do you feel like people thought you couldn’t hear?

E: It’s possible, because I could hear them, but I couldn’t see them. So did I have my eyes closed? I don’t know. I think I had my eyes closed.”

Experiences in the intensive care unit

With the technical and medical possibilities on intensive care a patient can be able to survive life-threatening illnesses. These experiences of critical illness and intensive care medicine are challenging for patients and families. Often experiences made on intensive care unit (ICU) can be life changing.
In small video- or audio-sequences we would like to illustrate the experiences made by patients on ICU and how they handled their stay in this critical situation.
Many patients share their experiences on intensive care unit and show how these experiences influenced their life.

We are curious about your story!

Credits

Corine Mouton-Dorey

Corine Mouton-Dorey focuses her research on patient agency and accountability. Her PhD work on biomedical ethics identified the importance of the patients’voices in medical practice for better care, trust and justice in health. She has a practical experience with patients both as a cardiologist and as a qualitative researcher. She supports  the french-speaking part of the DIPEx project and work on the possibilities to enrich DIPEx process and outcomes with digital technology.

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