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Experiences in the intensive care unit

Anna A.

Mrs. Anna A. remembers the noise, the lights, the fatigue and her helplessness.

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Ms Anna A. was very tired during her stay in the intensive care unit. She was particularly disturbed by the noise and the light, but she also received a lot of care from the nursing staff.

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Corine Mouton-Dorey

Corine Mouton-Dorey focuses her research on patient agency and accountability. Her PhD work on biomedical ethics identified the importance of the patients’voices in medical practice for better care, trust and justice in health. She has a practical experience with patients both as a cardiologist and as a qualitative researcher. She supports  the french-speaking part of the DIPEx project and work on the possibilities to enrich DIPEx process and outcomes with digital technology.

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Mrs. Anna A. remembers the noise, the lights, the fatigue and her helplessness.

“So I remember the time that passed at first very slowly, an immense tiredness, the impression of not understanding what was happening to me. And then the noise, the light that was very strong. And at the beginning, too, when I was under morphine, well, that was unpleasant for me because I started having hallucinations and I couldn’t stand that.And then the fact of lying in bed all the time and then (almost) not being able to move, that was difficult.

I: Do you have a more specific, practical example where you felt that way?

E:Yes, already the fact that I had to be washed, for example, completely, or, that’s it, I couldn’t get up. So I was in bed and the nurses had to wash me. That was a bit difficult; well, they did it very well, it was admirable and they really did everything to not make me feel indebted or whatever; well, very well, but for me it was difficult. And the other thing that was also difficult was the heat and the thirst. So I couldn’t drink, I was thirsty, that was difficult. And the heat, I was always hot. “

Experiences in the intensive care unit

With the technical and medical possibilities on intensive care a patient can be able to survive life-threatening illnesses. These experiences of critical illness and intensive care medicine are challenging for patients and families. Often experiences made on intensive care unit (ICU) can be life changing.
In small video- or audio-sequences we would like to illustrate the experiences made by patients on ICU and how they handled their stay in this critical situation.
Many patients share their experiences on intensive care unit and show how these experiences influenced their life.

We are curious about your story!

Credits

Corine Mouton-Dorey

Corine Mouton-Dorey focuses her research on patient agency and accountability. Her PhD work on biomedical ethics identified the importance of the patients’voices in medical practice for better care, trust and justice in health. She has a practical experience with patients both as a cardiologist and as a qualitative researcher. She supports  the french-speaking part of the DIPEx project and work on the possibilities to enrich DIPEx process and outcomes with digital technology.

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