Deborah D.

Mrs. Deborah D. reports on her mother’s coma.

Mrs. Deborah D. was very emotional and questioning in front of her comatose mother.

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Corine Mouton-Dorey

Corine Mouton-Dorey focuses her research on patient agency and accountability. Her PhD work on biomedical ethics identified the importance of the patients’voices in medical practice for better care, trust and justice in health. She has a practical experience with patients both as a cardiologist and as a qualitative researcher. She supports  the french-speaking part of the DIPEx project and work on the possibilities to enrich DIPEx process and outcomes with digital technology.

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Mrs. Deborah D. reports on her mother’s coma.

“It was a bit –  my brother wanted to go to her, but I couldn’t. So I stayed behind a bit, and then he just told me: you have to go, she needs you. Like, put yourself aside a little bit, your person and go. But for me it was too much to see her like that. So I went in and I was like, okay, so she was in a coma. All I remember is that we told her, we talked to her, thinking that maybe she could hear us. We didn’t really know. And then my brother said look, and then she was crying, she had a tear. So afterwards, it still moves me to think about it. But did she hear us or not? We don’t know. Or was it just the tear fluid flowing like that, because it must be flowing, I don’t know. Anyway, it was loud. We were just telling her that we know she’s going to come back, so there you go. So the next day, she came back. We were told that they had to do some more tests, to see if she could communicate. So she was entubated, she remained entubated for several days, because they couldn’t remove it, because as soon as they removed it, the heart gave out, well it wasn’t working. And she was able quite quickly, I think two days later, I don’t know, to write on a tablet. Well, to write in a way, you really had to decrypt. Well, I work in a pharmacy, so I’m somewhat used to doctors’ writings, but still, she had her head.”

Experiences in the intensive care unit

With the technical and medical possibilities on intensive care a patient can be able to survive life-threatening illnesses. These experiences of critical illness and intensive care medicine are challenging for patients and families. Often experiences made on intensive care unit (ICU) can be life changing.
In small video- or audio-sequences we would like to illustrate the experiences made by patients on ICU and how they handled their stay in this critical situation.
Many patients share their experiences on intensive care unit and show how these experiences influenced their life.

We are curious about your story!

Credits

Corine Mouton-Dorey

Corine Mouton-Dorey focuses her research on patient agency and accountability. Her PhD work on biomedical ethics identified the importance of the patients’voices in medical practice for better care, trust and justice in health. She has a practical experience with patients both as a cardiologist and as a qualitative researcher. She supports  the french-speaking part of the DIPEx project and work on the possibilities to enrich DIPEx process and outcomes with digital technology.

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