Evelyne E.

Mrs Evelyne E. recalls a confusion between reality and happy hallucinations.

Mrs Evelyne E. describes the confusion, between perception of reality and moments of joyfull hallucinations.

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Corine Mouton-Dorey

Corine Mouton-Dorey focuses her research on patient agency and accountability. Her PhD work on biomedical ethics identified the importance of the patients’voices in medical practice for better care, trust and justice in health. She has a practical experience with patients both as a cardiologist and as a qualitative researcher. She supports  the french-speaking part of the DIPEx project and work on the possibilities to enrich DIPEx process and outcomes with digital technology.

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Mrs Evelyne E. recalls a confusion between reality and happy hallucinations.

“Well, talking like that, like they were talking to those two girls, I think that – and not talking to me; I thought I was next to them, but I wasn’t involved in their discussion at all. I thought it was weird. I thought, “”What am I doing here? They were doing / talking about their classes, their stuff and I was following. And I thought to myself that it’s true that even people in a coma can hear. So I don’t think I was in a coma, I don’t know. I was just waking up, you know.
But I don’t have a bad memory.
I: So you always think that people, even with their eyes closed, can hear?
E: Yes. And then I got confused because I thought, what am I doing here? But what am I doing here? I don’t know, I didn’t understand.

I: And afterwards, did you understand what was going on with the famous picnic, what it could be, that it was just the people doing their work in the next room?

E: Afterwards, but not at the time, I was convinced that they were having a picnic, then that they were going to eat, then that they were going to leave. But I thought they were partying too long. To me, they were partying; I was at parties.”

Experiences in the intensive care unit

With the technical and medical possibilities on intensive care a patient can be able to survive life-threatening illnesses. These experiences of critical illness and intensive care medicine are challenging for patients and families. Often experiences made on intensive care unit (ICU) can be life changing.
In small video- or audio-sequences we would like to illustrate the experiences made by patients on ICU and how they handled their stay in this critical situation.
Many patients share their experiences on intensive care unit and show how these experiences influenced their life.

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Credits

Corine Mouton-Dorey

Corine Mouton-Dorey focuses her research on patient agency and accountability. Her PhD work on biomedical ethics identified the importance of the patients’voices in medical practice for better care, trust and justice in health. She has a practical experience with patients both as a cardiologist and as a qualitative researcher. She supports  the french-speaking part of the DIPEx project and work on the possibilities to enrich DIPEx process and outcomes with digital technology.

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