In March 2020, Ms. Frey had a brain haemorrhage at the age of 61. As Covid was in all the headlines at the time, she thought she had the virus and went back to bed and slept for several hours despite suffering from severe headache. It was not until a day later that she phoned her family doctor for medical advice. The family doctor advised her to go to the emergency ward, so she went to the hospital on foot. It was only weeks later that she realised how ill she had been. After a few tests, including a computer tomography, she was to be transferred to the central hospital. At that time, she still thought she had COVID-19 because no one had informed her of the actual diagnosis. When she was finally informed about the findings at the central hospital, she did not want to undergo an operation at first because she was afraid of the consequences. It was only after a detailed conversation with the surgeon that she realised that she could die within a very short time if she did not have the operation. Ms. Frey criticised the fact that she was not sufficiently involved in medical decisions during the (much too noisy) stay in the intensive care unit, and she refused the transfer to the rehabilitation clinic. Ms. Frey lives alone and was cared for by her partner in the first weeks after hospitalisation. She then returned to previous job as a self-employed visual designer. She feels fully recovered, but also recognises that she is quickly overwhelmed by stimuli. She says she is easily overwhelmed in traffic. The interview took place at her home in July 2021.
AUDIO
Ms. Frey suddenly got a severe headache in the morning. She immediately vomited painkillers. The description of wanting to put her head in a vice makes it clear that she felt extreme pressure which she wanted to counteract somehow.
TRANSCRIPT

Suter (Betroffener)
"So it's really been getting worse by the second"
The aneurysm ruptured at his company party. Mr. Suter suddenly had a severe headache, dizziness, loss of balance, nausea and a sudden loss of hearing. He contacted his partner, who immediately called an ambulance.
Experience of disease
Novak (Betroffene)
"Something has burst"
Ms. Novak felt a burst in her head while working and called her colleagues for help. Within a very short time, she lost control of her body.
Experience of disease
In March 2020, Ms. Frey had a brain haemorrhage at the age of 61. As Covid was in all the headlines at the time, she thought she had the virus and went back to bed and slept for several hours despite suffering from severe headache. It was not until a day later that she phoned her family doctor for medical advice. The family doctor advised her to go to the emergency ward, so she went to the hospital on foot. It was only weeks later that she realised how ill she had been. After a few tests, including a computer tomography, she was to be transferred to the central hospital. At that time, she still thought she had COVID-19 because no one had informed her of the actual diagnosis. When she was finally informed about the findings at the central hospital, she did not want to undergo an operation at first because she was afraid of the consequences. It was only after a detailed conversation with the surgeon that she realised that she could die within a very short time if she did not have the operation. Ms. Frey criticised the fact that she was not sufficiently involved in medical decisions during the (much too noisy) stay in the intensive care unit, and she refused the transfer to the rehabilitation clinic. Ms. Frey lives alone and was cared for by her partner in the first weeks after hospitalisation. She then returned to previous job as a self-employed visual designer. She feels fully recovered, but also recognises that she is quickly overwhelmed by stimuli. She says she is easily overwhelmed in traffic. The interview took place at her home in July 2021.
Frey (Betroffene)
Ms. Frey thought she could continue to work while in intensive care unit
Ms. Frey had her computer brought to the hospital to work. However, she soon found out that she was not able to work through the orders . This shows an overestimation of one's own abilities and resilience.
Experience of disease
Brain damage
Frey (Betroffene)
"If I had a vice, I would put my head in a vice"
Ms. Frey suddenly got a severe headache in the morning. She immediately vomited painkillers. The description of wanting to put her head in a vice makes it clear that she felt extreme pressure which she wanted to counteract somehow.
Experience of disease
Brain damage
Frey (Betroffene)
Ms. Frey forgets a few things now and then
Ms. Frey is not sure if she forgets more since the brain haemorrhage, or if she pays more attention.
Challenges after brain damage
Brain damage
Frey (Betroffene)
Ms. Frey had to turn down some orders after the haemorrhage
Ms. Frey works independently as an illustrator and thought she could already continue her work during the intensive stay. She quickly realised how difficult it was to keep up with simple routine tasks and cancelled the assignment. Even weeks later, her work took significantly more time than usual.
Challenges after brain damage
Brain damage
Frey (Betroffene)
Ms. Frey concentrates on what is good for her
Ms. Frey tries to distance herself from stressful contacts and focuses on positive aspects of life.
Lessons and strategies
Brain damage
Frey (Betroffene)
It gives Ms. Frey strength when she carries out professional assignments
Ms. Frey only became aware of the seriousness of her illness in retrospect. As an illustrator, it helps her to dedicate herself to her work.
Lessons and strategies
Brain damage
Frey (Betroffene)
It was "insanely loud"
For Ms. Frey, the noise was the worst; especially the regular changing of the rubbish bags.
Procedure after brain damage
Brain damage
Frey (Betroffene)
During the lockdown you could not see the faces of the staff
During the Corona pandemic, the staff wore face masks and usually glasses so that their faces and expressions could not be seen. Especially in the first phase of the pandemic, no one was used to this sight.
Procedure after brain damage
Brain damage
Frey (Betroffene)
Ms. Frey felt patronised
Ms. Frey did not want to go to the rehabilitation clinic, even though she was already registered. She felt patronised in her decision by the doctors treating her. Only when she demanded several talks and tears flowed, was her request granted.
Procedure after brain damage
Brain damage
Frey (Betroffene)
Ms. Frey walked to the hospital
Ms. Frey has gaps in her memory from the day of the bleeding event. The symptoms occurred during the first Corona wave. There was no other issue at the time. Ms. Frey thought the virus had got her. It was not until the next day, on the advice of her partner, that she called the family doctor and walked to the nearest hospital.
Decision-making
Brain damage
Frey (Betroffene)
Ms. Frey is grateful not to have been asked about her will to live
Ms. Frey justifies her good progress with her disease by saying that, due to her ignorance, she had good thoughts which had a positive effect on her health. If she had been asked about her will to live, she would only have realised the extent of her disease. Her fears could then have negatively influenced her recovery.
Decision-making
Brain damage
Frey (Betroffene)
"I could go home now"
Ms. Frey could not fully assess the risk of complications and felt restored after the operation. Her greatest wish was to be released home. The two-week period of being confined to bed is an important part of the therapy, in order to prevent complications such as post-operative bleeding.
Decision-making
Brain damage
Frey (Betroffene)
Neighbouring patient indirectly influences the decision
Ms. Frey made a very conscious decision not to go to a rehabilitation clinic after observing the occupational therapy measures at the neighbouring bed. She transferred the therapy to her own condition and classified this measure as superfluous.
Decision-making
Brain damage
Frey (Betroffene)
Between trust and paternalism
Ms. Frey only agreed to the operation after a trusting discussion with the doctor. This illustrates how important the discussions are in order to agree to an operation. During the course of the disease (see paternalism), she felt patronised by the doctors and excluded from the decision of the follow-up therapies. Her willingness to cooperate decreased and she discontinued the therapy.
Decision-making
Brain damage
Frey (Betroffene)
Self-positioning through demarcation
Ms. Frey positions herself by opposing others. In this demarcation, she decides when rehabilitation is necessary.
Identity
Brain damage
Frey (Betroffene)
Insecurity determines the conduct of the conversation
Ms. Frey describes the loss of her self-confidence. She no longer fully trusts her memory and feels more insecure in conversations.
Identity
Brain damage
Frey (Betroffene)
Positive thinking
Ms. Frey is also convinced that thoughts have an effect on the course of the disease, which is why she rejects the complete information.
Faith, religion, and spirituality
Brain damage
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