The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
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Mr. Jenny notices that certain activities cause him trouble. However, it is far from his mind to regard this development as an illness. He explains the difficulties with his aging, since he is about to retire. His brother, however, assesses the situation differently. In retrospect, he also sees the mistakes that initially occurred.
TRANSCRIPT
Herr Vuillemin
Mr. Vuillemin's memory problems developed gradually.
Two years before the Alzheimer's diagnosis, Mr. Vuillemin suffered a stroke. The memory problems developed gradually after the stroke.
Diagnosis
Herr Cohen
Mr. Cohen was initially undergoing treatment for burnout.
Before Mr. Cohen was diagnosed with Alzheimer's dementia, he was undergoing treatment for burnout.
Diagnosis
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Herr Jenny und Herr Jenny
Mr. Jenny explains the difficulties with his ageing.
Mr. Jenny notices that certain activities cause him trouble. However, it is far from his mind to regard this development as an illness. He explains the difficulties with his aging, since he is about to retire. His brother, however, assesses the situation differently. In retrospect, he also sees the mistakes that initially occurred.
Diagnosis
Dementia
Herr Jenny und Herr Jenny
His brother is still doing well and can largely live independently, says Mr. Jenny.
As an expression of the fact that his brother is still doing well and can live independently to a large extent, Mr. Jenny's brother suggests not to speak of Alzheimer's but of a forgetfulness disorder. This term also does not label his brother.
What is dementia?
Dementia
Herr Jenny und Herr Jenny
Slipping into the role of caretaker causes Mr. Jenny trouble.
Whether Mr. Jenny has eaten a hot meal, his brother is often not sure. He thinks his brother sometimes overplays the situation, which puts him in a clinch because he has to take on the role of chaperone. He wrestles with himself again and again.
Processes of adaptation
Dementia
Herr Jenny und Herr Jenny
Mr. Jenny was examined as an outpatient and inpatient.
Mr. Jenny was examined as an outpatient and as an inpatient. In addition to an MRI, there was a lumbar puncture, which was well performed but painful.
Diagnosis
Dementia
Herr Jenny und Herr Jenny
It is a "task" for him to exercise patience towards his brother, says Mr. Jenny.
It is a "task" for him to exercise patience toward his brother, says Mr. Jenny. He finds this difficult because of the sibling relationship, which for him is based on competition because his brother is the older one.
Processes of adaptation
Dementia
Herr Jenny und Herr Jenny
Mr. Jenny contacted the doctor on the initiative of his employer.
Mr. Jenny contacted the doctor on the initiative of his employer.
Diagnosis
Dementia
Herr Jenny und Herr Jenny
To overcome his sadness and frustration, Mr. Jenny tries to accept his illness.
To overcome his sadness and frustration, Mr. Jenny tries to accept his illness and to be happy about the beautiful things in life.
Learning to live with dementia
Dementia
Herr Jenny und Herr Jenny
Mr. Jenny is reticent in providing information about his illness.
Mr. Jenny's brother thinks it is important for him to be around more people. But for Mr. Jenny, more social contacts would mean having to talk about his illness. Therefore, he weighs up with him which offers he would like to use.
What helps? - Patients' perspective
Dementia
Herr Jenny und Herr Jenny
The Jenny brothers see the advance directive differently.
For Mr. Jenny's brother, the living will presents itself as an urgent matter, while Mr. Jenny hesitates because he still needs information and also does not want to look into the future.
Advance care planning
Dementia
Herr Jenny und Herr Jenny
According to the assessment of Mr. Jenny's brother, Mr. Jenny initially lacked a confidant with whom he could have discussed his difficulties.
According to Mr. Jenny's brother, Mr. Jenny initially lacked a confidant with whom he could have discussed his difficulties.
What helps? - Patients' perspective
Dementia
Herr Jenny und Herr Jenny
Mr. Jenny lost several thousand francs from his savings when he paid the deductible for the hospital stay.
Mr. Jenny paid a high deductible for the hospital stay. Several thousand francs were lost from his savings. His income was very barely sufficient to pay the additional costs for the dementia treatment in addition to current expenses. Mr. Jenny's brother plans to apply for supplementary benefits for him.
Costs of care
Dementia
Herr Jenny und Herr Jenny
Mr. Jenny's slowing down is causing his brother problems.
Mr. Jenny's slowing down troubles his brother. His brother says of himself that he has to exercise more patience, which is not easy because of the competitive relationship between the siblings.
What helps? - Patients' perspective
Dementia
Herr Jenny und Herr Jenny
By classifying dementia as a complaint of old age, Mr. Jenny can better accept the disease.
His religiosity strengthens Mr. Jenny's ability to cope with his illness. By classifying dementia as a complaint of old age, he can better accept the disease.
Learning to live with dementia
Dementia
Herr Jenny und Herr Jenny
Mr. Jenny's doctor said that it is possible to live well with dementia for a long time.
Mr. Jenny's doctor said that it is possible to live well with dementia for a long time, which motivates him to actively do something for his health by doing a lot of exercise.
Learning to live with dementia
Dementia
Herr Jenny und Herr Jenny
Mr. Jenny is grateful to his brother for being there for him.
Mr. Jenny is grateful to his brother for being there for him. The siblings plan vacation time together.
What helps? - Patients' perspective
Dementia
Herr Jenny und Herr Jenny
Mr. Jenny checks his orientation during a hike.
Mr. Jenny's preferences are cycling and hiking. During a hike, he takes the opportunity to check his orientation.
Learning to live with dementia
Dementia
Herr Jenny und Herr Jenny
Mr. Jenny takes a sleeping pill for his nightly restlessness.
Mr. Jenny takes a sleeping pill for his nocturnal restlessness, which has significantly improved his condition.
Therapeutic approaches
Dementia
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