Diagnosis
Impairments, restrictions and impacts
Learning to live with dementia
What helps? - Patients' perspective
Recommendations of the patients
What is dementia?
Therapeutic approaches
Advance care planning
What is dementia care?
Four levels of communication of the caregivers
Processes of adaptation
At home or in a nursing home?
Costs of care
What helps? - Caregivers' perspective
Dementia
Dementia is the generic term for more than 50 different forms of dementia that affect the brain function (ICD-10, www.dimdi.de). The initial signs include particularly forgetfulness. Our younger and older narrators talk about the various limitations caused by dementia and how the disease leads to an extensive reorientation in life.
In addition to people with dementia, in this module caregivers who provide or have provided help over a long period of time talk about their experiences as well. Caregivers are the most important support. Dementia care is time-intensive and often affects not only one person but the family as whole. The caregivers take on functional activities every day, but also social tasks. They keep their partners in the community, advocate for them in medical and nursing treatment and in the social environment. As well, they are concerned about a suitable place for them to live.
Dementia care starts very early and develops towards “permanently physically being there”. Where the person with dementia should live, if or when she or he will transfer to a nursing home, is a concern for both the person with dementia and their relatives.
The narratives make the invisible sides of dementia visible. How is dementia experienced? How can there be seen opportunities to shape life despite the lack of cure? What does dementia care mean? What is difficult about it? Concrete concerns of the patients and caregivers in various fields of society are highlighted.
You can watch the excerpts from the interviews as videos, listen to them or read them as text.
This module is made possible by funding from Alzheimer Switzerland.
experiences
Participant
Frau Weber
Mrs. Weber is 58 years old at the time of the interview. She lives with her family, her husband, and two children, in Northwestern Switzerland. She works part-time. The interview took place one year after the death of Mrs. Weber's mother, who began to show signs of dementia at the age of 65. She did not have a specific dementia diagnosis. Her mother initially lived in a flat in an urban setting for six years before transferring to a nursing home, where she died at 77. Mrs. Weber's father, who is significantly older than her mother, also developed dementia. He lives with his younger partner, who cares for him along with Mrs. Weber's support. Mrs. Weber has no siblings.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Herr Reinhart
Mr. Reinhart is 59 years old at the time of the interview. He is Mrs. Reinhart's son and is mainly responsible for the care of his mother who suffers from dementia. Mr. Reinhart lives with his partner in northwestern Switzerland. He works part-time. Mr. Reinhart has no children. Mr. Reinhart's partner has specific knowledge about mental impairments due to her job. During the interview with Mr. Reinhart, his partner and his mother are also present. Mr. Reinhart and his partner are in deep discussions around the option of bringing Ms. Reinhart into their household if the current living arrangement with his mother's partner no longer works.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Frau Richaud
Mrs. Richaud, like her friend Mrs. Lefebre, is 67 years old at the time of the interview. Mrs. Richaud is married and lives in the southern part of Switzerland. Mrs. Richaud is involved in the care of her grandchildren. In addition, she supports her friend, Mrs. Lefebre. She is there for her every day, accompanies her to appointments, and organizes the care arrangement. She has also taken over guardianship for Mrs. Lefebre together with her husband. Helping this other person is important to Mrs. Richaud. At the same time, she sees dementia care as a job that is demanding. She considers remuneration to be appropriate.
Participant
Frau Richaud
Mrs. Richaud, like her friend Mrs. Lefebre, is 67 years old at the time of the interview. Mrs. Richaud is married and lives in the southern part of Switzerland. Mrs. Richaud is involved in the care of her grandchildren. In addition, she supports her friend, Mrs. Lefebre. She is there for her every day, accompanies her to appointments, and organizes the care arrangement. She has also taken over guardianship for Mrs. Lefebre together with her husband. Helping this other person is important to Mrs. Richaud. At the same time, she sees dementia care as a job that is demanding. She considers remuneration to be appropriate.
Participant
Frau Weber
Mrs. Weber is 58 years old at the time of the interview. She lives with her family, her husband, and two children, in Northwestern Switzerland. She works part-time. The interview took place one year after the death of Mrs. Weber's mother, who began to show signs of dementia at the age of 65. She did not have a specific dementia diagnosis. Her mother initially lived in a flat in an urban setting for six years before transferring to a nursing home, where she died at 77. Mrs. Weber's father, who is significantly older than her mother, also developed dementia. He lives with his younger partner, who cares for him along with Mrs. Weber's support. Mrs. Weber has no siblings.
Participant
Frau Richaud
Mrs. Richaud, like her friend Mrs. Lefebre, is 67 years old at the time of the interview. Mrs. Richaud is married and lives in the southern part of Switzerland. Mrs. Richaud is involved in the care of her grandchildren. In addition, she supports her friend, Mrs. Lefebre. She is there for her every day, accompanies her to appointments, and organizes the care arrangement. She has also taken over guardianship for Mrs. Lefebre together with her husband. Helping this other person is important to Mrs. Richaud. At the same time, she sees dementia care as a job that is demanding. She considers remuneration to be appropriate.
Participant
Herr Wolfensberger
Mr. Wolfensberger is 74 years old at the time of the interview; his wife is 81. The couple lives in the southwestern part of Switzerland. Mrs. Wolfensberger was diagnosed with Alzheimer's dementia 11 years ago. Seven years ago, she suffered a stroke. Although she partially recovered, her vision, motor skills, and spatial orientation have been severely limited ever since. Mrs. Wolfensberger requires 24-hour nursing care, which places a heavy burden on Mr. Wolfensberger. For the past four years, his wife has been cared for in the mornings by Spitex. The respite service comes three times a week, and she attends a day structure once a week. This care arrangement allows Mr. Wolfensberger to pursue his work. The couple were employed in academia. Mr. Wolfensberger has dementia-specific expertise.
Participant
Herr Sonderegger
Mr Sonderegger is 83 at the time of the interview and his wife is 80. The couple has children and lives in the German-speaking region of Switzerland. Mr Sonderegger's wife was diagnosed with Alzheimer's dementia when she was about 76 years old. However, he suspects that the dementia started some years earlier. Mr Sonderegger is supported by his son in caregiving. Mrs. Sonderegger was initially cared for in a nursing home. After the aggression subsided, Mr Sonderegger decided to care for his wife at home again to improve her quality of life. During the week, he is supported by privately engaged caregivers. The fact that the couple lives in a house with a garden helps a lot. Mr Sonderegger is confronted with other illnesses in the family. His brother is also suffering from dementia. He has taken over the guardianship for his sister-in-law, who is in need of care.
Participant
Herr Bordoni
Mr. Bordoni is 73 years old at the time of the interview and lives in a remote region in Italian-speaking Switzerland with his wife of 10 years, Mrs. Bordoni, who was also interviewed. Mr. Bordoni was diagnosed with Alzheimer's dementia when he was 70 years old. He describes the fact that the diagnosis came after his retirement as a stroke of luck. He said he was spared dismissal due to the impairments caused by the disease. Mr Bordoni worked as a precision mechanic. Mr Bordoni is supported by his wife and regularly receives psychological counselling.
Participant
Frau Martin-Perret
Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Frau Attinger
Mrs. Attinger is 50 years old at the time of the interview. She is married and lives in the German-speaking region of Switzerland. Her 79-year-old mother was diagnosed with Alzheimer's dementia two years ago. Her mother lives with her husband, who is 12 years younger than her, in the same neighborhood as Mrs. Attinger. Mrs. Attinger has a sister and a brother. Together with her sister, she takes care of her mother on a daily basis, helping with household chores, preparing medications, and accompanying her to appointments. Mrs. Attinger is employed full time.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Frau Köhler-Münch
Mrs. Köhler-Münch is 47 years old at the time of the interview. She lives in the north-eastern part of Switzerland. Mrs. Köhler-Münch lives in a partnership. She is employed full-time and has no children. Mrs. Köhler's mother, who was diagnosed with Alzheimer's dementia 13 years ago, lives in a nursing home in Germany. Mrs. Köhler's parents lived together, but when her father died of cancer, the home care arrangement broke down. Her mother transferred to a nursing home. There were several changes of nursing home because the quality of care was not right, Mrs. Köhler's mother left the home, or behaved aggressively. Mrs. Köhler has two siblings, a brother and a sister, who live in Germany and are both involved in their mother's care. Her brother is the primary guardian and main person in charge. Mrs.. Köhler herself travels to Germany to visit her mother every weekend. The family is affected by dementia in multiple cases; her aunt and uncle also suffer from dementia. At the time of the interview, Mrs. Köhler was planning to move to the USA.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Frau Lefebre
Mrs. Lefebre is 67 years old at the time of the interview. She is single, has no children, and lives in the southern part of Switzerland. She has worked in the education sector. Mrs. Lefebre was diagnosed with Alzheimer's dementia when she was 65 years old. She lives at home, supported by her family members as well as by Mrs. Richaud and the outpatient care service. Mrs. Lefebre has also been attending a structured day program twice a week for a few months, and she experiences the community there as supportive. Her friends, with whom she is surrounded, are very important to her. She is looking for a good way of living with dementia.
Participant
Herr Sonderegger
Mr Sonderegger is 83 at the time of the interview and his wife is 80. The couple has children and lives in the German-speaking region of Switzerland. Mr Sonderegger's wife was diagnosed with Alzheimer's dementia when she was about 76 years old. However, he suspects that the dementia started some years earlier. Mr Sonderegger is supported by his son in caregiving. Mrs. Sonderegger was initially cared for in a nursing home. After the aggression subsided, Mr Sonderegger decided to care for his wife at home again to improve her quality of life. During the week, he is supported by privately engaged caregivers. The fact that the couple lives in a house with a garden helps a lot. Mr Sonderegger is confronted with other illnesses in the family. His brother is also suffering from dementia. He has taken over the guardianship for his sister-in-law, who is in need of care.
Participant
Herr Esposito
Mr. Esposito is 79 years old at the time of the interview. He was diagnosed with Alzheimer's dementia a few years earlier. He lives in Italian-speaking Switzerland and is cared for at home by a caregiver who is with him around the clock. His caregiver is present during the interview. Mr. Esposito is divorced. He has two children who support him. The disease puts a lot of stress on Mr. Esposito, which is why he has considered ending his life.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Frau Hürsch-Dietrich, Herr Hürsch und Frau Colombo-Hürsch
Mrs. Hürsch-Dietrich is 81 years old at the time of the interview and lives in the northwestern part of Switzerland. Her husband, seven years older than she is, recently moved into a nursing home. He was diagnosed with dementia ten years ago, however, Mrs. Hürsch believes that the first signs of the disease appeared ten years before the diagnosis. Mrs. Hürsch cares for her husband with the help of their four children. Two of the children, Mr. Hürsch (age 51) and Mrs. Colombo-Hürsch (age 52), participated in the interview. Despite having constant care, a period of increased aggressivity a few years ago added additional stress on Mrs. Hürsch. Sending her husband to the day program two to three times a week as well as taking a vacation bed for a few days was essential to provide more complete breaks from care. Transferring her husband to a nursing home was an emotionally difficult step for Mrs. Hürsch.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Frau Engel
Mrs. Engel, 71 years old at the time of the interview, is married and lives with her husband, who is 84 years old, in the northwestern part of Switzerland. At the time of the interview, Mrs. Engel is in the process of selling their house in order to move with her husband, who suffers from dementia to an accessible apartment within the locality where they live. Mrs. Engel is currently caring for her husband herself. Her daughter, who is her father's guardian and lives nearby, helps. Mrs. Engel has no plans for further assistance, as she is managing to handle the situation. Her husband's health is good, she says, and it is not stressful for care for him. Her generally positive disposition and the information she has received about the disease help her to deal with her husband. Mrs. Engel is experienced with the disease; her mother, whom she cared for part of the time, also had dementia. However, Mrs. Engel perceives differences between the course of the disease in her husband and its progression in her mother. Mrs. Engel was employed.
Participant
Frau Martin-Perret
Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.
Participant
Frau Weber
Mrs. Weber is 58 years old at the time of the interview. She lives with her family, her husband, and two children, in Northwestern Switzerland. She works part-time. The interview took place one year after the death of Mrs. Weber's mother, who began to show signs of dementia at the age of 65. She did not have a specific dementia diagnosis. Her mother initially lived in a flat in an urban setting for six years before transferring to a nursing home, where she died at 77. Mrs. Weber's father, who is significantly older than her mother, also developed dementia. He lives with his younger partner, who cares for him along with Mrs. Weber's support. Mrs. Weber has no siblings.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Frau Köhler-Münch
Mrs. Köhler-Münch is 47 years old at the time of the interview. She lives in the north-eastern part of Switzerland. Mrs. Köhler-Münch lives in a partnership. She is employed full-time and has no children. Mrs. Köhler's mother, who was diagnosed with Alzheimer's dementia 13 years ago, lives in a nursing home in Germany. Mrs. Köhler's parents lived together, but when her father died of cancer, the home care arrangement broke down. Her mother transferred to a nursing home. There were several changes of nursing home because the quality of care was not right, Mrs. Köhler's mother left the home, or behaved aggressively. Mrs. Köhler has two siblings, a brother and a sister, who live in Germany and are both involved in their mother's care. Her brother is the primary guardian and main person in charge. Mrs.. Köhler herself travels to Germany to visit her mother every weekend. The family is affected by dementia in multiple cases; her aunt and uncle also suffer from dementia. At the time of the interview, Mrs. Köhler was planning to move to the USA.
Participant
Herr Esposito
Mr. Esposito is 79 years old at the time of the interview. He was diagnosed with Alzheimer's dementia a few years earlier. He lives in Italian-speaking Switzerland and is cared for at home by a caregiver who is with him around the clock. His caregiver is present during the interview. Mr. Esposito is divorced. He has two children who support him. The disease puts a lot of stress on Mr. Esposito, which is why he has considered ending his life.
Participant
Frau Hürsch-Dietrich, Herr Hürsch und Frau Colombo-Hürsch
Mrs. Hürsch-Dietrich is 81 years old at the time of the interview and lives in the northwestern part of Switzerland. Her husband, seven years older than she is, recently moved into a nursing home. He was diagnosed with dementia ten years ago, however, Mrs. Hürsch believes that the first signs of the disease appeared ten years before the diagnosis. Mrs. Hürsch cares for her husband with the help of their four children. Two of the children, Mr. Hürsch (age 51) and Mrs. Colombo-Hürsch (age 52), participated in the interview. Despite having constant care, a period of increased aggressivity a few years ago added additional stress on Mrs. Hürsch. Sending her husband to the day program two to three times a week as well as taking a vacation bed for a few days was essential to provide more complete breaks from care. Transferring her husband to a nursing home was an emotionally difficult step for Mrs. Hürsch.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Frau Hürsch-Dietrich, Herr Hürsch und Frau Colombo-Hürsch
Mrs. Hürsch-Dietrich is 81 years old at the time of the interview and lives in the northwestern part of Switzerland. Her husband, seven years older than she is, recently moved into a nursing home. He was diagnosed with dementia ten years ago, however, Mrs. Hürsch believes that the first signs of the disease appeared ten years before the diagnosis. Mrs. Hürsch cares for her husband with the help of their four children. Two of the children, Mr. Hürsch (age 51) and Mrs. Colombo-Hürsch (age 52), participated in the interview. Despite having constant care, a period of increased aggressivity a few years ago added additional stress on Mrs. Hürsch. Sending her husband to the day program two to three times a week as well as taking a vacation bed for a few days was essential to provide more complete breaks from care. Transferring her husband to a nursing home was an emotionally difficult step for Mrs. Hürsch.
Participant
Frau Weber
Mrs. Weber is 58 years old at the time of the interview. She lives with her family, her husband, and two children, in Northwestern Switzerland. She works part-time. The interview took place one year after the death of Mrs. Weber's mother, who began to show signs of dementia at the age of 65. She did not have a specific dementia diagnosis. Her mother initially lived in a flat in an urban setting for six years before transferring to a nursing home, where she died at 77. Mrs. Weber's father, who is significantly older than her mother, also developed dementia. He lives with his younger partner, who cares for him along with Mrs. Weber's support. Mrs. Weber has no siblings.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Herr Eberle und Frau Mathis
Mr. Eberle is 82 years old at the time of the interview, his partner, Mrs. Mathis, is 80 years old. Mrs. Mathis is present during the interview and contributes. The couple lives in central Switzerland. Mrs. Mathis was diagnosed with Alzheimer's dementia when she was 74 years old. After the diagnosis, the couple decided to move into a retirement flat attached to a nursing home. Mrs. Mathis is involved in an occupational program there. Mrs. Mathis has three children, a son and two daughters. The two daughters help with the care, especially the eldest daughter, who works in social services. This daughter is an important contact person for Mr. Eberle. Mr. Eberle attends the relative’s group, which he finds very supportive.
Participant
Herr Wolfensberger
Mr. Wolfensberger is 74 years old at the time of the interview; his wife is 81. The couple lives in the southwestern part of Switzerland. Mrs. Wolfensberger was diagnosed with Alzheimer's dementia 11 years ago. Seven years ago, she suffered a stroke. Although she partially recovered, her vision, motor skills, and spatial orientation have been severely limited ever since. Mrs. Wolfensberger requires 24-hour nursing care, which places a heavy burden on Mr. Wolfensberger. For the past four years, his wife has been cared for in the mornings by Spitex. The respite service comes three times a week, and she attends a day structure once a week. This care arrangement allows Mr. Wolfensberger to pursue his work. The couple were employed in academia. Mr. Wolfensberger has dementia-specific expertise.
Participant
Frau Ullmann und Herr Thoma
The interview was held with both Mr. Thoma, whose father was diagnosed with dementia four years ago, and Mrs. Ullmann, who is a close friend of Mr. Thoma’s father. Both Mr. Thoma and Mrs. Ullmann live in the same area in the northern part of Switzerland. Mr. Thoma is 25 years old, and Mrs. Ullmann is 56 years old. Today, Mr. Thoma’s father is 55 years old. Until two years ago, Mr. Thoma’s father lived alone at home; today he lives in a nursing home. Mrs. Ullmann helps with care by communicating with the care institutions and advocating for Mr. Thoma's father's interests. Mr. Thoma focuses on the new relationship he has been able to build with his father because of his father's dementia. Mr. Thoma feels he is forevermore his father’s confidant and support. Both Mr. Thoma and Mrs. Ullmann live in the same place in the northern part of Switzerland.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Frau Weber
Mrs. Weber is 58 years old at the time of the interview. She lives with her family, her husband, and two children, in Northwestern Switzerland. She works part-time. The interview took place one year after the death of Mrs. Weber's mother, who began to show signs of dementia at the age of 65. She did not have a specific dementia diagnosis. Her mother initially lived in a flat in an urban setting for six years before transferring to a nursing home, where she died at 77. Mrs. Weber's father, who is significantly older than her mother, also developed dementia. He lives with his younger partner, who cares for him along with Mrs. Weber's support. Mrs. Weber has no siblings.
Participant
Herr Bordoni
Mr. Bordoni is 73 years old at the time of the interview and lives in a remote region in Italian-speaking Switzerland with his wife of 10 years, Mrs. Bordoni, who was also interviewed. Mr. Bordoni was diagnosed with Alzheimer's dementia when he was 70 years old. He describes the fact that the diagnosis came after his retirement as a stroke of luck. He said he was spared dismissal due to the impairments caused by the disease. Mr Bordoni worked as a precision mechanic. Mr Bordoni is supported by his wife and regularly receives psychological counselling.
Participant
Herr Wolfensberger
Mr. Wolfensberger is 74 years old at the time of the interview; his wife is 81. The couple lives in the southwestern part of Switzerland. Mrs. Wolfensberger was diagnosed with Alzheimer's dementia 11 years ago. Seven years ago, she suffered a stroke. Although she partially recovered, her vision, motor skills, and spatial orientation have been severely limited ever since. Mrs. Wolfensberger requires 24-hour nursing care, which places a heavy burden on Mr. Wolfensberger. For the past four years, his wife has been cared for in the mornings by Spitex. The respite service comes three times a week, and she attends a day structure once a week. This care arrangement allows Mr. Wolfensberger to pursue his work. The couple were employed in academia. Mr. Wolfensberger has dementia-specific expertise.
Participant
Frau Engel
Mrs. Engel, 71 years old at the time of the interview, is married and lives with her husband, who is 84 years old, in the northwestern part of Switzerland. At the time of the interview, Mrs. Engel is in the process of selling their house in order to move with her husband, who suffers from dementia to an accessible apartment within the locality where they live. Mrs. Engel is currently caring for her husband herself. Her daughter, who is her father's guardian and lives nearby, helps. Mrs. Engel has no plans for further assistance, as she is managing to handle the situation. Her husband's health is good, she says, and it is not stressful for care for him. Her generally positive disposition and the information she has received about the disease help her to deal with her husband. Mrs. Engel is experienced with the disease; her mother, whom she cared for part of the time, also had dementia. However, Mrs. Engel perceives differences between the course of the disease in her husband and its progression in her mother. Mrs. Engel was employed.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Herr Jenny und Herr Jenny
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Herr Eberle und Frau Mathis
Mr. Eberle is 82 years old at the time of the interview, his partner, Mrs. Mathis, is 80 years old. Mrs. Mathis is present during the interview and contributes. The couple lives in central Switzerland. Mrs. Mathis was diagnosed with Alzheimer's dementia when she was 74 years old. After the diagnosis, the couple decided to move into a retirement flat attached to a nursing home. Mrs. Mathis is involved in an occupational program there. Mrs. Mathis has three children, a son and two daughters. The two daughters help with the care, especially the eldest daughter, who works in social services. This daughter is an important contact person for Mr. Eberle. Mr. Eberle attends the relative’s group, which he finds very supportive.
Participant
Frau Martin-Perret
Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Herr Sonderegger
Mr Sonderegger is 83 at the time of the interview and his wife is 80. The couple has children and lives in the German-speaking region of Switzerland. Mr Sonderegger's wife was diagnosed with Alzheimer's dementia when she was about 76 years old. However, he suspects that the dementia started some years earlier. Mr Sonderegger is supported by his son in caregiving. Mrs. Sonderegger was initially cared for in a nursing home. After the aggression subsided, Mr Sonderegger decided to care for his wife at home again to improve her quality of life. During the week, he is supported by privately engaged caregivers. The fact that the couple lives in a house with a garden helps a lot. Mr Sonderegger is confronted with other illnesses in the family. His brother is also suffering from dementia. He has taken over the guardianship for his sister-in-law, who is in need of care.
Participant
Frau Weber
Mrs. Weber is 58 years old at the time of the interview. She lives with her family, her husband, and two children, in Northwestern Switzerland. She works part-time. The interview took place one year after the death of Mrs. Weber's mother, who began to show signs of dementia at the age of 65. She did not have a specific dementia diagnosis. Her mother initially lived in a flat in an urban setting for six years before transferring to a nursing home, where she died at 77. Mrs. Weber's father, who is significantly older than her mother, also developed dementia. He lives with his younger partner, who cares for him along with Mrs. Weber's support. Mrs. Weber has no siblings.
Participant
Frau Köhler-Münch
Mrs. Köhler-Münch is 47 years old at the time of the interview. She lives in the north-eastern part of Switzerland. Mrs. Köhler-Münch lives in a partnership. She is employed full-time and has no children. Mrs. Köhler's mother, who was diagnosed with Alzheimer's dementia 13 years ago, lives in a nursing home in Germany. Mrs. Köhler's parents lived together, but when her father died of cancer, the home care arrangement broke down. Her mother transferred to a nursing home. There were several changes of nursing home because the quality of care was not right, Mrs. Köhler's mother left the home, or behaved aggressively. Mrs. Köhler has two siblings, a brother and a sister, who live in Germany and are both involved in their mother's care. Her brother is the primary guardian and main person in charge. Mrs.. Köhler herself travels to Germany to visit her mother every weekend. The family is affected by dementia in multiple cases; her aunt and uncle also suffer from dementia. At the time of the interview, Mrs. Köhler was planning to move to the USA.
Participant
Herr Eberle und Frau Mathis
Mr. Eberle is 82 years old at the time of the interview, his partner, Mrs. Mathis, is 80 years old. Mrs. Mathis is present during the interview and contributes. The couple lives in central Switzerland. Mrs. Mathis was diagnosed with Alzheimer's dementia when she was 74 years old. After the diagnosis, the couple decided to move into a retirement flat attached to a nursing home. Mrs. Mathis is involved in an occupational program there. Mrs. Mathis has three children, a son and two daughters. The two daughters help with the care, especially the eldest daughter, who works in social services. This daughter is an important contact person for Mr. Eberle. Mr. Eberle attends the relative’s group, which he finds very supportive.
Participant
Frau Köhler-Münch
Mrs. Köhler-Münch is 47 years old at the time of the interview. She lives in the north-eastern part of Switzerland. Mrs. Köhler-Münch lives in a partnership. She is employed full-time and has no children. Mrs. Köhler's mother, who was diagnosed with Alzheimer's dementia 13 years ago, lives in a nursing home in Germany. Mrs. Köhler's parents lived together, but when her father died of cancer, the home care arrangement broke down. Her mother transferred to a nursing home. There were several changes of nursing home because the quality of care was not right, Mrs. Köhler's mother left the home, or behaved aggressively. Mrs. Köhler has two siblings, a brother and a sister, who live in Germany and are both involved in their mother's care. Her brother is the primary guardian and main person in charge. Mrs.. Köhler herself travels to Germany to visit her mother every weekend. The family is affected by dementia in multiple cases; her aunt and uncle also suffer from dementia. At the time of the interview, Mrs. Köhler was planning to move to the USA.
Participant
Frau Lefebre
Mrs. Lefebre is 67 years old at the time of the interview. She is single, has no children, and lives in the southern part of Switzerland. She has worked in the education sector. Mrs. Lefebre was diagnosed with Alzheimer's dementia when she was 65 years old. She lives at home, supported by her family members as well as by Mrs. Richaud and the outpatient care service. Mrs. Lefebre has also been attending a structured day program twice a week for a few months, and she experiences the community there as supportive. Her friends, with whom she is surrounded, are very important to her. She is looking for a good way of living with dementia.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Frau Martin-Perret
Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.
Participant
Herr Reinhart
Mr. Reinhart is 59 years old at the time of the interview. He is Mrs. Reinhart's son and is mainly responsible for the care of his mother who suffers from dementia. Mr. Reinhart lives with his partner in northwestern Switzerland. He works part-time. Mr. Reinhart has no children. Mr. Reinhart's partner has specific knowledge about mental impairments due to her job. During the interview with Mr. Reinhart, his partner and his mother are also present. Mr. Reinhart and his partner are in deep discussions around the option of bringing Ms. Reinhart into their household if the current living arrangement with his mother's partner no longer works.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Frau Richaud
Mrs. Richaud, like her friend Mrs. Lefebre, is 67 years old at the time of the interview. Mrs. Richaud is married and lives in the southern part of Switzerland. Mrs. Richaud is involved in the care of her grandchildren. In addition, she supports her friend, Mrs. Lefebre. She is there for her every day, accompanies her to appointments, and organizes the care arrangement. She has also taken over guardianship for Mrs. Lefebre together with her husband. Helping this other person is important to Mrs. Richaud. At the same time, she sees dementia care as a job that is demanding. She considers remuneration to be appropriate.
Participant
Herr Eberle und Frau Mathis
Mr. Eberle is 82 years old at the time of the interview, his partner, Mrs. Mathis, is 80 years old. Mrs. Mathis is present during the interview and contributes. The couple lives in central Switzerland. Mrs. Mathis was diagnosed with Alzheimer's dementia when she was 74 years old. After the diagnosis, the couple decided to move into a retirement flat attached to a nursing home. Mrs. Mathis is involved in an occupational program there. Mrs. Mathis has three children, a son and two daughters. The two daughters help with the care, especially the eldest daughter, who works in social services. This daughter is an important contact person for Mr. Eberle. Mr. Eberle attends the relative’s group, which he finds very supportive.
Participant
Frau Bordoni
Mrs. Bordoni is the wife of Mr Bordoni. Mrs. Bordoni is 62 years old at the time of the interview. She comes from central Switzerland. She supports her husband, who has Alzheimer's dementia. Mrs.. Bordoni is employed part-time. Mrs.. Bordoni considers it very important to get information and counselling about the disease.
Participant
Frau Hürsch-Dietrich, Herr Hürsch und Frau Colombo-Hürsch
Mrs. Hürsch-Dietrich is 81 years old at the time of the interview and lives in the northwestern part of Switzerland. Her husband, seven years older than she is, recently moved into a nursing home. He was diagnosed with dementia ten years ago, however, Mrs. Hürsch believes that the first signs of the disease appeared ten years before the diagnosis. Mrs. Hürsch cares for her husband with the help of their four children. Two of the children, Mr. Hürsch (age 51) and Mrs. Colombo-Hürsch (age 52), participated in the interview. Despite having constant care, a period of increased aggressivity a few years ago added additional stress on Mrs. Hürsch. Sending her husband to the day program two to three times a week as well as taking a vacation bed for a few days was essential to provide more complete breaks from care. Transferring her husband to a nursing home was an emotionally difficult step for Mrs. Hürsch.
Participant
Herr Reinhart
Mr. Reinhart is 59 years old at the time of the interview. He is Mrs. Reinhart's son and is mainly responsible for the care of his mother who suffers from dementia. Mr. Reinhart lives with his partner in northwestern Switzerland. He works part-time. Mr. Reinhart has no children. Mr. Reinhart's partner has specific knowledge about mental impairments due to her job. During the interview with Mr. Reinhart, his partner and his mother are also present. Mr. Reinhart and his partner are in deep discussions around the option of bringing Ms. Reinhart into their household if the current living arrangement with his mother's partner no longer works.
Participant
Herr Ott
Mr. Ott, 54 years old at the time of the interview, cared for his mother, who suffered from dementia, for six years. She passed away the year before the interview. His mother was diagnosed with Alzheimer's dementia. Mr. Ott lives and works in the northeastern part of Switzerland; his mother lived in central Switzerland. Thanks to the fact that he is self-employed, Mr. Ott was able to arrange his schedule flexibly during the week and to interrupt his work at short notice when his mother needed help. On weekends, he was regularly with her to manage household chores and keep her company. After a fall at home, his mother was transferred to a nursing home, where she died a few months later. Mr. Ott has a brother who also lives in central Switzerland and took over administrative matters for his mother. Mr. Ott did not experience his mother's dementia as a major disruption in their relationship to one another, as he had always played the role of his mother's close caregiver and had cared for her since his father's death 20 years ago. In addition to the support, she received from her sons, Mr. Ott’s mother got help from the outpatient nursing and visiting service as well as from those in the neighborhood.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Herr Jenny und Herr Jenny
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Participant
Frau Martin-Perret
Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.
Participant
Herr Sonderegger
Mr Sonderegger is 83 at the time of the interview and his wife is 80. The couple has children and lives in the German-speaking region of Switzerland. Mr Sonderegger's wife was diagnosed with Alzheimer's dementia when she was about 76 years old. However, he suspects that the dementia started some years earlier. Mr Sonderegger is supported by his son in caregiving. Mrs. Sonderegger was initially cared for in a nursing home. After the aggression subsided, Mr Sonderegger decided to care for his wife at home again to improve her quality of life. During the week, he is supported by privately engaged caregivers. The fact that the couple lives in a house with a garden helps a lot. Mr Sonderegger is confronted with other illnesses in the family. His brother is also suffering from dementia. He has taken over the guardianship for his sister-in-law, who is in need of care.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Frau Tailler
Mrs. Tailler lives in the western region of Switzerland. She is 70 years old. Her husband, who is 81, was diagnosed with Alzheimer's dementia six years ago. Both Mrs. Tailler and her husband were previously married. Mrs. Tailler has three children from her first marriage, and her husband has four children. Mrs. Tailler worked as a nurse practitioner. The Alzheimer's diagnosis turned Mrs. Tailler's life upside down. Caregiving has made her housebound; she sees her hopes of enjoying life as a retiree with her husband thwarted. She is no longer able to do for her own family what she wishes she could; she lacks the time to look after her grandchildren or to go out for social engagements. The fact that it is not possible to talk to her husband about his illness limits Mrs. Tailler's hope for relief. Mrs. Tailler is supported by her husband's daughters, who arranged for him to be enrolled in a day program, which he has recently begun attending two times a week. He is on the waiting list for short stays in several homes.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Frau Morel
At the time of the interview, Mrs. Morel is 71 years old and lives in French-speaking Switzerland with her daughter and her daughter's two children. Mrs. Morel is widowed. Five years ago, when she was 66 years old, she was diagnosed with Alzheimer's dementia. In addition to daily care from one of her daughters, she attends a structured day program. The fact that she is not alone but in the community with her daughter and grandchildren is a great comfort. She describes herself as a person with the will to persevere, and her faith helps.
Participant
Frau Ullmann und Herr Thoma
The interview was held with both Mr. Thoma, whose father was diagnosed with dementia four years ago, and Mrs. Ullmann, who is a close friend of Mr. Thoma’s father. Both Mr. Thoma and Mrs. Ullmann live in the same area in the northern part of Switzerland. Mr. Thoma is 25 years old, and Mrs. Ullmann is 56 years old. Today, Mr. Thoma’s father is 55 years old. Until two years ago, Mr. Thoma’s father lived alone at home; today he lives in a nursing home. Mrs. Ullmann helps with care by communicating with the care institutions and advocating for Mr. Thoma's father's interests. Mr. Thoma focuses on the new relationship he has been able to build with his father because of his father's dementia. Mr. Thoma feels he is forevermore his father’s confidant and support. Both Mr. Thoma and Mrs. Ullmann live in the same place in the northern part of Switzerland.
Participant
Herr Bordoni
Mr. Bordoni is 73 years old at the time of the interview and lives in a remote region in Italian-speaking Switzerland with his wife of 10 years, Mrs. Bordoni, who was also interviewed. Mr. Bordoni was diagnosed with Alzheimer's dementia when he was 70 years old. He describes the fact that the diagnosis came after his retirement as a stroke of luck. He said he was spared dismissal due to the impairments caused by the disease. Mr Bordoni worked as a precision mechanic. Mr Bordoni is supported by his wife and regularly receives psychological counselling.
Participant
Frau Martin-Perret
Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Herr Sonderegger
Mr Sonderegger is 83 at the time of the interview and his wife is 80. The couple has children and lives in the German-speaking region of Switzerland. Mr Sonderegger's wife was diagnosed with Alzheimer's dementia when she was about 76 years old. However, he suspects that the dementia started some years earlier. Mr Sonderegger is supported by his son in caregiving. Mrs. Sonderegger was initially cared for in a nursing home. After the aggression subsided, Mr Sonderegger decided to care for his wife at home again to improve her quality of life. During the week, he is supported by privately engaged caregivers. The fact that the couple lives in a house with a garden helps a lot. Mr Sonderegger is confronted with other illnesses in the family. His brother is also suffering from dementia. He has taken over the guardianship for his sister-in-law, who is in need of care.
Participant
Frau Dubois
Mrs. Dubois lives in the western region of Switzerland. She is 78 years old at the time of the interview. Her husband, 77, who lives in a nursing home, was diagnosed with Alzheimer's disease and vascular dementia four years ago. Her husband's aggressiveness and incontinence made home care impossible. Before deciding to transfer to a nursing home, Mrs. Dubois increased the amount of time her husband spent at a day program, which he had attended once a week, to ease the burden. In between, he spent several weeks in a home, where he behaved just as aggressively. Mrs. Dubois receives support from her sisters and from the nursing staff in the home. With the dementia, her marital happiness collapsed. Mrs. Dubois had worked as a doctor, running a joint practice with her husband. The imminent sale of their house feels like a great loss.
Participant
Frau Lefebre
Mrs. Lefebre is 67 years old at the time of the interview. She is single, has no children, and lives in the southern part of Switzerland. She has worked in the education sector. Mrs. Lefebre was diagnosed with Alzheimer's dementia when she was 65 years old. She lives at home, supported by her family members as well as by Mrs. Richaud and the outpatient care service. Mrs. Lefebre has also been attending a structured day program twice a week for a few months, and she experiences the community there as supportive. Her friends, with whom she is surrounded, are very important to her. She is looking for a good way of living with dementia.
Participant
Frau Attinger
Mrs. Attinger is 50 years old at the time of the interview. She is married and lives in the German-speaking region of Switzerland. Her 79-year-old mother was diagnosed with Alzheimer's dementia two years ago. Her mother lives with her husband, who is 12 years younger than her, in the same neighborhood as Mrs. Attinger. Mrs. Attinger has a sister and a brother. Together with her sister, she takes care of her mother on a daily basis, helping with household chores, preparing medications, and accompanying her to appointments. Mrs. Attinger is employed full time.
Participant
Frau Martin-Perret
Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Frau Hürsch-Dietrich, Herr Hürsch und Frau Colombo-Hürsch
Mrs. Hürsch-Dietrich is 81 years old at the time of the interview and lives in the northwestern part of Switzerland. Her husband, seven years older than she is, recently moved into a nursing home. He was diagnosed with dementia ten years ago, however, Mrs. Hürsch believes that the first signs of the disease appeared ten years before the diagnosis. Mrs. Hürsch cares for her husband with the help of their four children. Two of the children, Mr. Hürsch (age 51) and Mrs. Colombo-Hürsch (age 52), participated in the interview. Despite having constant care, a period of increased aggressivity a few years ago added additional stress on Mrs. Hürsch. Sending her husband to the day program two to three times a week as well as taking a vacation bed for a few days was essential to provide more complete breaks from care. Transferring her husband to a nursing home was an emotionally difficult step for Mrs. Hürsch.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Frau Martin-Perret
Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.
Participant
Herr Jenny und Herr Jenny
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Participant
Frau Martin-Perret
Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.
Participant
Frau Weber
Mrs. Weber is 58 years old at the time of the interview. She lives with her family, her husband, and two children, in Northwestern Switzerland. She works part-time. The interview took place one year after the death of Mrs. Weber's mother, who began to show signs of dementia at the age of 65. She did not have a specific dementia diagnosis. Her mother initially lived in a flat in an urban setting for six years before transferring to a nursing home, where she died at 77. Mrs. Weber's father, who is significantly older than her mother, also developed dementia. He lives with his younger partner, who cares for him along with Mrs. Weber's support. Mrs. Weber has no siblings.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Herr Sonderegger
Mr Sonderegger is 83 at the time of the interview and his wife is 80. The couple has children and lives in the German-speaking region of Switzerland. Mr Sonderegger's wife was diagnosed with Alzheimer's dementia when she was about 76 years old. However, he suspects that the dementia started some years earlier. Mr Sonderegger is supported by his son in caregiving. Mrs. Sonderegger was initially cared for in a nursing home. After the aggression subsided, Mr Sonderegger decided to care for his wife at home again to improve her quality of life. During the week, he is supported by privately engaged caregivers. The fact that the couple lives in a house with a garden helps a lot. Mr Sonderegger is confronted with other illnesses in the family. His brother is also suffering from dementia. He has taken over the guardianship for his sister-in-law, who is in need of care.
Participant
Frau Attinger
Mrs. Attinger is 50 years old at the time of the interview. She is married and lives in the German-speaking region of Switzerland. Her 79-year-old mother was diagnosed with Alzheimer's dementia two years ago. Her mother lives with her husband, who is 12 years younger than her, in the same neighborhood as Mrs. Attinger. Mrs. Attinger has a sister and a brother. Together with her sister, she takes care of her mother on a daily basis, helping with household chores, preparing medications, and accompanying her to appointments. Mrs. Attinger is employed full time.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Frau Bordoni
Mrs. Bordoni is the wife of Mr Bordoni. Mrs. Bordoni is 62 years old at the time of the interview. She comes from central Switzerland. She supports her husband, who has Alzheimer's dementia. Mrs.. Bordoni is employed part-time. Mrs.. Bordoni considers it very important to get information and counselling about the disease.
Participant
Herr Esposito
Mr. Esposito is 79 years old at the time of the interview. He was diagnosed with Alzheimer's dementia a few years earlier. He lives in Italian-speaking Switzerland and is cared for at home by a caregiver who is with him around the clock. His caregiver is present during the interview. Mr. Esposito is divorced. He has two children who support him. The disease puts a lot of stress on Mr. Esposito, which is why he has considered ending his life.
Participant
Frau Attinger
Mrs. Attinger is 50 years old at the time of the interview. She is married and lives in the German-speaking region of Switzerland. Her 79-year-old mother was diagnosed with Alzheimer's dementia two years ago. Her mother lives with her husband, who is 12 years younger than her, in the same neighborhood as Mrs. Attinger. Mrs. Attinger has a sister and a brother. Together with her sister, she takes care of her mother on a daily basis, helping with household chores, preparing medications, and accompanying her to appointments. Mrs. Attinger is employed full time.
Participant
Frau Hürsch-Dietrich, Herr Hürsch und Frau Colombo-Hürsch
Mrs. Hürsch-Dietrich is 81 years old at the time of the interview and lives in the northwestern part of Switzerland. Her husband, seven years older than she is, recently moved into a nursing home. He was diagnosed with dementia ten years ago, however, Mrs. Hürsch believes that the first signs of the disease appeared ten years before the diagnosis. Mrs. Hürsch cares for her husband with the help of their four children. Two of the children, Mr. Hürsch (age 51) and Mrs. Colombo-Hürsch (age 52), participated in the interview. Despite having constant care, a period of increased aggressivity a few years ago added additional stress on Mrs. Hürsch. Sending her husband to the day program two to three times a week as well as taking a vacation bed for a few days was essential to provide more complete breaks from care. Transferring her husband to a nursing home was an emotionally difficult step for Mrs. Hürsch.
Participant
Herr Eberle und Frau Mathis
Mr. Eberle is 82 years old at the time of the interview, his partner, Mrs. Mathis, is 80 years old. Mrs. Mathis is present during the interview and contributes. The couple lives in central Switzerland. Mrs. Mathis was diagnosed with Alzheimer's dementia when she was 74 years old. After the diagnosis, the couple decided to move into a retirement flat attached to a nursing home. Mrs. Mathis is involved in an occupational program there. Mrs. Mathis has three children, a son and two daughters. The two daughters help with the care, especially the eldest daughter, who works in social services. This daughter is an important contact person for Mr. Eberle. Mr. Eberle attends the relative’s group, which he finds very supportive.
Participant
Frau Engel
Mrs. Engel, 71 years old at the time of the interview, is married and lives with her husband, who is 84 years old, in the northwestern part of Switzerland. At the time of the interview, Mrs. Engel is in the process of selling their house in order to move with her husband, who suffers from dementia to an accessible apartment within the locality where they live. Mrs. Engel is currently caring for her husband herself. Her daughter, who is her father's guardian and lives nearby, helps. Mrs. Engel has no plans for further assistance, as she is managing to handle the situation. Her husband's health is good, she says, and it is not stressful for care for him. Her generally positive disposition and the information she has received about the disease help her to deal with her husband. Mrs. Engel is experienced with the disease; her mother, whom she cared for part of the time, also had dementia. However, Mrs. Engel perceives differences between the course of the disease in her husband and its progression in her mother. Mrs. Engel was employed.
Participant
Frau Weber
Mrs. Weber is 58 years old at the time of the interview. She lives with her family, her husband, and two children, in Northwestern Switzerland. She works part-time. The interview took place one year after the death of Mrs. Weber's mother, who began to show signs of dementia at the age of 65. She did not have a specific dementia diagnosis. Her mother initially lived in a flat in an urban setting for six years before transferring to a nursing home, where she died at 77. Mrs. Weber's father, who is significantly older than her mother, also developed dementia. He lives with his younger partner, who cares for him along with Mrs. Weber's support. Mrs. Weber has no siblings.
Participant
Herr Bordoni
Mr. Bordoni is 73 years old at the time of the interview and lives in a remote region in Italian-speaking Switzerland with his wife of 10 years, Mrs. Bordoni, who was also interviewed. Mr. Bordoni was diagnosed with Alzheimer's dementia when he was 70 years old. He describes the fact that the diagnosis came after his retirement as a stroke of luck. He said he was spared dismissal due to the impairments caused by the disease. Mr Bordoni worked as a precision mechanic. Mr Bordoni is supported by his wife and regularly receives psychological counselling.
Participant
Herr Reinhart
Mr. Reinhart is 59 years old at the time of the interview. He is Mrs. Reinhart's son and is mainly responsible for the care of his mother who suffers from dementia. Mr. Reinhart lives with his partner in northwestern Switzerland. He works part-time. Mr. Reinhart has no children. Mr. Reinhart's partner has specific knowledge about mental impairments due to her job. During the interview with Mr. Reinhart, his partner and his mother are also present. Mr. Reinhart and his partner are in deep discussions around the option of bringing Ms. Reinhart into their household if the current living arrangement with his mother's partner no longer works.
Participant
Frau Köhler-Münch
Mrs. Köhler-Münch is 47 years old at the time of the interview. She lives in the north-eastern part of Switzerland. Mrs. Köhler-Münch lives in a partnership. She is employed full-time and has no children. Mrs. Köhler's mother, who was diagnosed with Alzheimer's dementia 13 years ago, lives in a nursing home in Germany. Mrs. Köhler's parents lived together, but when her father died of cancer, the home care arrangement broke down. Her mother transferred to a nursing home. There were several changes of nursing home because the quality of care was not right, Mrs. Köhler's mother left the home, or behaved aggressively. Mrs. Köhler has two siblings, a brother and a sister, who live in Germany and are both involved in their mother's care. Her brother is the primary guardian and main person in charge. Mrs.. Köhler herself travels to Germany to visit her mother every weekend. The family is affected by dementia in multiple cases; her aunt and uncle also suffer from dementia. At the time of the interview, Mrs. Köhler was planning to move to the USA.
Participant
Frau Hürsch-Dietrich, Herr Hürsch und Frau Colombo-Hürsch
Mrs. Hürsch-Dietrich is 81 years old at the time of the interview and lives in the northwestern part of Switzerland. Her husband, seven years older than she is, recently moved into a nursing home. He was diagnosed with dementia ten years ago, however, Mrs. Hürsch believes that the first signs of the disease appeared ten years before the diagnosis. Mrs. Hürsch cares for her husband with the help of their four children. Two of the children, Mr. Hürsch (age 51) and Mrs. Colombo-Hürsch (age 52), participated in the interview. Despite having constant care, a period of increased aggressivity a few years ago added additional stress on Mrs. Hürsch. Sending her husband to the day program two to three times a week as well as taking a vacation bed for a few days was essential to provide more complete breaks from care. Transferring her husband to a nursing home was an emotionally difficult step for Mrs. Hürsch.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Frau Ullmann und Herr Thoma
The interview was held with both Mr. Thoma, whose father was diagnosed with dementia four years ago, and Mrs. Ullmann, who is a close friend of Mr. Thoma’s father. Both Mr. Thoma and Mrs. Ullmann live in the same area in the northern part of Switzerland. Mr. Thoma is 25 years old, and Mrs. Ullmann is 56 years old. Today, Mr. Thoma’s father is 55 years old. Until two years ago, Mr. Thoma’s father lived alone at home; today he lives in a nursing home. Mrs. Ullmann helps with care by communicating with the care institutions and advocating for Mr. Thoma's father's interests. Mr. Thoma focuses on the new relationship he has been able to build with his father because of his father's dementia. Mr. Thoma feels he is forevermore his father’s confidant and support. Both Mr. Thoma and Mrs. Ullmann live in the same place in the northern part of Switzerland.
Participant
Herr Ott
Mr. Ott, 54 years old at the time of the interview, cared for his mother, who suffered from dementia, for six years. She passed away the year before the interview. His mother was diagnosed with Alzheimer's dementia. Mr. Ott lives and works in the northeastern part of Switzerland; his mother lived in central Switzerland. Thanks to the fact that he is self-employed, Mr. Ott was able to arrange his schedule flexibly during the week and to interrupt his work at short notice when his mother needed help. On weekends, he was regularly with her to manage household chores and keep her company. After a fall at home, his mother was transferred to a nursing home, where she died a few months later. Mr. Ott has a brother who also lives in central Switzerland and took over administrative matters for his mother. Mr. Ott did not experience his mother's dementia as a major disruption in their relationship to one another, as he had always played the role of his mother's close caregiver and had cared for her since his father's death 20 years ago. In addition to the support, she received from her sons, Mr. Ott’s mother got help from the outpatient nursing and visiting service as well as from those in the neighborhood.
Participant
Herr Reinhart
Mr. Reinhart is 59 years old at the time of the interview. He is Mrs. Reinhart's son and is mainly responsible for the care of his mother who suffers from dementia. Mr. Reinhart lives with his partner in northwestern Switzerland. He works part-time. Mr. Reinhart has no children. Mr. Reinhart's partner has specific knowledge about mental impairments due to her job. During the interview with Mr. Reinhart, his partner and his mother are also present. Mr. Reinhart and his partner are in deep discussions around the option of bringing Ms. Reinhart into their household if the current living arrangement with his mother's partner no longer works.
Participant
Frau Hürsch-Dietrich, Herr Hürsch und Frau Colombo-Hürsch
Mrs. Hürsch-Dietrich is 81 years old at the time of the interview and lives in the northwestern part of Switzerland. Her husband, seven years older than she is, recently moved into a nursing home. He was diagnosed with dementia ten years ago, however, Mrs. Hürsch believes that the first signs of the disease appeared ten years before the diagnosis. Mrs. Hürsch cares for her husband with the help of their four children. Two of the children, Mr. Hürsch (age 51) and Mrs. Colombo-Hürsch (age 52), participated in the interview. Despite having constant care, a period of increased aggressivity a few years ago added additional stress on Mrs. Hürsch. Sending her husband to the day program two to three times a week as well as taking a vacation bed for a few days was essential to provide more complete breaks from care. Transferring her husband to a nursing home was an emotionally difficult step for Mrs. Hürsch.
Participant
Frau Weber
Mrs. Weber is 58 years old at the time of the interview. She lives with her family, her husband, and two children, in Northwestern Switzerland. She works part-time. The interview took place one year after the death of Mrs. Weber's mother, who began to show signs of dementia at the age of 65. She did not have a specific dementia diagnosis. Her mother initially lived in a flat in an urban setting for six years before transferring to a nursing home, where she died at 77. Mrs. Weber's father, who is significantly older than her mother, also developed dementia. He lives with his younger partner, who cares for him along with Mrs. Weber's support. Mrs. Weber has no siblings.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Frau Martin-Perret
Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.
Participant
Frau Lefebre
Mrs. Lefebre is 67 years old at the time of the interview. She is single, has no children, and lives in the southern part of Switzerland. She has worked in the education sector. Mrs. Lefebre was diagnosed with Alzheimer's dementia when she was 65 years old. She lives at home, supported by her family members as well as by Mrs. Richaud and the outpatient care service. Mrs. Lefebre has also been attending a structured day program twice a week for a few months, and she experiences the community there as supportive. Her friends, with whom she is surrounded, are very important to her. She is looking for a good way of living with dementia.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Frau Dubois
Mrs. Dubois lives in the western region of Switzerland. She is 78 years old at the time of the interview. Her husband, 77, who lives in a nursing home, was diagnosed with Alzheimer's disease and vascular dementia four years ago. Her husband's aggressiveness and incontinence made home care impossible. Before deciding to transfer to a nursing home, Mrs. Dubois increased the amount of time her husband spent at a day program, which he had attended once a week, to ease the burden. In between, he spent several weeks in a home, where he behaved just as aggressively. Mrs. Dubois receives support from her sisters and from the nursing staff in the home. With the dementia, her marital happiness collapsed. Mrs. Dubois had worked as a doctor, running a joint practice with her husband. The imminent sale of their house feels like a great loss.
Participant
Frau Hürsch-Dietrich, Herr Hürsch und Frau Colombo-Hürsch
Mrs. Hürsch-Dietrich is 81 years old at the time of the interview and lives in the northwestern part of Switzerland. Her husband, seven years older than she is, recently moved into a nursing home. He was diagnosed with dementia ten years ago, however, Mrs. Hürsch believes that the first signs of the disease appeared ten years before the diagnosis. Mrs. Hürsch cares for her husband with the help of their four children. Two of the children, Mr. Hürsch (age 51) and Mrs. Colombo-Hürsch (age 52), participated in the interview. Despite having constant care, a period of increased aggressivity a few years ago added additional stress on Mrs. Hürsch. Sending her husband to the day program two to three times a week as well as taking a vacation bed for a few days was essential to provide more complete breaks from care. Transferring her husband to a nursing home was an emotionally difficult step for Mrs. Hürsch.
Participant
Frau Bodmer
Ms. Bodmer is 28 years old at the time of the interview, has two siblings, and lives in the northern part of Switzerland. Ms. Bodmer is currently working in education. Her 88-year-old grandmother, who is physically healthy, developed dementia six years ago. Her grandmother does not have a specific dementia diagnosis. Ms. Bodmer's grandmother lives alone at home in a small village. Ms. Bodmer's father, who lives in the immediate vicinity, cares for his mother daily. There is a wider support network of family members, friends, and neighbors who are in daily contact with Ms. Bodmer’s grandmother as well. The grandchildren help around the house, and Ms. Bodmer visits her grandmother on weekends to do things with her. Outside help from the outpatient nursing service has been considered by the family, but Ms. Bodmer’s grandmother is emotionally sensitive to the suggestion of bringing in external support.
Participant
Frau Weber
Mrs. Weber is 58 years old at the time of the interview. She lives with her family, her husband, and two children, in Northwestern Switzerland. She works part-time. The interview took place one year after the death of Mrs. Weber's mother, who began to show signs of dementia at the age of 65. She did not have a specific dementia diagnosis. Her mother initially lived in a flat in an urban setting for six years before transferring to a nursing home, where she died at 77. Mrs. Weber's father, who is significantly older than her mother, also developed dementia. He lives with his younger partner, who cares for him along with Mrs. Weber's support. Mrs. Weber has no siblings.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Herr Reinhart
Mr. Reinhart is 59 years old at the time of the interview. He is Mrs. Reinhart's son and is mainly responsible for the care of his mother who suffers from dementia. Mr. Reinhart lives with his partner in northwestern Switzerland. He works part-time. Mr. Reinhart has no children. Mr. Reinhart's partner has specific knowledge about mental impairments due to her job. During the interview with Mr. Reinhart, his partner and his mother are also present. Mr. Reinhart and his partner are in deep discussions around the option of bringing Ms. Reinhart into their household if the current living arrangement with his mother's partner no longer works.
Participant
Herr Reinhart
Mr. Reinhart is 59 years old at the time of the interview. He is Mrs. Reinhart's son and is mainly responsible for the care of his mother who suffers from dementia. Mr. Reinhart lives with his partner in northwestern Switzerland. He works part-time. Mr. Reinhart has no children. Mr. Reinhart's partner has specific knowledge about mental impairments due to her job. During the interview with Mr. Reinhart, his partner and his mother are also present. Mr. Reinhart and his partner are in deep discussions around the option of bringing Ms. Reinhart into their household if the current living arrangement with his mother's partner no longer works.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Frau Bodmer
Ms. Bodmer is 28 years old at the time of the interview, has two siblings, and lives in the northern part of Switzerland. Ms. Bodmer is currently working in education. Her 88-year-old grandmother, who is physically healthy, developed dementia six years ago. Her grandmother does not have a specific dementia diagnosis. Ms. Bodmer's grandmother lives alone at home in a small village. Ms. Bodmer's father, who lives in the immediate vicinity, cares for his mother daily. There is a wider support network of family members, friends, and neighbors who are in daily contact with Ms. Bodmer’s grandmother as well. The grandchildren help around the house, and Ms. Bodmer visits her grandmother on weekends to do things with her. Outside help from the outpatient nursing service has been considered by the family, but Ms. Bodmer’s grandmother is emotionally sensitive to the suggestion of bringing in external support.
Participant
Frau Köhler-Münch
Mrs. Köhler-Münch is 47 years old at the time of the interview. She lives in the north-eastern part of Switzerland. Mrs. Köhler-Münch lives in a partnership. She is employed full-time and has no children. Mrs. Köhler's mother, who was diagnosed with Alzheimer's dementia 13 years ago, lives in a nursing home in Germany. Mrs. Köhler's parents lived together, but when her father died of cancer, the home care arrangement broke down. Her mother transferred to a nursing home. There were several changes of nursing home because the quality of care was not right, Mrs. Köhler's mother left the home, or behaved aggressively. Mrs. Köhler has two siblings, a brother and a sister, who live in Germany and are both involved in their mother's care. Her brother is the primary guardian and main person in charge. Mrs.. Köhler herself travels to Germany to visit her mother every weekend. The family is affected by dementia in multiple cases; her aunt and uncle also suffer from dementia. At the time of the interview, Mrs. Köhler was planning to move to the USA.
Participant
Frau Engel
Mrs. Engel, 71 years old at the time of the interview, is married and lives with her husband, who is 84 years old, in the northwestern part of Switzerland. At the time of the interview, Mrs. Engel is in the process of selling their house in order to move with her husband, who suffers from dementia to an accessible apartment within the locality where they live. Mrs. Engel is currently caring for her husband herself. Her daughter, who is her father's guardian and lives nearby, helps. Mrs. Engel has no plans for further assistance, as she is managing to handle the situation. Her husband's health is good, she says, and it is not stressful for care for him. Her generally positive disposition and the information she has received about the disease help her to deal with her husband. Mrs. Engel is experienced with the disease; her mother, whom she cared for part of the time, also had dementia. However, Mrs. Engel perceives differences between the course of the disease in her husband and its progression in her mother. Mrs. Engel was employed.
Participant
Frau Ullmann und Herr Thoma
The interview was held with both Mr. Thoma, whose father was diagnosed with dementia four years ago, and Mrs. Ullmann, who is a close friend of Mr. Thoma’s father. Both Mr. Thoma and Mrs. Ullmann live in the same area in the northern part of Switzerland. Mr. Thoma is 25 years old, and Mrs. Ullmann is 56 years old. Today, Mr. Thoma’s father is 55 years old. Until two years ago, Mr. Thoma’s father lived alone at home; today he lives in a nursing home. Mrs. Ullmann helps with care by communicating with the care institutions and advocating for Mr. Thoma's father's interests. Mr. Thoma focuses on the new relationship he has been able to build with his father because of his father's dementia. Mr. Thoma feels he is forevermore his father’s confidant and support. Both Mr. Thoma and Mrs. Ullmann live in the same place in the northern part of Switzerland.
Participant
Frau Weber
Mrs. Weber is 58 years old at the time of the interview. She lives with her family, her husband, and two children, in Northwestern Switzerland. She works part-time. The interview took place one year after the death of Mrs. Weber's mother, who began to show signs of dementia at the age of 65. She did not have a specific dementia diagnosis. Her mother initially lived in a flat in an urban setting for six years before transferring to a nursing home, where she died at 77. Mrs. Weber's father, who is significantly older than her mother, also developed dementia. He lives with his younger partner, who cares for him along with Mrs. Weber's support. Mrs. Weber has no siblings.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Herr Jenny und Herr Jenny
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Participant
Herr Wolfensberger
Mr. Wolfensberger is 74 years old at the time of the interview; his wife is 81. The couple lives in the southwestern part of Switzerland. Mrs. Wolfensberger was diagnosed with Alzheimer's dementia 11 years ago. Seven years ago, she suffered a stroke. Although she partially recovered, her vision, motor skills, and spatial orientation have been severely limited ever since. Mrs. Wolfensberger requires 24-hour nursing care, which places a heavy burden on Mr. Wolfensberger. For the past four years, his wife has been cared for in the mornings by Spitex. The respite service comes three times a week, and she attends a day structure once a week. This care arrangement allows Mr. Wolfensberger to pursue his work. The couple were employed in academia. Mr. Wolfensberger has dementia-specific expertise.
Participant
Herr Eberle und Frau Mathis
Mr. Eberle is 82 years old at the time of the interview, his partner, Mrs. Mathis, is 80 years old. Mrs. Mathis is present during the interview and contributes. The couple lives in central Switzerland. Mrs. Mathis was diagnosed with Alzheimer's dementia when she was 74 years old. After the diagnosis, the couple decided to move into a retirement flat attached to a nursing home. Mrs. Mathis is involved in an occupational program there. Mrs. Mathis has three children, a son and two daughters. The two daughters help with the care, especially the eldest daughter, who works in social services. This daughter is an important contact person for Mr. Eberle. Mr. Eberle attends the relative’s group, which he finds very supportive.
Participant
Frau Morel
At the time of the interview, Mrs. Morel is 71 years old and lives in French-speaking Switzerland with her daughter and her daughter's two children. Mrs. Morel is widowed. Five years ago, when she was 66 years old, she was diagnosed with Alzheimer's dementia. In addition to daily care from one of her daughters, she attends a structured day program. The fact that she is not alone but in the community with her daughter and grandchildren is a great comfort. She describes herself as a person with the will to persevere, and her faith helps.
Participant
Herr Jenny und Herr Jenny
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Participant
Frau Martin-Perret
Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.
Participant
Herr Wolfensberger
Mr. Wolfensberger is 74 years old at the time of the interview; his wife is 81. The couple lives in the southwestern part of Switzerland. Mrs. Wolfensberger was diagnosed with Alzheimer's dementia 11 years ago. Seven years ago, she suffered a stroke. Although she partially recovered, her vision, motor skills, and spatial orientation have been severely limited ever since. Mrs. Wolfensberger requires 24-hour nursing care, which places a heavy burden on Mr. Wolfensberger. For the past four years, his wife has been cared for in the mornings by Spitex. The respite service comes three times a week, and she attends a day structure once a week. This care arrangement allows Mr. Wolfensberger to pursue his work. The couple were employed in academia. Mr. Wolfensberger has dementia-specific expertise.
Participant
Frau Bordoni
Mrs. Bordoni is the wife of Mr Bordoni. Mrs. Bordoni is 62 years old at the time of the interview. She comes from central Switzerland. She supports her husband, who has Alzheimer's dementia. Mrs.. Bordoni is employed part-time. Mrs.. Bordoni considers it very important to get information and counselling about the disease.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Herr Jenny und Herr Jenny
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Participant
Frau Martin-Perret
Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.
Participant
Frau Richaud
Mrs. Richaud, like her friend Mrs. Lefebre, is 67 years old at the time of the interview. Mrs. Richaud is married and lives in the southern part of Switzerland. Mrs. Richaud is involved in the care of her grandchildren. In addition, she supports her friend, Mrs. Lefebre. She is there for her every day, accompanies her to appointments, and organizes the care arrangement. She has also taken over guardianship for Mrs. Lefebre together with her husband. Helping this other person is important to Mrs. Richaud. At the same time, she sees dementia care as a job that is demanding. She considers remuneration to be appropriate.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Frau Engel
Mrs. Engel, 71 years old at the time of the interview, is married and lives with her husband, who is 84 years old, in the northwestern part of Switzerland. At the time of the interview, Mrs. Engel is in the process of selling their house in order to move with her husband, who suffers from dementia to an accessible apartment within the locality where they live. Mrs. Engel is currently caring for her husband herself. Her daughter, who is her father's guardian and lives nearby, helps. Mrs. Engel has no plans for further assistance, as she is managing to handle the situation. Her husband's health is good, she says, and it is not stressful for care for him. Her generally positive disposition and the information she has received about the disease help her to deal with her husband. Mrs. Engel is experienced with the disease; her mother, whom she cared for part of the time, also had dementia. However, Mrs. Engel perceives differences between the course of the disease in her husband and its progression in her mother. Mrs. Engel was employed.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Herr Ott
Mr. Ott, 54 years old at the time of the interview, cared for his mother, who suffered from dementia, for six years. She passed away the year before the interview. His mother was diagnosed with Alzheimer's dementia. Mr. Ott lives and works in the northeastern part of Switzerland; his mother lived in central Switzerland. Thanks to the fact that he is self-employed, Mr. Ott was able to arrange his schedule flexibly during the week and to interrupt his work at short notice when his mother needed help. On weekends, he was regularly with her to manage household chores and keep her company. After a fall at home, his mother was transferred to a nursing home, where she died a few months later. Mr. Ott has a brother who also lives in central Switzerland and took over administrative matters for his mother. Mr. Ott did not experience his mother's dementia as a major disruption in their relationship to one another, as he had always played the role of his mother's close caregiver and had cared for her since his father's death 20 years ago. In addition to the support, she received from her sons, Mr. Ott’s mother got help from the outpatient nursing and visiting service as well as from those in the neighborhood.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Frau Bordoni
Mrs. Bordoni is the wife of Mr Bordoni. Mrs. Bordoni is 62 years old at the time of the interview. She comes from central Switzerland. She supports her husband, who has Alzheimer's dementia. Mrs.. Bordoni is employed part-time. Mrs.. Bordoni considers it very important to get information and counselling about the disease.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Frau Engel
Mrs. Engel, 71 years old at the time of the interview, is married and lives with her husband, who is 84 years old, in the northwestern part of Switzerland. At the time of the interview, Mrs. Engel is in the process of selling their house in order to move with her husband, who suffers from dementia to an accessible apartment within the locality where they live. Mrs. Engel is currently caring for her husband herself. Her daughter, who is her father's guardian and lives nearby, helps. Mrs. Engel has no plans for further assistance, as she is managing to handle the situation. Her husband's health is good, she says, and it is not stressful for care for him. Her generally positive disposition and the information she has received about the disease help her to deal with her husband. Mrs. Engel is experienced with the disease; her mother, whom she cared for part of the time, also had dementia. However, Mrs. Engel perceives differences between the course of the disease in her husband and its progression in her mother. Mrs. Engel was employed.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Herr Ott
Mr. Ott, 54 years old at the time of the interview, cared for his mother, who suffered from dementia, for six years. She passed away the year before the interview. His mother was diagnosed with Alzheimer's dementia. Mr. Ott lives and works in the northeastern part of Switzerland; his mother lived in central Switzerland. Thanks to the fact that he is self-employed, Mr. Ott was able to arrange his schedule flexibly during the week and to interrupt his work at short notice when his mother needed help. On weekends, he was regularly with her to manage household chores and keep her company. After a fall at home, his mother was transferred to a nursing home, where she died a few months later. Mr. Ott has a brother who also lives in central Switzerland and took over administrative matters for his mother. Mr. Ott did not experience his mother's dementia as a major disruption in their relationship to one another, as he had always played the role of his mother's close caregiver and had cared for her since his father's death 20 years ago. In addition to the support, she received from her sons, Mr. Ott’s mother got help from the outpatient nursing and visiting service as well as from those in the neighborhood.
Participant
Herr Reinhart
Mr. Reinhart is 59 years old at the time of the interview. He is Mrs. Reinhart's son and is mainly responsible for the care of his mother who suffers from dementia. Mr. Reinhart lives with his partner in northwestern Switzerland. He works part-time. Mr. Reinhart has no children. Mr. Reinhart's partner has specific knowledge about mental impairments due to her job. During the interview with Mr. Reinhart, his partner and his mother are also present. Mr. Reinhart and his partner are in deep discussions around the option of bringing Ms. Reinhart into their household if the current living arrangement with his mother's partner no longer works.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Frau Engel
Mrs. Engel, 71 years old at the time of the interview, is married and lives with her husband, who is 84 years old, in the northwestern part of Switzerland. At the time of the interview, Mrs. Engel is in the process of selling their house in order to move with her husband, who suffers from dementia to an accessible apartment within the locality where they live. Mrs. Engel is currently caring for her husband herself. Her daughter, who is her father's guardian and lives nearby, helps. Mrs. Engel has no plans for further assistance, as she is managing to handle the situation. Her husband's health is good, she says, and it is not stressful for care for him. Her generally positive disposition and the information she has received about the disease help her to deal with her husband. Mrs. Engel is experienced with the disease; her mother, whom she cared for part of the time, also had dementia. However, Mrs. Engel perceives differences between the course of the disease in her husband and its progression in her mother. Mrs. Engel was employed.
Participant
Herr Jenny und Herr Jenny
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Participant
Frau Hürsch-Dietrich, Herr Hürsch und Frau Colombo-Hürsch
Mrs. Hürsch-Dietrich is 81 years old at the time of the interview and lives in the northwestern part of Switzerland. Her husband, seven years older than she is, recently moved into a nursing home. He was diagnosed with dementia ten years ago, however, Mrs. Hürsch believes that the first signs of the disease appeared ten years before the diagnosis. Mrs. Hürsch cares for her husband with the help of their four children. Two of the children, Mr. Hürsch (age 51) and Mrs. Colombo-Hürsch (age 52), participated in the interview. Despite having constant care, a period of increased aggressivity a few years ago added additional stress on Mrs. Hürsch. Sending her husband to the day program two to three times a week as well as taking a vacation bed for a few days was essential to provide more complete breaks from care. Transferring her husband to a nursing home was an emotionally difficult step for Mrs. Hürsch.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Herr Bordoni
Mr. Bordoni is 73 years old at the time of the interview and lives in a remote region in Italian-speaking Switzerland with his wife of 10 years, Mrs. Bordoni, who was also interviewed. Mr. Bordoni was diagnosed with Alzheimer's dementia when he was 70 years old. He describes the fact that the diagnosis came after his retirement as a stroke of luck. He said he was spared dismissal due to the impairments caused by the disease. Mr Bordoni worked as a precision mechanic. Mr Bordoni is supported by his wife and regularly receives psychological counselling.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Frau Martin-Perret
Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.
Participant
Frau Morel
At the time of the interview, Mrs. Morel is 71 years old and lives in French-speaking Switzerland with her daughter and her daughter's two children. Mrs. Morel is widowed. Five years ago, when she was 66 years old, she was diagnosed with Alzheimer's dementia. In addition to daily care from one of her daughters, she attends a structured day program. The fact that she is not alone but in the community with her daughter and grandchildren is a great comfort. She describes herself as a person with the will to persevere, and her faith helps.
Participant
Frau Hürsch-Dietrich, Herr Hürsch und Frau Colombo-Hürsch
Mrs. Hürsch-Dietrich is 81 years old at the time of the interview and lives in the northwestern part of Switzerland. Her husband, seven years older than she is, recently moved into a nursing home. He was diagnosed with dementia ten years ago, however, Mrs. Hürsch believes that the first signs of the disease appeared ten years before the diagnosis. Mrs. Hürsch cares for her husband with the help of their four children. Two of the children, Mr. Hürsch (age 51) and Mrs. Colombo-Hürsch (age 52), participated in the interview. Despite having constant care, a period of increased aggressivity a few years ago added additional stress on Mrs. Hürsch. Sending her husband to the day program two to three times a week as well as taking a vacation bed for a few days was essential to provide more complete breaks from care. Transferring her husband to a nursing home was an emotionally difficult step for Mrs. Hürsch.
Participant
Frau Köhler-Münch
Mrs. Köhler-Münch is 47 years old at the time of the interview. She lives in the north-eastern part of Switzerland. Mrs. Köhler-Münch lives in a partnership. She is employed full-time and has no children. Mrs. Köhler's mother, who was diagnosed with Alzheimer's dementia 13 years ago, lives in a nursing home in Germany. Mrs. Köhler's parents lived together, but when her father died of cancer, the home care arrangement broke down. Her mother transferred to a nursing home. There were several changes of nursing home because the quality of care was not right, Mrs. Köhler's mother left the home, or behaved aggressively. Mrs. Köhler has two siblings, a brother and a sister, who live in Germany and are both involved in their mother's care. Her brother is the primary guardian and main person in charge. Mrs.. Köhler herself travels to Germany to visit her mother every weekend. The family is affected by dementia in multiple cases; her aunt and uncle also suffer from dementia. At the time of the interview, Mrs. Köhler was planning to move to the USA.
Participant
Herr Reinhart
Mr. Reinhart is 59 years old at the time of the interview. He is Mrs. Reinhart's son and is mainly responsible for the care of his mother who suffers from dementia. Mr. Reinhart lives with his partner in northwestern Switzerland. He works part-time. Mr. Reinhart has no children. Mr. Reinhart's partner has specific knowledge about mental impairments due to her job. During the interview with Mr. Reinhart, his partner and his mother are also present. Mr. Reinhart and his partner are in deep discussions around the option of bringing Ms. Reinhart into their household if the current living arrangement with his mother's partner no longer works.
Participant
Frau Ullmann und Herr Thoma
The interview was held with both Mr. Thoma, whose father was diagnosed with dementia four years ago, and Mrs. Ullmann, who is a close friend of Mr. Thoma’s father. Both Mr. Thoma and Mrs. Ullmann live in the same area in the northern part of Switzerland. Mr. Thoma is 25 years old, and Mrs. Ullmann is 56 years old. Today, Mr. Thoma’s father is 55 years old. Until two years ago, Mr. Thoma’s father lived alone at home; today he lives in a nursing home. Mrs. Ullmann helps with care by communicating with the care institutions and advocating for Mr. Thoma's father's interests. Mr. Thoma focuses on the new relationship he has been able to build with his father because of his father's dementia. Mr. Thoma feels he is forevermore his father’s confidant and support. Both Mr. Thoma and Mrs. Ullmann live in the same place in the northern part of Switzerland.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Frau Dubois
Mrs. Dubois lives in the western region of Switzerland. She is 78 years old at the time of the interview. Her husband, 77, who lives in a nursing home, was diagnosed with Alzheimer's disease and vascular dementia four years ago. Her husband's aggressiveness and incontinence made home care impossible. Before deciding to transfer to a nursing home, Mrs. Dubois increased the amount of time her husband spent at a day program, which he had attended once a week, to ease the burden. In between, he spent several weeks in a home, where he behaved just as aggressively. Mrs. Dubois receives support from her sisters and from the nursing staff in the home. With the dementia, her marital happiness collapsed. Mrs. Dubois had worked as a doctor, running a joint practice with her husband. The imminent sale of their house feels like a great loss.
Participant
Frau Richaud
Mrs. Richaud, like her friend Mrs. Lefebre, is 67 years old at the time of the interview. Mrs. Richaud is married and lives in the southern part of Switzerland. Mrs. Richaud is involved in the care of her grandchildren. In addition, she supports her friend, Mrs. Lefebre. She is there for her every day, accompanies her to appointments, and organizes the care arrangement. She has also taken over guardianship for Mrs. Lefebre together with her husband. Helping this other person is important to Mrs. Richaud. At the same time, she sees dementia care as a job that is demanding. She considers remuneration to be appropriate.
Participant
Frau Köhler-Münch
Mrs. Köhler-Münch is 47 years old at the time of the interview. She lives in the north-eastern part of Switzerland. Mrs. Köhler-Münch lives in a partnership. She is employed full-time and has no children. Mrs. Köhler's mother, who was diagnosed with Alzheimer's dementia 13 years ago, lives in a nursing home in Germany. Mrs. Köhler's parents lived together, but when her father died of cancer, the home care arrangement broke down. Her mother transferred to a nursing home. There were several changes of nursing home because the quality of care was not right, Mrs. Köhler's mother left the home, or behaved aggressively. Mrs. Köhler has two siblings, a brother and a sister, who live in Germany and are both involved in their mother's care. Her brother is the primary guardian and main person in charge. Mrs.. Köhler herself travels to Germany to visit her mother every weekend. The family is affected by dementia in multiple cases; her aunt and uncle also suffer from dementia. At the time of the interview, Mrs. Köhler was planning to move to the USA.
Participant
Herr Jenny und Herr Jenny
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Participant
Frau Dubois
Mrs. Dubois lives in the western region of Switzerland. She is 78 years old at the time of the interview. Her husband, 77, who lives in a nursing home, was diagnosed with Alzheimer's disease and vascular dementia four years ago. Her husband's aggressiveness and incontinence made home care impossible. Before deciding to transfer to a nursing home, Mrs. Dubois increased the amount of time her husband spent at a day program, which he had attended once a week, to ease the burden. In between, he spent several weeks in a home, where he behaved just as aggressively. Mrs. Dubois receives support from her sisters and from the nursing staff in the home. With the dementia, her marital happiness collapsed. Mrs. Dubois had worked as a doctor, running a joint practice with her husband. The imminent sale of their house feels like a great loss.
Participant
Frau Richaud
Mrs. Richaud, like her friend Mrs. Lefebre, is 67 years old at the time of the interview. Mrs. Richaud is married and lives in the southern part of Switzerland. Mrs. Richaud is involved in the care of her grandchildren. In addition, she supports her friend, Mrs. Lefebre. She is there for her every day, accompanies her to appointments, and organizes the care arrangement. She has also taken over guardianship for Mrs. Lefebre together with her husband. Helping this other person is important to Mrs. Richaud. At the same time, she sees dementia care as a job that is demanding. She considers remuneration to be appropriate.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Frau Ullmann und Herr Thoma
The interview was held with both Mr. Thoma, whose father was diagnosed with dementia four years ago, and Mrs. Ullmann, who is a close friend of Mr. Thoma’s father. Both Mr. Thoma and Mrs. Ullmann live in the same area in the northern part of Switzerland. Mr. Thoma is 25 years old, and Mrs. Ullmann is 56 years old. Today, Mr. Thoma’s father is 55 years old. Until two years ago, Mr. Thoma’s father lived alone at home; today he lives in a nursing home. Mrs. Ullmann helps with care by communicating with the care institutions and advocating for Mr. Thoma's father's interests. Mr. Thoma focuses on the new relationship he has been able to build with his father because of his father's dementia. Mr. Thoma feels he is forevermore his father’s confidant and support. Both Mr. Thoma and Mrs. Ullmann live in the same place in the northern part of Switzerland.
Participant
Herr Jenny und Herr Jenny
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Participant
Frau Dubois
Mrs. Dubois lives in the western region of Switzerland. She is 78 years old at the time of the interview. Her husband, 77, who lives in a nursing home, was diagnosed with Alzheimer's disease and vascular dementia four years ago. Her husband's aggressiveness and incontinence made home care impossible. Before deciding to transfer to a nursing home, Mrs. Dubois increased the amount of time her husband spent at a day program, which he had attended once a week, to ease the burden. In between, he spent several weeks in a home, where he behaved just as aggressively. Mrs. Dubois receives support from her sisters and from the nursing staff in the home. With the dementia, her marital happiness collapsed. Mrs. Dubois had worked as a doctor, running a joint practice with her husband. The imminent sale of their house feels like a great loss.
Participant
Herr Sonderegger
Mr Sonderegger is 83 at the time of the interview and his wife is 80. The couple has children and lives in the German-speaking region of Switzerland. Mr Sonderegger's wife was diagnosed with Alzheimer's dementia when she was about 76 years old. However, he suspects that the dementia started some years earlier. Mr Sonderegger is supported by his son in caregiving. Mrs. Sonderegger was initially cared for in a nursing home. After the aggression subsided, Mr Sonderegger decided to care for his wife at home again to improve her quality of life. During the week, he is supported by privately engaged caregivers. The fact that the couple lives in a house with a garden helps a lot. Mr Sonderegger is confronted with other illnesses in the family. His brother is also suffering from dementia. He has taken over the guardianship for his sister-in-law, who is in need of care.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Frau Ullmann und Herr Thoma
The interview was held with both Mr. Thoma, whose father was diagnosed with dementia four years ago, and Mrs. Ullmann, who is a close friend of Mr. Thoma’s father. Both Mr. Thoma and Mrs. Ullmann live in the same area in the northern part of Switzerland. Mr. Thoma is 25 years old, and Mrs. Ullmann is 56 years old. Today, Mr. Thoma’s father is 55 years old. Until two years ago, Mr. Thoma’s father lived alone at home; today he lives in a nursing home. Mrs. Ullmann helps with care by communicating with the care institutions and advocating for Mr. Thoma's father's interests. Mr. Thoma focuses on the new relationship he has been able to build with his father because of his father's dementia. Mr. Thoma feels he is forevermore his father’s confidant and support. Both Mr. Thoma and Mrs. Ullmann live in the same place in the northern part of Switzerland.
Participant
Frau Bodmer
Ms. Bodmer is 28 years old at the time of the interview, has two siblings, and lives in the northern part of Switzerland. Ms. Bodmer is currently working in education. Her 88-year-old grandmother, who is physically healthy, developed dementia six years ago. Her grandmother does not have a specific dementia diagnosis. Ms. Bodmer's grandmother lives alone at home in a small village. Ms. Bodmer's father, who lives in the immediate vicinity, cares for his mother daily. There is a wider support network of family members, friends, and neighbors who are in daily contact with Ms. Bodmer’s grandmother as well. The grandchildren help around the house, and Ms. Bodmer visits her grandmother on weekends to do things with her. Outside help from the outpatient nursing service has been considered by the family, but Ms. Bodmer’s grandmother is emotionally sensitive to the suggestion of bringing in external support.
Participant
Frau Bordoni
Mrs. Bordoni is the wife of Mr Bordoni. Mrs. Bordoni is 62 years old at the time of the interview. She comes from central Switzerland. She supports her husband, who has Alzheimer's dementia. Mrs.. Bordoni is employed part-time. Mrs.. Bordoni considers it very important to get information and counselling about the disease.
Participant
Frau Weber
Mrs. Weber is 58 years old at the time of the interview. She lives with her family, her husband, and two children, in Northwestern Switzerland. She works part-time. The interview took place one year after the death of Mrs. Weber's mother, who began to show signs of dementia at the age of 65. She did not have a specific dementia diagnosis. Her mother initially lived in a flat in an urban setting for six years before transferring to a nursing home, where she died at 77. Mrs. Weber's father, who is significantly older than her mother, also developed dementia. He lives with his younger partner, who cares for him along with Mrs. Weber's support. Mrs. Weber has no siblings.
Participant
Herr Jenny und Herr Jenny
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Herr Bordoni
Mr. Bordoni is 73 years old at the time of the interview and lives in a remote region in Italian-speaking Switzerland with his wife of 10 years, Mrs. Bordoni, who was also interviewed. Mr. Bordoni was diagnosed with Alzheimer's dementia when he was 70 years old. He describes the fact that the diagnosis came after his retirement as a stroke of luck. He said he was spared dismissal due to the impairments caused by the disease. Mr Bordoni worked as a precision mechanic. Mr Bordoni is supported by his wife and regularly receives psychological counselling.
Participant
Frau Bodmer
Ms. Bodmer is 28 years old at the time of the interview, has two siblings, and lives in the northern part of Switzerland. Ms. Bodmer is currently working in education. Her 88-year-old grandmother, who is physically healthy, developed dementia six years ago. Her grandmother does not have a specific dementia diagnosis. Ms. Bodmer's grandmother lives alone at home in a small village. Ms. Bodmer's father, who lives in the immediate vicinity, cares for his mother daily. There is a wider support network of family members, friends, and neighbors who are in daily contact with Ms. Bodmer’s grandmother as well. The grandchildren help around the house, and Ms. Bodmer visits her grandmother on weekends to do things with her. Outside help from the outpatient nursing service has been considered by the family, but Ms. Bodmer’s grandmother is emotionally sensitive to the suggestion of bringing in external support.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Herr Esposito
Mr. Esposito is 79 years old at the time of the interview. He was diagnosed with Alzheimer's dementia a few years earlier. He lives in Italian-speaking Switzerland and is cared for at home by a caregiver who is with him around the clock. His caregiver is present during the interview. Mr. Esposito is divorced. He has two children who support him. The disease puts a lot of stress on Mr. Esposito, which is why he has considered ending his life.
Participant
Herr Cohen
At the time of the interview, Mr Cohen is 62 years old and lives at home with his wife in French-speaking Switzerland. When he was 57 years old, he was diagnosed with Alzheimer's dementia. The diagnosis led to the end of his working life as a service technician. His wife as well as his daughter are there for him. He still lives largely independently. The psychiatric Spitex (outpatient care service) accompanies him weekly. In addition, he takes part in a monthly patient self-help group. Through occupational therapy, he has discovered a creative side.
Participant
Frau Lefebre
Mrs. Lefebre is 67 years old at the time of the interview. She is single, has no children, and lives in the southern part of Switzerland. She has worked in the education sector. Mrs. Lefebre was diagnosed with Alzheimer's dementia when she was 65 years old. She lives at home, supported by her family members as well as by Mrs. Richaud and the outpatient care service. Mrs. Lefebre has also been attending a structured day program twice a week for a few months, and she experiences the community there as supportive. Her friends, with whom she is surrounded, are very important to her. She is looking for a good way of living with dementia.
Participant
Herr Eberle und Frau Mathis
Mr. Eberle is 82 years old at the time of the interview, his partner, Mrs. Mathis, is 80 years old. Mrs. Mathis is present during the interview and contributes. The couple lives in central Switzerland. Mrs. Mathis was diagnosed with Alzheimer's dementia when she was 74 years old. After the diagnosis, the couple decided to move into a retirement flat attached to a nursing home. Mrs. Mathis is involved in an occupational program there. Mrs. Mathis has three children, a son and two daughters. The two daughters help with the care, especially the eldest daughter, who works in social services. This daughter is an important contact person for Mr. Eberle. Mr. Eberle attends the relative’s group, which he finds very supportive.
Participant
Frau Richaud
Mrs. Richaud, like her friend Mrs. Lefebre, is 67 years old at the time of the interview. Mrs. Richaud is married and lives in the southern part of Switzerland. Mrs. Richaud is involved in the care of her grandchildren. In addition, she supports her friend, Mrs. Lefebre. She is there for her every day, accompanies her to appointments, and organizes the care arrangement. She has also taken over guardianship for Mrs. Lefebre together with her husband. Helping this other person is important to Mrs. Richaud. At the same time, she sees dementia care as a job that is demanding. She considers remuneration to be appropriate.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Frau Lefebre
Mrs. Lefebre is 67 years old at the time of the interview. She is single, has no children, and lives in the southern part of Switzerland. She has worked in the education sector. Mrs. Lefebre was diagnosed with Alzheimer's dementia when she was 65 years old. She lives at home, supported by her family members as well as by Mrs. Richaud and the outpatient care service. Mrs. Lefebre has also been attending a structured day program twice a week for a few months, and she experiences the community there as supportive. Her friends, with whom she is surrounded, are very important to her. She is looking for a good way of living with dementia.
Participant
Herr Eberle und Frau Mathis
Mr. Eberle is 82 years old at the time of the interview, his partner, Mrs. Mathis, is 80 years old. Mrs. Mathis is present during the interview and contributes. The couple lives in central Switzerland. Mrs. Mathis was diagnosed with Alzheimer's dementia when she was 74 years old. After the diagnosis, the couple decided to move into a retirement flat attached to a nursing home. Mrs. Mathis is involved in an occupational program there. Mrs. Mathis has three children, a son and two daughters. The two daughters help with the care, especially the eldest daughter, who works in social services. This daughter is an important contact person for Mr. Eberle. Mr. Eberle attends the relative’s group, which he finds very supportive.
Participant
Frau Lefebre
Mrs. Lefebre is 67 years old at the time of the interview. She is single, has no children, and lives in the southern part of Switzerland. She has worked in the education sector. Mrs. Lefebre was diagnosed with Alzheimer's dementia when she was 65 years old. She lives at home, supported by her family members as well as by Mrs. Richaud and the outpatient care service. Mrs. Lefebre has also been attending a structured day program twice a week for a few months, and she experiences the community there as supportive. Her friends, with whom she is surrounded, are very important to her. She is looking for a good way of living with dementia.
Participant
Herr Reinhart
Mr. Reinhart is 59 years old at the time of the interview. He is Mrs. Reinhart's son and is mainly responsible for the care of his mother who suffers from dementia. Mr. Reinhart lives with his partner in northwestern Switzerland. He works part-time. Mr. Reinhart has no children. Mr. Reinhart's partner has specific knowledge about mental impairments due to her job. During the interview with Mr. Reinhart, his partner and his mother are also present. Mr. Reinhart and his partner are in deep discussions around the option of bringing Ms. Reinhart into their household if the current living arrangement with his mother's partner no longer works.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Herr Sonderegger
Mr Sonderegger is 83 at the time of the interview and his wife is 80. The couple has children and lives in the German-speaking region of Switzerland. Mr Sonderegger's wife was diagnosed with Alzheimer's dementia when she was about 76 years old. However, he suspects that the dementia started some years earlier. Mr Sonderegger is supported by his son in caregiving. Mrs. Sonderegger was initially cared for in a nursing home. After the aggression subsided, Mr Sonderegger decided to care for his wife at home again to improve her quality of life. During the week, he is supported by privately engaged caregivers. The fact that the couple lives in a house with a garden helps a lot. Mr Sonderegger is confronted with other illnesses in the family. His brother is also suffering from dementia. He has taken over the guardianship for his sister-in-law, who is in need of care.
Participant
Herr Esposito
Mr. Esposito is 79 years old at the time of the interview. He was diagnosed with Alzheimer's dementia a few years earlier. He lives in Italian-speaking Switzerland and is cared for at home by a caregiver who is with him around the clock. His caregiver is present during the interview. Mr. Esposito is divorced. He has two children who support him. The disease puts a lot of stress on Mr. Esposito, which is why he has considered ending his life.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Herr Eberle und Frau Mathis
Mr. Eberle is 82 years old at the time of the interview, his partner, Mrs. Mathis, is 80 years old. Mrs. Mathis is present during the interview and contributes. The couple lives in central Switzerland. Mrs. Mathis was diagnosed with Alzheimer's dementia when she was 74 years old. After the diagnosis, the couple decided to move into a retirement flat attached to a nursing home. Mrs. Mathis is involved in an occupational program there. Mrs. Mathis has three children, a son and two daughters. The two daughters help with the care, especially the eldest daughter, who works in social services. This daughter is an important contact person for Mr. Eberle. Mr. Eberle attends the relative’s group, which he finds very supportive.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Herr Eberle und Frau Mathis
Mr. Eberle is 82 years old at the time of the interview, his partner, Mrs. Mathis, is 80 years old. Mrs. Mathis is present during the interview and contributes. The couple lives in central Switzerland. Mrs. Mathis was diagnosed with Alzheimer's dementia when she was 74 years old. After the diagnosis, the couple decided to move into a retirement flat attached to a nursing home. Mrs. Mathis is involved in an occupational program there. Mrs. Mathis has three children, a son and two daughters. The two daughters help with the care, especially the eldest daughter, who works in social services. This daughter is an important contact person for Mr. Eberle. Mr. Eberle attends the relative’s group, which he finds very supportive.
Participant
Herr Vuillemin
Mr Vuillemin is 70 years old at the time of the interview. He lives at home with his wife, to whom he has been married for 45 years. He has two children. The family lives in French-speaking Switzerland. When Mr Vuillemin was in his mid-50s, he suffered an ischaemic stroke, which left him unable to work. Over time, he began to forget things. At 65, he was diagnosed with mixed Alzheimer's and vascular dementia. He does not need external care assistance at the moment, nor does he attend any day programs. His wife is there for him. To this day, he still walks a lot in the mountains. However, he had to give up his club activities. He is still independent but needs the daily help of his wife because of his memory lapses and orientation difficulties.
Participant
Frau Lefebre
Mrs. Lefebre is 67 years old at the time of the interview. She is single, has no children, and lives in the southern part of Switzerland. She has worked in the education sector. Mrs. Lefebre was diagnosed with Alzheimer's dementia when she was 65 years old. She lives at home, supported by her family members as well as by Mrs. Richaud and the outpatient care service. Mrs. Lefebre has also been attending a structured day program twice a week for a few months, and she experiences the community there as supportive. Her friends, with whom she is surrounded, are very important to her. She is looking for a good way of living with dementia.
Participant
Herr Bordoni
Mr. Bordoni is 73 years old at the time of the interview and lives in a remote region in Italian-speaking Switzerland with his wife of 10 years, Mrs. Bordoni, who was also interviewed. Mr. Bordoni was diagnosed with Alzheimer's dementia when he was 70 years old. He describes the fact that the diagnosis came after his retirement as a stroke of luck. He said he was spared dismissal due to the impairments caused by the disease. Mr Bordoni worked as a precision mechanic. Mr Bordoni is supported by his wife and regularly receives psychological counselling.
Participant
Herr Esposito
Mr. Esposito is 79 years old at the time of the interview. He was diagnosed with Alzheimer's dementia a few years earlier. He lives in Italian-speaking Switzerland and is cared for at home by a caregiver who is with him around the clock. His caregiver is present during the interview. Mr. Esposito is divorced. He has two children who support him. The disease puts a lot of stress on Mr. Esposito, which is why he has considered ending his life.
Participant
Herr Jenny und Herr Jenny
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Participant
Frau Morel
At the time of the interview, Mrs. Morel is 71 years old and lives in French-speaking Switzerland with her daughter and her daughter's two children. Mrs. Morel is widowed. Five years ago, when she was 66 years old, she was diagnosed with Alzheimer's dementia. In addition to daily care from one of her daughters, she attends a structured day program. The fact that she is not alone but in the community with her daughter and grandchildren is a great comfort. She describes herself as a person with the will to persevere, and her faith helps.
Participant
Herr Jenny und Herr Jenny
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Participant
Herr Sonderegger
Mr Sonderegger is 83 at the time of the interview and his wife is 80. The couple has children and lives in the German-speaking region of Switzerland. Mr Sonderegger's wife was diagnosed with Alzheimer's dementia when she was about 76 years old. However, he suspects that the dementia started some years earlier. Mr Sonderegger is supported by his son in caregiving. Mrs. Sonderegger was initially cared for in a nursing home. After the aggression subsided, Mr Sonderegger decided to care for his wife at home again to improve her quality of life. During the week, he is supported by privately engaged caregivers. The fact that the couple lives in a house with a garden helps a lot. Mr Sonderegger is confronted with other illnesses in the family. His brother is also suffering from dementia. He has taken over the guardianship for his sister-in-law, who is in need of care.
Participant
Frau Lefebre
Mrs. Lefebre is 67 years old at the time of the interview. She is single, has no children, and lives in the southern part of Switzerland. She has worked in the education sector. Mrs. Lefebre was diagnosed with Alzheimer's dementia when she was 65 years old. She lives at home, supported by her family members as well as by Mrs. Richaud and the outpatient care service. Mrs. Lefebre has also been attending a structured day program twice a week for a few months, and she experiences the community there as supportive. Her friends, with whom she is surrounded, are very important to her. She is looking for a good way of living with dementia.
Participant
Herr de Luca
Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Frau Morel
At the time of the interview, Mrs. Morel is 71 years old and lives in French-speaking Switzerland with her daughter and her daughter's two children. Mrs. Morel is widowed. Five years ago, when she was 66 years old, she was diagnosed with Alzheimer's dementia. In addition to daily care from one of her daughters, she attends a structured day program. The fact that she is not alone but in the community with her daughter and grandchildren is a great comfort. She describes herself as a person with the will to persevere, and her faith helps.
Participant
Frau Lefebre
Mrs. Lefebre is 67 years old at the time of the interview. She is single, has no children, and lives in the southern part of Switzerland. She has worked in the education sector. Mrs. Lefebre was diagnosed with Alzheimer's dementia when she was 65 years old. She lives at home, supported by her family members as well as by Mrs. Richaud and the outpatient care service. Mrs. Lefebre has also been attending a structured day program twice a week for a few months, and she experiences the community there as supportive. Her friends, with whom she is surrounded, are very important to her. She is looking for a good way of living with dementia.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Herr Wolfensberger
Mr. Wolfensberger is 74 years old at the time of the interview; his wife is 81. The couple lives in the southwestern part of Switzerland. Mrs. Wolfensberger was diagnosed with Alzheimer's dementia 11 years ago. Seven years ago, she suffered a stroke. Although she partially recovered, her vision, motor skills, and spatial orientation have been severely limited ever since. Mrs. Wolfensberger requires 24-hour nursing care, which places a heavy burden on Mr. Wolfensberger. For the past four years, his wife has been cared for in the mornings by Spitex. The respite service comes three times a week, and she attends a day structure once a week. This care arrangement allows Mr. Wolfensberger to pursue his work. The couple were employed in academia. Mr. Wolfensberger has dementia-specific expertise.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Participant
Frau Richaud
Mrs. Richaud, like her friend Mrs. Lefebre, is 67 years old at the time of the interview. Mrs. Richaud is married and lives in the southern part of Switzerland. Mrs. Richaud is involved in the care of her grandchildren. In addition, she supports her friend, Mrs. Lefebre. She is there for her every day, accompanies her to appointments, and organizes the care arrangement. She has also taken over guardianship for Mrs. Lefebre together with her husband. Helping this other person is important to Mrs. Richaud. At the same time, she sees dementia care as a job that is demanding. She considers remuneration to be appropriate.
Participant
Herr Eberle und Frau Mathis
Mr. Eberle is 82 years old at the time of the interview, his partner, Mrs. Mathis, is 80 years old. Mrs. Mathis is present during the interview and contributes. The couple lives in central Switzerland. Mrs. Mathis was diagnosed with Alzheimer's dementia when she was 74 years old. After the diagnosis, the couple decided to move into a retirement flat attached to a nursing home. Mrs. Mathis is involved in an occupational program there. Mrs. Mathis has three children, a son and two daughters. The two daughters help with the care, especially the eldest daughter, who works in social services. This daughter is an important contact person for Mr. Eberle. Mr. Eberle attends the relative’s group, which he finds very supportive.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Frau Bordoni
Mrs. Bordoni is the wife of Mr Bordoni. Mrs. Bordoni is 62 years old at the time of the interview. She comes from central Switzerland. She supports her husband, who has Alzheimer's dementia. Mrs.. Bordoni is employed part-time. Mrs.. Bordoni considers it very important to get information and counselling about the disease.
Participant
Herr Bordoni
Mr. Bordoni is 73 years old at the time of the interview and lives in a remote region in Italian-speaking Switzerland with his wife of 10 years, Mrs. Bordoni, who was also interviewed. Mr. Bordoni was diagnosed with Alzheimer's dementia when he was 70 years old. He describes the fact that the diagnosis came after his retirement as a stroke of luck. He said he was spared dismissal due to the impairments caused by the disease. Mr Bordoni worked as a precision mechanic. Mr Bordoni is supported by his wife and regularly receives psychological counselling.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Frau Hofer
Mrs. Hofer, 70 years old at the time of the interview, talks retrospectively about her experience as a family caregiver. The interview took place five years after the death of her husband, who suffered from mixed dementia (Alzheimer's, vascular dementia, frontotemporal dementia) and died at the age of 65. While caring for her husband, she was also employed fulltime. Mrs. Hofer has no children. She lives in the German-speaking region of Switzerland. The couple met shortly before her husband developed dementia. They married and her husband moved from Germany to live with Mrs. Hofer in Switzerland. The first symptoms appeared seven years before the diagnosis, when her husband was 60 years old. The intensive care period started one year after the diagnosis when her husband could no longer be alone during the day and Mrs. Hofer had to change the care arrangement several times because her husband left the day homes and behaved aggressively. Until his death, he was cared for partly at home and partly in a nursing home. The fact that Mrs. Hofer's employer showed understanding for the care situation and that she was able to change her working hours and location were very helpful.
Participant
Herr Jenny und Herr Jenny
The interview with the Jenny brothers takes place together. Mr Jenny, 66 years old, was diagnosed with Alzheimer's dementia shortly before his retirement. He worked in the food industry. He lives in eastern Switzerland, is single, and has no children. He is independent and lives at home with the support of the outpatient care service, which comes by daily. Once a week, Mr Jenny attends a day structure. His brother, who is two years younger and lives in another region, is his confidant. He tries to promote social contacts and activities for his ill brother and to structure the week. On weekends, the siblings occasionally do something together. As a caregiver, Mr Jenny experiences understanding and support from his wife. He can also draw on her expertise as she works in the health sector.
Participant
Frau Richaud
Mrs. Richaud, like her friend Mrs. Lefebre, is 67 years old at the time of the interview. Mrs. Richaud is married and lives in the southern part of Switzerland. Mrs. Richaud is involved in the care of her grandchildren. In addition, she supports her friend, Mrs. Lefebre. She is there for her every day, accompanies her to appointments, and organizes the care arrangement. She has also taken over guardianship for Mrs. Lefebre together with her husband. Helping this other person is important to Mrs. Richaud. At the same time, she sees dementia care as a job that is demanding. She considers remuneration to be appropriate.
Participant
Frau Zeller
Mrs. Zeller is 61 years old at the time of the interview. She is married and has children. She lives with her family in the German-speaking region of Switzerland. Mrs. Zeller works in the health care sector. She has been caring for her mother, who suffers from dementia, for about seven years. She is 87 years old and has been living in a nursing home for five years. Before that, her mother lived alone in a flat. Her mother was 75 years old when a dementia test was done. Mrs. Zeller is the oldest of three siblings and the main caregiver for her mother. Mrs. Zeller has been familiar with illness and care in the family since childhood, as her grandparents and an aunt also suffered from dementia. For her mother, who was a farmer, activity and mobility are very important.
Diagnosis
39 experiences
In this section, considerations from the time before, during, and after the diagnosis of dementia are addressed, mainly from the point of view of the narrators suffering from dementia. How does dementia become noticeable? How and when are the symptoms associated with the illness? What does the diagnosis mean for the lives of those affected and their relatives? How can those affected come to terms with the illness?
Frau Martin-Perret
Until a significant event, Mrs. Martin-Perret attributed the first signs of illness in her husband to his age.
Mrs. Martin-Perret attributed the first signs of illness in her husband, such as searching for words and confusion, to his age. Eventually, there was a significant event that she could not explain away with age.
Diagnosis
Dementia
Impairments, restrictions and impacts
24 experiences
Impairments, restrictions and impacts
Herr Bordoni
Mr. Bordoni is limited by his memory failures.
Mr. Bordoni experiences his memory lapses, which cannot be controlled, as limiting. It is sometimes incomprehensible to him what he forgets. Although he wants to, he does not succeed in remembering things again. He therefore sees his wife more affected by the circumstances than himself.
Impairments, restrictions and impacts
Dementia
Herr de Luca
Mr. de Luca is struggling to get organised.
Mr. de Luca feels less limited by forgetfulness than by his quickly tiring mind and slowed thinking. He has trouble organizing himself. He therefore does everything that requires attention in the morning, when he is rested.
Impairments, restrictions and impacts
Dementia
Herr Vuillemin
Mr. Vuillemin's absent-mindedness causes him trouble.
Mr. Vuillemin's absentmindedness causes him trouble. He finds it difficult to constantly look for things or structure a day. He has to concentrate on simple things. Likewise, orientation difficulties occur.
Impairments, restrictions and impacts
Dementia
Frau Lefebre
Mrs. Lefebre notices that she stutters more often when she speaks.
Mrs. Lefebre notices that she stutters more frequently when speaking. She also reports headaches that occur more quickly than before.
Impairments, restrictions and impacts
Dementia
Herr Esposito
Mr. Esposito's mobility is severely restricted.
Mr Esposito's mobility is severely restricted. The fact that he can no longer walk alone weighs heavily on him. He sees himself in stark contrast to his former self, when he was athletic and courageously mastered dangerous situations.
Impairments, restrictions and impacts
Dementia
Herr Cohen
Mr. Cohen has orientation problems.
The fact that he can no longer find his way around spatially affects Mr. Cohen very much. He has had to give up many of his activities, which he regrets.
Impairments, restrictions and impacts
Dementia
Herr Vuillemin
Mr. Vuillemin gives an example of his forgetfulness.
Mr. Vuillemin gives an example of his forgetfulness. He experiences it as humiliating that he cannot remember things.
Impairments, restrictions and impacts
Dementia
Herr Esposito
Mr. Esposito says his cognitive impairment isolates him socially.
Mr. Esposito says his cognitive impairment isolates him socially. When he receives a call or wants to call someone, his caregiver has to take over for him, which makes him aware of his dependency.
Impairments, restrictions and impacts
Dementia
Herr Cohen
Disorientation can be aggravated by external circumstances, such as when the aisles are rearranged at the grocery store, mentions Mr. Cohen.
Disorientation can be aggravated by external circumstances, such as when the aisles are rearranged at the grocery store. Mr. Cohen then can no longer find the products and then needs to get help.
Impairments, restrictions and impacts
Dementia
Herr Wolfensberger
Mr. Wolfensberger noticed spatial and visual perception disorders in his wife. She perceives obstacles on the path where there are none.
Mr. Wolfensberger noticed spatial and visual perception disorders in his wife. She perceives obstacles on the path where there are none.
Impairments, restrictions and impacts
Dementia
Herr Cohen
Mr. Cohen says, that Dementia has increased his insecurity and tension.
Mr. Cohen describes himself as an anxious person. Dementia has increased his insecurity and tension, for example when he meets other people.
Impairments, restrictions and impacts
Dementia
Herr de Luca
Mr. de Luca no longer acts spontaneously.
Mr. de Luca does not want to make any more big decisions. He wants to avoid change. He no longer acts spontaneously, but weighs up what is still possible.
Impairments, restrictions and impacts
Dementia
Herr Vuillemin
Mr. Vuillemin relates that when he can no longer assess a situation, he becomes unsettled.
Mr. Vuillemin uses an everyday example to describe how he becomes unsettled when he can no longer assess a situation. His wife then helps him to make decisions.
Impairments, restrictions and impacts
Dementia
Herr Vuillemin
Mr. Vuillemin often feels certain of his convictions, even when those around him claim the opposite.
Not being able to remember something is unsettling and frightening. Mr. Vuillemin, though, describes often feeling sure of his convictions, even while those around him claim the opposite.
Impairments, restrictions and impacts
Dementia
Herr de Luca
Mr. de Luca no longer tackles certain things that could overwhelm him.
Mr. de Luca, whose difficulty concentrating and rapid fatigue cause him problems, no longer tackles certain things that he knows will overtax him. He acts "preventively," as he says.
Impairments, restrictions and impacts
Dementia
Herr Cohen
Mr. Cohen has had to change his habits because he is no longer allowed to drive.
Mr. Cohen has had to change his habits because he is no longer allowed to drive. As a result, he has had to change his habits of action and is increasingly dependent on his wife.
Impairments, restrictions and impacts
Dementia
Herr Cohen
Mr. Cohen gave up sport.
Mr. Cohen used to be active in sports and traveled a lot with his wife. He planned weekends together. He had to give up his sports activities. Because he stays at home more, his wife also goes out less.
Impairments, restrictions and impacts
Dementia
Herr Cohen
Mr. Cohen decided to stay home when his family went on vacation so as not to be a burden to anyone. It was a good decision, he says.
After Mr. Cohen had to cut a vacation with his wife short, he decided to stay home on the family’s next vacation so he wouldn't be a burden to anyone. It was a good decision, he says. The additional support that was arranged during his wife's absence also worked well, he says.
Impairments, restrictions and impacts
Dementia
Herr de Luca
Mr. de Luca sees himself as a communicative and open person.
Mr. de Luca sees himself as a communicative and open person and assumes that even if he no longer recognizes people, he will be able to engage in conversation with them.
Impairments, restrictions and impacts
Dementia
Frau Lefebre
Dementia has turned her previous life upside down, says Mrs Lefebre.
Dementia has turned her previous life completely upside down, says Mrs. Lefebre. Her life and what she does in everyday life have changed a lot. She realizes that she stands in the world differently than before. Nevertheless, she tries to keep certain things constant.
Impairments, restrictions and impacts
Dementia
Herr Eberle und Frau Mathis
Mrs Mathis' self-image is assaulted.
Mrs. Mathis' self-image is under attack. At work, she would have had a lot of responsibility and received recognition. That time is over, she says.
Impairments, restrictions and impacts
Dementia
Herr Esposito
The disease has changed his whole identity, says Mr. Esposito.
The disease has changed his whole identity, says Mr. Esposito. He now sees himself as someone who is a burden to others.
Impairments, restrictions and impacts
Dementia
Herr Vuillemin
Mr. Vuillemin no longer sees himself as the capable, active person who made something of his life.
Mr. Vuillemin experiences a break in his life, in his self-perception. He no longer sees himself as the capable, active person who made something of his life.
Impairments, restrictions and impacts
Dementia
Herr Vuillemin
Mr. Vuillemin describes experiencing, on the one hand, a loss of self-identity, but, on the other hand, access to a deeper layer of his personality.
Mr. Vuillemin describes experiencing, on the one hand, a loss of self-identity, but, on the other hand, access to a deeper layer of his personality, which interests him more today than in the past. He writes for himself or reads books that he read a long time ago, which he feels does him good.
Impairments, restrictions and impacts
Dementia
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