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Frau Martin-Perret

Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.

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Her husband keeps the disease concealed; he does not want to talk about it. Mrs. Martin-Perret instructs others that they should not raise the topic of the disease with him or make it an issue.

Her husband keeps the disease concealed; he does not want to talk about it. Mrs. Martin-Perret instructs others that they should not raise the topic of the disease with him or make it an issue.

TRANSCRIPT

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Other experiences by Frau Martin-Perret

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Frau Martin-Perret

Mrs. Martin-Perret, 78 at the time of the interview, is married and lives in western Switzerland with her husband, who is 95. The couple has one son. Her husband, who is physically healthy, was diagnosed with Alzheimer's dementia two years ago. Mrs. Martin-Perret is coping with the caregiving situation; she feels sufficiently able to deal with her husband and attributes this confidence to her professional expertise and generally caring attitude. Mrs. Martin-Perret worked as a nurse practitioner in pediatrics. The fact that the couple gets along well also contributes to the successful caregiving relationship as do the quiet nights. Mrs. Martin-Perret is supported by a caregiver for two hours a week. Her son also helps, caring for his father in between moments. However, Mrs. Martin-Perret does not feel that she receives any support from other family members and friends.

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Frau Martin-Perret

On the recommendation of the neurologist who examined her husband, Mrs. Martin-Perret's husband takes a ginkgo preparation.

On the recommendation of the neurologist who examined her husband, Mrs. Martin-Perret's husband takes a ginkgo preparation.

Therapeutic approaches

Dementia

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Frau Martin-Perret

Until a significant event, Mrs. Martin-Perret attributed the first signs of illness in her husband to his age.

Mrs. Martin-Perret attributed the first signs of illness in her husband, such as searching for words and confusion, to his age. Eventually, there was a significant event that she could not explain away with age.

Diagnosis

Dementia

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Frau Martin-Perret

At night, her husband sleeps very well, which is a great relief for Mrs. Martin-Perret. Her husband also takes naps during the day, which she uses as rest time for herself.

At night, her husband sleeps very well, which is a great relief for Mrs. Martin-Perret. Her husband also takes naps during the day, which she uses as rest time for herself.

Processes of adaptation

Dementia

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Frau Martin-Perret

To engage and stimulate her husband, Mrs. Martin-Perret looks into the option of a game she saw recommended on TV.

To engage and stimulate her husband, Mrs. Martin-Perret looks into the option of a game she saw recommended on TV by bringing it up with her husband’s nurse.

What helps? - Caregivers' perspective

Dementia

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Frau Martin-Perret

Her husband keeps the disease concealed; he does not want to talk about it. Mrs. Martin-Perret instructs others that they should not raise the topic of the disease with him or make it an issue.

Her husband keeps the disease concealed; he does not want to talk about it. Mrs. Martin-Perret instructs others that they should not raise the topic of the disease with him or make it an issue.

Four levels of communication of the caregivers

Dementia

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Frau Martin-Perret

Mrs. Martin-Perret has found a strong position from which she feels she can live with her husband's dementia.

Mrs. Martin-Perret has found a strong position from which she feels she can live with her husband's dementia. She leaves behind the life of their past, accepts the disease, and adapts to the situation by pushing aside her own grief, educating herself about the disease, and following the recommendations of other caregivers.

What helps? - Caregivers' perspective

Dementia

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Frau Martin-Perret

Understanding and accepting the illness means not judging the behavior of the sick person as intentional, says Mrs. Martin-Perret.

Understanding and accepting the illness means not judging the behavior of the sick person as intentional, says Mrs. Martin-Perret.

What helps? - Caregivers' perspective

Dementia

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Frau Martin-Perret

Mrs. Martin-Perret notes that her husband does not want to confront his illness, which is why she is equally reserved about bringing it up.

Mrs. Martin-Perret notes that her husband does not want to confront his illness, which is why he avoids visits to the doctor. In order not to unsettle him, she reacts in a way that is reserved. His Alzheimer's diagnosis was not explicitly communicated to him by his family doctor.

Diagnosis

Dementia

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Frau Martin-Perret

It takes a certain attitude to be there for a person with dementia, says Mrs. Martin-Perret. You have to put yourself and your own life on hold.

It takes a certain attitude to be there for a person with dementia, says Mrs. Martin-Perret. You have to put yourself and your own life on hold.

What helps? - Caregivers' perspective

Dementia

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Frau Martin-Perret

The fact that her husband seems to be doing well confirms to Mrs. Martin-Perret that she understands him and that she has found a successful approach for dealing with him.

The fact that her husband seems to be doing well confirms to Mrs. Martin-Perret that she understands him and that she has found a successful approach for dealing with him. Mrs. Martin-Perret says that her husband is usually content.

Processes of adaptation

Dementia

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Frau Martin-Perret

Alzheimer's dementia has a whimsical side that leaves Mrs. Martin-Perret puzzled and confused.

Alzheimer's dementia has a whimsical side that leaves Mrs. Martin-Perret puzzled and confused. In the interview, she mentions examples of this all the time. She has a practice of writing down certain statements and behaviors of her husband that strike her.

What is dementia?

Dementia

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Frau Martin-Perret

Mrs. Martin-Perret says that she does not control her husband but lets him do what he wants. Even if he gets lost and no longer knows where he is, she lets him go.

Mrs. Martin-Perret says that she does not control her husband but lets him do what he wants. Even if he gets lost and no longer knows where he is, she lets him go.

Processes of adaptation

Dementia

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Frau Martin-Perret

Mrs. Martin-Perret trusts in her abilities. She knows her limits and is confident she would seek help if necessary.

Mrs. Martin-Perret trusts in her abilities. She knows her limits and is confident she would seek help if necessary.

What helps? - Caregivers' perspective

Dementia

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Frau Martin-Perret

Mrs. Martin-Perret does not want her husband to transfer to a nursing home. She feels relieved that this position is supported by an outside person.

Mrs. Martin-Perret does not want her husband to transfer to a nursing home. She compares her position with that of her informant. Mrs. Martin-Perret feels relieved that she is supported in her position by her informant.

At home or in a nursing home?

Dementia

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