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Herr de Luca

Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.

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Mr. de Luca sees himself as a communicative and open person.

Mr. de Luca sees himself as a communicative and open person and assumes that even if he no longer recognizes people, he will be able to engage in conversation with them.

TRANSCRIPT

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Other experiences by Herr de Luca

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Herr de Luca

Mr. de Luca is 66 years old at the time of the interview and lives at home with his wife in Italian-speaking Switzerland. The interview takes place with Mr. de Luca and his wife accompanies him during the interview. Mr. de Luca has been diagnosed with Alzheimer's dementia. He can still do many things, although fatigue affects his daily life. Mr. de Luca has worked in the health care sector: he worked as a nurse for many years in psychiatry, where he himself cared for people suffering from dementia. Mr. de Luca has grown-up children. His older son also works as a psychiatric nurse.

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Herr de Luca

Mr. de Luca is struggling to get organised.

Mr. de Luca feels less limited by forgetfulness than by his quickly tiring mind and slowed thinking. He has trouble organizing himself. He therefore does everything that requires attention in the morning, when he is rested.

Impairments, restrictions and impacts

Dementia

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Herr de Luca

Mr. de Luca no longer acts spontaneously.

Mr. de Luca does not want to make any more big decisions. He wants to avoid change. He no longer acts spontaneously, but weighs up what is still possible.

Impairments, restrictions and impacts

Dementia

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Herr de Luca

Mr. de Luca assumes that his memory loss will dissolve the couple relationship and his wife will be left alone.

The idea that he might disappoint his wife makes Mr. de Luca very sad. He assumes that his memory loss will dissolve the couple relationship and she will remain alone.

Processes of adaptation

Dementia

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Herr de Luca

Mr. de Luca talks about a total loss of orientation.

Mr. de Luca talks about a total loss of orientation that remained a brief and one-time event, but prompted him to see the doctor immediately.

Diagnosis

Dementia

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Herr de Luca

Mr. de Luca wants to stay in touch with friends.

The cell phone with its agenda function is an important tool in Mr. de Luca's everyday life. He also uses it to keep in touch with friends and acquaintances.

Learning to live with dementia

Dementia

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Herr de Luca

Activities free him from his fear of the future, says Mr. de Luca.

By occupying himself with activities, Mr. de Luca alleviates fears that set in when he thinks about the future.

Learning to live with dementia

Dementia

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Herr de Luca

Mr. de Luca no longer tackles certain things that could overwhelm him.

Mr. de Luca, whose difficulty concentrating and rapid fatigue cause him problems, no longer tackles certain things that he knows will overtax him. He acts "preventively," as he says.

Impairments, restrictions and impacts

Dementia

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Herr de Luca

Mr. de Luca talks openly about his illness with his children, but not with his mother and siblings.

Mr. de Luca speaks openly about his disease with his children, while he has not informed his elderly mother and siblings about the diagnosis.

What helps? - Patients' perspective

Dementia

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Herr de Luca

Mr. de Luca's children are concerned about his dementia. However, he does not want to make too much of his illness with them.

Mr. de Luca's children are concerned about his dementia. They want to know how their father is doing. However, Mr. de Luca does not want to make too much of his illness with them.

What helps? - Patients' perspective

Dementia

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Herr de Luca

Mr. de Luca does not have an advance directive. He prefers the informal way.

Mr. de Luca does not have an advance directive. He prefers the informal route and relies on his family for treatment decisions. The only important thing for him is that he does not have to suffer.

Advance care planning

Dementia

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Herr de Luca

Patients should be informed that there are still ways to continue life despite limitations, says Mr. de Luca.

Mr. de Luca thinks that health professionals should take the position that despite limitations, there are still ways to continue life. They should inform the patient accordingly.

Recommendations of the patients

Dementia

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Herr de Luca

Mr. de Luca sees himself as a communicative and open person.

Mr. de Luca sees himself as a communicative and open person and assumes that even if he no longer recognizes people, he will be able to engage in conversation with them.

Impairments, restrictions and impacts

Dementia

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Herr de Luca

Mr. de Luca talks about his fear of the future.

Mr. de Luca expresses fear of the future. He is afraid of not recognizing his wife and children anymore. Even though he can still do everything today, he knows that there is currently no treatment that can stop the progression of the disease.

Diagnosis

Dementia

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Herr de Luca

Mr. de Luca plans to attend a memory training group.

Mr. de Luca follows the recommendation of his psychologist and plans to attend a memory training group. He finds it important to be able to exchange ideas among those affected.

Learning to live with dementia

Dementia

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Herr de Luca

It is about focusing on resources and motivating oneself, says Mr. de Luca.

Mr. de Luca compares his impairment with those of the visually impaired, the deaf or people in wheelchairs who, like him, live a life with significant health impairment. It is a matter of focusing on resources and motivating oneself. Figuratively speaking, the wheelchair is not an obstacle, but an aid.

Learning to live with dementia

Dementia

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Herr de Luca

Mr. de Luca does not want to bring the heaviness into the present.

Mr. de Luca accepts the fate. But he does not want to bring the heaviness that comes into the present.

Learning to live with dementia

Dementia

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Herr de Luca

Mr. de Luca makes sure to maintain social contacts.

For Mr. de Luca, meeting friends means being in contact with others on the one hand and actively doing something for his own well-being on the other. He makes sure to maintain social contacts.

What helps? - Patients' perspective

Dementia

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Herr de Luca

Mr. de Luca is open to any drug therapy and hopes that medical treatment options for dementia will progress.

Mr. de Luca is not taking any psychotropic drugs, but currently only an anti-dementia drug. He is open to any drug therapy and hopes that medical treatment options for dementia will progress.

Therapeutic approaches

Dementia

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Herr de Luca

Mr. de Luca relies on his son and his son’s expertise to learn about new dementia medications.

Because his son is a psychiatric nurse, Mr. de Luca relies on his son and his son’s expertise to learn about new dementia medications.

Therapeutic approaches

Dementia

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