The interview was held with both Mr. Thoma, whose father was diagnosed with dementia four years ago, and Mrs. Ullmann, who is a close friend of Mr. Thoma’s father. Both Mr. Thoma and Mrs. Ullmann live in the same area in the northern part of Switzerland. Mr. Thoma is 25 years old, and Mrs. Ullmann is 56 years old. Today, Mr. Thoma’s father is 55 years old. Until two years ago, Mr. Thoma’s father lived alone at home; today he lives in a nursing home. Mrs. Ullmann helps with care by communicating with the care institutions and advocating for Mr. Thoma's father's interests. Mr. Thoma focuses on the new relationship he has been able to build with his father because of his father's dementia. Mr. Thoma feels he is forevermore his father’s confidant and support. Both Mr. Thoma and Mrs. Ullmann live in the same place in the northern part of Switzerland.
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Dementia care is a great deal of responsibility for the relatives, says Mrs. Ullmann. They are responsible for the other person's well-being and have to make constant and consequential decisions for him or her, she says.
TRANSCRIPT
Frau Engel
Mrs. Engel feels her role as a caring wife is a great responsibility.
Mrs. Engel feels her role as a caring wife is a great responsibility. She says that nothing should happen to her because otherwise her husband's well-being would suffer.
What is dementia care?
Frau Hürsch-Dietrich, Herr Hürsch und Frau Colombo-Hürsch
It was only after her husband moved into a nursing home that Mrs. Hürsch-Dietrich fully realized how much she had needed care at home.
It was only after her husband moved into a nursing home that Mrs. Hürsch-Dietrich fully realized how much she had needed care at home.
What is dementia care?
The interview was held with both Mr. Thoma, whose father was diagnosed with dementia four years ago, and Mrs. Ullmann, who is a close friend of Mr. Thoma’s father. Both Mr. Thoma and Mrs. Ullmann live in the same area in the northern part of Switzerland. Mr. Thoma is 25 years old, and Mrs. Ullmann is 56 years old. Today, Mr. Thoma’s father is 55 years old. Until two years ago, Mr. Thoma’s father lived alone at home; today he lives in a nursing home. Mrs. Ullmann helps with care by communicating with the care institutions and advocating for Mr. Thoma's father's interests. Mr. Thoma focuses on the new relationship he has been able to build with his father because of his father's dementia. Mr. Thoma feels he is forevermore his father’s confidant and support. Both Mr. Thoma and Mrs. Ullmann live in the same place in the northern part of Switzerland.
Frau Ullmann und Herr Thoma
Dementia care is a great deal of responsibility for the relatives, says Mrs. Ullmann.
Dementia care is a great deal of responsibility for the relatives, says Mrs. Ullmann. They are responsible for the other person's well-being and have to make constant and consequential decisions for him or her, she says.
What is dementia care?
Dementia
Frau Ullmann und Herr Thoma
The medications doses are ubiquitously too high, conclude Mrs. Ullmann and Mr. Thoma.
The transition from one institution to another did not work smoothly for Mr. Thoma's father in terms of medication. Instead of relowering the dosage after the transition was completed, he continued to receive the high medication dose, which severely impaired his speech, mobility, and independence. In the home where Mr. Thomas' father now lives, he receives only half the dose, and his condition has improved significantly. Mrs. Ullmann and Mr. Thoma conclude that "the dosages are set too high everywhere.
What helps? - Caregivers' perspective
Dementia
Frau Ullmann und Herr Thoma
Humor makes it much easier to deal with dementia, and nice moments can be shared, says Mrs. Ullmann. Humor establishes a relationship and closeness.
Mrs. Ullmann recounts an event that made her laugh heartily with Mr. Thomas' father. Humor makes it much easier to deal with the disease since beautiful moments can be experienced together. Humor establishes a relationship and closeness.
What helps? - Caregivers' perspective
Dementia
Frau Ullmann und Herr Thoma
Mr. Thoma assists his father and offers companionship, which is the starting point of a new relationship.
The dementia brought Mr. Thoma closer to his father. In step with his father, the two have learned to deal with the disease. Mr. Thoma assists his father and offers companionship, which is the starting point of a new relationship.
Processes of adaptation
Dementia
Frau Ullmann und Herr Thoma
Some tips and advice from others are not helpful and are rather energy drains, according to Mrs. Ullmann and Mr. Thoma.
Tips and advice from others can miss the needs of the caregiver, as Mrs. Ullmann and Mr. Thoma experienced. Some suggestions drain energy rather than providing relief.
What helps? - Caregivers' perspective
Dementia
Frau Ullmann und Herr Thoma
Despite an intensive search and careful consideration, the nursing home in which Mr. Thomas' father initially lived was disappointing. It does not happen what it says on paper, says Mrs. Ullmann.
Despite an intensive search and careful consideration, the nursing home in which Mr. Thomas' father first lived was disappointing. It is not what it says on the paper that happens, says Mrs. Ullmann.
What helps? - Caregivers' perspective
Dementia
Frau Ullmann und Herr Thoma
The good home place enables Mr. Thoma to spend more time with his father again.
The good home place enables Mr. Thoma to spend more time with his father again.
What helps? - Caregivers' perspective
Dementia
Frau Ullmann und Herr Thoma
In the communication with the care institutions, Mr. Thoma experiences himself as powerless, whereupon Mrs. Ullmann responds that one must assert oneself, question what is being done, and accept some discomfort.
In the communication with the care institutions, Mr. Thoma experiences himself as powerless, whereupon Mrs. Ullmann responds that one must assert oneself, question what is being done, and accept some discomfort.
Four levels of communication of the caregivers
Dementia
Frau Ullmann und Herr Thoma
Mrs. Ullmann and Mr. Thoma mention orientation aids for the search for a nursing home.
Mrs. Ullmann and Mr. Thoma, at the urging of the social service in the psychiatric ward where Mr. Thomas's father was, spent more than two weeks searching intently for a suitable nursing home. Orientation offered them: the quality of the leadership, their impression of the residents (lethargic or not), the rooms, the quality of the food, the smells, the mood (no stressed caregivers), the size of the beds, and their own intuition.
At home or in a nursing home?
Dementia
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