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Paul D.

Paul D. is at the peak of his career as general secretary of a bank when he receives a diagnosis of Parkinson's disease in 2011. He receives the diagnosis, which is preceded by incorrect treatment, by post. Exercise is important to Paul D.; among other things, he does cardio and strength training at the fitness centre. He also practices and teaches various dances. At the time of the interview, he has been living with the disease for nine years. In 2017, he started deep brain stimulation therapy, which was three years ago at the time of the interview. As a hobby, he is very busy on the computer. Age at the time of diagnosis: 50 Treatment: Deep brain stimulation

AUDIO

Meeting with friends

Paul D. no longer meets up with his friends so often.

Video Interview

TRANSCRIPT

So the friends are still the same as before. They haven't turned away in any way. But I see fewer people because we don't go out much anymore, we live a more secluded life. But it's actually voluntary, and my wife is also happy because she's often very tired because of her blood disease and so am I, and then we prefer to have it quiet at home, en la casa [Spanish: at home] is always the best.

Other experiences by Paul D.

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Paul D.

Paul D. is at the peak of his career as general secretary of a bank when he receives a diagnosis of Parkinson's disease in 2011. He receives the diagnosis, which is preceded by incorrect treatment, by post. Exercise is important to Paul D.; among other things, he does cardio and strength training at the fitness centre. He also practices and teaches various dances. At the time of the interview, he has been living with the disease for nine years. In 2017, he started deep brain stimulation therapy, which was three years ago at the time of the interview. As a hobby, he is very busy on the computer. Age at the time of diagnosis: 50 Treatment: Deep brain stimulation

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Paul D.

Trembling at work

Paul D. tells how he notices his hands shaking at work and thinks it will pass.

Diagnosis

Parkinson's disease: deep brain stimulation and duodopa pump

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Paul D.

Surgery after misdiagnosis

Due to a misdiagnosis, Paul D. undergoes surgery, but the operation does not help.

Diagnosis

Parkinson's disease: deep brain stimulation and duodopa pump

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Paul D.

Diagnosis by letter

Paul D. receives the diagnosis by letter.

Diagnosis

Parkinson's disease: deep brain stimulation and duodopa pump

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Paul D.

Voice changes

Paul D. sometimes has a lower voice.

Symptoms and course of disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Paul D.

Maintain habits

Paul D. keeps up his routine, which is very important for him.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Paul D.

One's own impatience

Paul D. gets annoyed when he notices that he is slow.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Paul D.

Understanding of the employer

Paul D.'s employer stands by him.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Paul D.

Excessive demand

Paul D. refuses a promotion.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Paul D.

Claims

Paul D. sometimes cannot meet the demands of his children.

Family and society

Parkinson's disease: deep brain stimulation and duodopa pump

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Paul D.

Meeting with friends

Paul D. no longer meets up with his friends so often.

Family and society

Parkinson's disease: deep brain stimulation and duodopa pump

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Paul D.

Exceeding the maximum dose

Paul D. gets sick after taking a very high dose.

Medication

Parkinson's disease: deep brain stimulation and duodopa pump

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Paul D.

Too many medicines

Paul D. was at his limit with the medication.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Paul D.

Sport

Paul D. does sport.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

View all experiences

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