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Seraina F.

Seraina F. is married to Filippo F., who was diagnosed with Parkinson's disease in 2004. When she starts working in the evenings, organising Filippo F.'s care is not an easy task at the beginning. After various family members contribute a part to the care, the situation settles down, which Seraina F. is very happy about.

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Excessive demand

Seraina F. reports about a time when she felt very overwhelmed and was not well.

TRANSCRIPT

Seraina F.: And I was also very, very bad. And luckily I work at CMS, because I had the support of my superiors, my team, who told me: "Now you need help too." Because that's when I left. Interviewer: And how did you get help? Seraina F.: Well, my supervisors told me "listen, there are lots of things you can do to help. We could call in home help to relieve you." So after a while we agreed, we said, okay, so the care, when I'm at work, someone has to come home to look after my husband. To take care of showering, getting dressed in the morning. Skin care and so on. And then a bit later, I had broken my wrist, I got help with ironing, help with the shopping. And it also helped me to have a bit more knowledge: What can I do to engage someone to help my husband? But who also helps me at the same time. So we've also asked for help around the house to take the pressure off me. And so my husband doesn't have to go "ah my wife, she has to do everything na ni na na" for his morale as well, that has helped a lot. Because he cares a lot about me, my husband, because he sees me moving all the time, doing everything, because I had to take over everything, whether it's all the paperwork, I call it paperwork, that means everything: the mail, the payments, all his mail too, I manage everything. I manage his medication. Interviewer: Going back to that, you told me about the support from your work environment, the CMS. But did you feel that you were getting enough support at the moment?

Other experiences by Seraina F.

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Seraina F.

Seraina F. is married to Filippo F., who was diagnosed with Parkinson's disease in 2004. When she starts working in the evenings, organising Filippo F.'s care is not an easy task at the beginning. After various family members contribute a part to the care, the situation settles down, which Seraina F. is very happy about.

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