placeholder

Roswitha S.

Roswitha S. notices from small changes that something has changed in her, but cannot interpret the symptoms. In 2004, she was diagnosed with Parkinson's disease and started a square dance class with her husband shortly afterwards. She finds the dancing extremely helpful in relation to the Parkinson's disease. At the time of the interview, she had been living with the disease for sixteen years. In 2017, she started Deep Brain Stimulation therapy. In the time before treatment, she was very unwell and sees Deep Brain Stimulation as a last resort. At the time of the interview, the surgery was seven years ago. Even before receiving the diagnosis of Parkinson's disease, Roswitha S. had quit her job as a biology teacher. Age at the time of diagnosis: 52 Treatment: Deep brain stimulation

TEXT

Anxiety

Roswitha S. tells how she got scared during the operation and calmed herself down.

TRANSCRIPT

Interviewer: Were you afraid of the procedure? Roswitha S.: No. I would say, first of all, it was actually the first time I had been to hospital. I had little hospital experience. And the trust in these surgeons, that was really high. But of course I also had moments of panic [during the operation]. You could always hear that right away, when the pulse suddenly quickened. And then I calmed myself down. So I took myself out of the operation. I played dead. It sounds stupid now, but it was a kind of playing dead. Interviewer: No, no. It's a strategy to cope with the situation, so that's not stupid at all. Roswitha S.: Yes, exactly. And it also helped.

Other experiences by Roswitha S.

placeholder

Roswitha S.

Roswitha S. notices from small changes that something has changed in her, but cannot interpret the symptoms. In 2004, she was diagnosed with Parkinson's disease and started a square dance class with her husband shortly afterwards. She finds the dancing extremely helpful in relation to the Parkinson's disease. At the time of the interview, she had been living with the disease for sixteen years. In 2017, she started Deep Brain Stimulation therapy. In the time before treatment, she was very unwell and sees Deep Brain Stimulation as a last resort. At the time of the interview, the surgery was seven years ago. Even before receiving the diagnosis of Parkinson's disease, Roswitha S. had quit her job as a biology teacher. Age at the time of diagnosis: 52 Treatment: Deep brain stimulation

placeholder

Roswitha S.

Changes on the eye

Roswitha S. tells of changes in her eye that cause her to make mistakes when writing.

Diagnosis

Parkinson's disease: deep brain stimulation and duodopa pump

placeholder

Roswitha S.

Hope it does not get worse

Corinne L. hopes that the symptoms will stay away from her daughter-in-law for a long time.

Symptoms and course of disease

Parkinson's disease: deep brain stimulation and duodopa pump

placeholder

Roswitha S.

Explain oneself

Roswitha S. addresses her illness when she has the impression that others are wondering what is wrong with her.

Family and society

Parkinson's disease: deep brain stimulation and duodopa pump

placeholder

Roswitha S.

Waning effect

Roswitha S. is doing very well at first, then the effect of the medication suddenly wears off.

Medication

Parkinson's disease: deep brain stimulation and duodopa pump

placeholder

Roswitha S.

Second opinion

Roswitha S. seeks a second opinion.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

placeholder

Roswitha S.

No choice

Roswitha S. reports that she was very unwell before the operation.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

placeholder

Roswitha S.

Effort

For Roswitha T., the operation is psychologically exhausting because of the long duration.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

placeholder

Roswitha S.

Nightmares

Roswitha S. has nightmares after the operation.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

placeholder

Roswitha S.

Anxiety

Roswitha S. tells how she got scared during the operation and calmed herself down.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

View all experiences

© 2000-2021, All Rights Reserved