placeholder

Ester O.

Ester O.'s husband has Parkinson's disease. Everyday life in the family becomes increasingly difficult as her husband's illness progresses. Above all, hallucinations, aggression and impulse control disorders cause difficulties. In the meantime, Ester O.'s husband lives in a nursing home. Age at the time of the interview: 64

TEXT

Too much regulation

Esther O.'s husband is no longer allowed to operate the control unit himself because he regulates it too high.

TRANSCRIPT

Ester O.: He is no longer allowed to operate the device himself. They have blocked it. Interviewer: So the neurologist. Ester O.: Yes, from the P [hospital name]. Interviewer: So he used it a bit too much? Ester O.: Yes. He didn't stick to what he was told. They stopped it, then he said, "maybe zero point five more" or something. And then he just stopped two or three and [...] the doctor just said that it wasn't possible. Interviewer: And what happened when he stimulated too much? What happened? Ester O.: Then the over-movements came again. [...] And then he turned it down again and up again and every hour four or five times. That's not possible. Interviewer: But they were over-movements, like before the operation, so from the body or [was it] psychological, so hyperactivity or something? Ester O.: Yes, he was hyperactive. Interviewer: But there was no hyperactivity, like before the operation? Ester O.: No. [...] And then he regulated down [the device] again [...]. And they had difficulties to adjust him so that it's normal. And now sometimes he tries a little bit more, the neurologist, [...] but my husband, he would like to have more and so. And the neurologist says, "no, he gets aggressive again." Interviewer: Is he still aggressive? Ester O.: Yes. If too much is adjusted, he becomes aggressive. Interviewer: Yes, of course. Ester O.: It goes to the aggression centre [in the brain] [...], he said so.

Other experiences by Ester O.

View all experiences

© 2000-2021, All Rights Reserved