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Johanna J.

Mrs. Johanna J., a single mother, had to be admitted to the intensive care unit as an emergency case. With acute shortness of breath, she was dependent on ventilation and intensive medical treatment for many weeks. A lot of patience was needed to cope with this long time on equipment, helplessness and subsequent rehabilitation. She found great support in her family and children.

VIDEO

Mrs. Johanna J. was between dreams and confusion.

Because Mrs. Johanna J. was so confused, she had great difficulty classifying the situation in the intensive care unit.

Video Interview

TRANSCRIPT

I: Tell me about the dreams. What were they like? E: They were very likely things that I heard from my family. From which I then just made my own story. For example: they were talking about (place_1 ), and that they would have wanted to fly me to the health institution (place_3). Rega (Swiss Air Rescue) was a topic. Then someone told that there was a car accident or something at Migrolino (Swiss convenience store supplier). Then I dreamed that I was downstairs in the Migrolino. Down there was the hospital bed. Rega was refueling down there, waiting for me. Then they put me in the Rega. And then the helicopter kind of crashed, so, the electronics crashed for a moment. There was no light. Then they were able to restart it. Then they drove me to the nursing home to ( place_2). Like so to place_2. Then I was out there in place_2 in a nursing home. I was just lying like that in a hallway (corridor). They didn't have a free bed. It was just in the hallway. Then I had such problems with my lungs and I kept wanting to tell the doctor that, but I couldn't communicate. He didn't understand me. I wanted to tell him that I had something of a cow on my lungs. For whatever reason a cow. I don't know. But, funnily enough, it was always the same doctor.

Other experiences by Johanna J.

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Johanna J.

Mrs. Johanna J., a single mother, had to be admitted to the intensive care unit as an emergency case. With acute shortness of breath, she was dependent on ventilation and intensive medical treatment for many weeks. A lot of patience was needed to cope with this long time on equipment, helplessness and subsequent rehabilitation. She found great support in her family and children.

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Johanna J.

Mrs. Anna A. mentioned the noise by other patients.

Ms Anna A. is disturbed by the proximity and discomfort of the other intensive care patients.

General perception / overview of the intensive care

Experiences in Intensive Care

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Johanna J.

Mrs. Johanna J. was between dreams and confusion.

Because Mrs. Johanna J. was so confused, she had great difficulty classifying the situation in the intensive care unit.

State of consciousness and memory issues

Experiences in Intensive Care

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Johanna J.

Mrs. Johanna J. remembers through a diary.

Ms. Johanna J. recounts memories from a diary written for her by ICU staff.

State of consciousness and memory issues

Experiences in Intensive Care

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Johanna J.

Inability to communicate

In Mrs. Johanna's case, the protective balm on her eyes prevented communication with her eyelids. She could hear, but not transmit her feelings and sensations back. Eventually, she resigned herself to this helpless situation.

Communication issues in the intensive care unit (ICU)

Experiences in Intensive Care

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Johanna J.

Feeling of fear and being ignored

Mrs. Johanna J explains that one of the nurses had a communication relationship that didn't take account of calls or sleep periods. This caused both a feeling of fear and of being ignored.

Communication issues in the intensive care unit (ICU)

Experiences in Intensive Care

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Johanna J.

The team's main focus is on the machines

Mrs. Johanna J.'s sense of helplessness was total: not only could she do nothing herself, but she was also unable to convey her difficulties to the clinical team, whose attention was focused on the vital data from the devices.

Good to know to improve intensive care unit (ICU) patient experience

Experiences in Intensive Care

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Johanna J.

Patients are delighted to be included

Mrs. Johanna J. was happy to participate in decisions, even if only by nodding. This has helped to create a situation of trust.

Good to know to improve intensive care unit (ICU) patient experience

Experiences in Intensive Care

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Johanna J.

Competence

Even when she was impatient, Mrs. Johanna J remembered the great work of the team.

Emotional events and experiences to take home with you

Experiences in Intensive Care

View all experiences

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