With the technical and medical possibilities on intensive care a patient can be able to survive life-threatening illnesses. These experiences of critical illness and intensive care medicine are challenging for patients and families. Often experiences made on intensive care unit (ICU) can be life changing. In small video- or audio-sequences we would like to illustrate the experiences made by patients on ICU and how they handled their stay in this critical situation. Many patients share their experiences on intensive care unit and show how these experiences influenced their life.
Participant
When Mrs. Deborah D. learned that her mother had been admitted to the intensive care unit as an emergency case after resuscitation, she was shocked. She and her brother knew that their mother did not want to be intubated and kept artificially in a vegetative state. They were unsure if they had made the right decision. Mrs. D also wondered what her mother might be feeling. Her mother then explained that she had never said that she did not want to be resuscitated, but only that she did not want to be kept alive artificially in case of a vegetative state.
Participant
Yvonne Y. spent many hours in the intensive care unit to accompany her father during the weeks of serious illness. She vividly describes the emotional ups and downs of the time. She would have liked to see professional support from the team or a psychologist for patients and relatives during this critical time in an intensive care unit.
Participant
Mr. Dante D.'s worsening health condition required his hospitalization for mechanical ventilation and artificial coma. He says that his professional experience was helpful in understanding and managing his experiences in the ICU. The fact that contact with loved ones was severely limited during the pandemic was an additional stressor for him in this critical situation.
Participant
Yvonne Y. spent many hours in the intensive care unit to accompany her father during the weeks of serious illness. She vividly describes the emotional ups and downs of the time. She would have liked to see professional support from the team or a psychologist for patients and relatives during this critical time in an intensive care unit.
Participant
Ms. Evelyn E. can no longer remember exactly when she was admitted to the intensive care unit. It all happened very quickly. When she woke up after the two weeks in the coma, she was very confused. She reports feelings of anger, questions or apologies, and the importance of communication in the ICU.
Participant
Ms. Lena L. accompanied her partner through a serious neurological illness that resulted in a stay in an intensive care unit and rehabilitation. She recorded her partner's time in an induced coma and the many unusual experiences that followed in a diary.
Participant
Mr. Georges G. was admitted to the intensive care unit due to an accident. The diagnosis was difficult, with many twists and turns. In the end, he stayed in the ICU for only 4 days without being intubated or going into a coma. The memories of what he experienced, the ICU and the hospital team are precise.
Participant
The 80-year-old husband accompanied his wife over many months and various ICUs and hospital stays. Every day he has taken the road to support her in her difficult time and to be there for her as her friend and partner.
Participant
This person wishes to remain anonymous.
Participant
Mr. Charles C. had a short stay in the intensive care unit (3 days). He was sedated with morphine for pain management and relief of shortness of breath but was not in a comatose state. He compared this stay to a previous one-month hospitalization in the ICU in 2012.
Participant
A great trust in God and the support of his wife and friends helped Mr. Markus M. while he had to be treated in the intensive care unit. One thing that particularly impressed him was the excellent teamwork in the clinic and rehabilitation. That's why he wants to share his ICU experience with others and the team.
Participant
Mrs. Johanna J., a single mother, had to be admitted to the intensive care unit as an emergency case. With acute shortness of breath, she was dependent on ventilation and intensive medical treatment for many weeks. A lot of patience was needed to cope with this long time on equipment, helplessness and subsequent rehabilitation. She found great support in her family and children.
Participant
Mr. Henri H. was admitted to the intensive care unit for an acute illness requiring that he be placed in an induced coma and artificially ventilated. He recalls nightmares and a confused state that were distressing to him. The ICU stay was long, difficult. However, when he was able to draw again, a big step towards recovery was made. Two months of treatment in the intensive care unite was followed by six months of rehabilitation, which allowed the patient to resume his daily life.
Participant
Mr. Zaccharia Z. was intubated and placed in an induced coma immediately upon arrival at the hospital. When he woke up, it took him a while to understand what was going on. He thought for a moment that he had been kidnapped. The care in the ICU for him seemed very professional. He notes, however, that his discharge from the hospital could have been better accompanied.
Participant
Mrs. Johanna J., a single mother, had to be admitted to the intensive care unit as an emergency case. With acute shortness of breath, she was dependent on ventilation and intensive medical treatment for many weeks. A lot of patience was needed to cope with this long time on equipment, helplessness and subsequent rehabilitation. She found great support in her family and children.
Participant
This person wishes to remain anonymous.
Participant
Mr. Henri H. was admitted to the intensive care unit for an acute illness requiring that he be placed in an induced coma and artificially ventilated. He recalls nightmares and a confused state that were distressing to him. The ICU stay was long, difficult. However, when he was able to draw again, a big step towards recovery was made. Two months of treatment in the intensive care unite was followed by six months of rehabilitation, which allowed the patient to resume his daily life.
Participant
Ms Anna A. never thought that her elective surgery would go so badly that she would have to go through another emergency operation and end up intubated in an artificial coma in ICU. She could have died. She also felt a discomfort in using all these sophisticated and expensive ICU health services when the surgical procedure she had agreed to do was originally a simple intervention.
Participant
Ms Anna A. never thought that her elective surgery would go so badly that she would have to go through another emergency operation and end up intubated in an artificial coma in ICU. She could have died. She also felt a discomfort in using all these sophisticated and expensive ICU health services when the surgical procedure she had agreed to do was originally a simple intervention.
Participant
Tabea T. remembers little of her 2 ½ week stay in intensive care. Dream and reality mix up her memories. Perhaps a visit to the intensive care unit would help her to deal with the time she spent there.
Participant
Ms. Evelyn E. can no longer remember exactly when she was admitted to the intensive care unit. It all happened very quickly. When she woke up after the two weeks in the coma, she was very confused. She reports feelings of anger, questions or apologies, and the importance of communication in the ICU.
Participant
Mr. Charles C. had a short stay in the intensive care unit (3 days). He was sedated with morphine for pain management and relief of shortness of breath but was not in a comatose state. He compared this stay to a previous one-month hospitalization in the ICU in 2012.
Participant
Mr. Alain A. does not remember his transfer to the hospital. During the two weeks of artificial coma, he remembers that he could hear the doctors and nurses but was unable to speak himself. His awakening was long and restless. It was reported that when he heard his family's voices over the phone, he moved his hands and his heart rate slowed.
Participant
This person wishes to remain anonymous.
Participant
This person wishes to remain anonymous.
Participant
Mr. Henri H. was admitted to the intensive care unit for an acute illness requiring that he be placed in an induced coma and artificially ventilated. He recalls nightmares and a confused state that were distressing to him. The ICU stay was long, difficult. However, when he was able to draw again, a big step towards recovery was made. Two months of treatment in the intensive care unite was followed by six months of rehabilitation, which allowed the patient to resume his daily life.
Participant
Ms Beatrice B. remained in intensive care for 1 month, including 3 weeks in an induced coma following postoperative complications. In the patient’s perspective the postoperative complications were the cause for near-bankruptcy of her business but she is grateful to the ICU team for her survival.
Participant
White light and unclear memories accompany Mr. Igor I.. After a serious traffic accident he was treated in the intensive care unit for 3 weeks. Various operations were performed. To share these experiences in the intensive care unit with the need for ventilation, strong medication and restrictions in individuality he would like to make a film.
Participant
Mr. Henri H. was admitted to the intensive care unit for an acute illness requiring that he be placed in an induced coma and artificially ventilated. He recalls nightmares and a confused state that were distressing to him. The ICU stay was long, difficult. However, when he was able to draw again, a big step towards recovery was made. Two months of treatment in the intensive care unite was followed by six months of rehabilitation, which allowed the patient to resume his daily life.
Participant
When Mrs. Deborah D. learned that her mother had been admitted to the intensive care unit as an emergency case after resuscitation, she was shocked. She and her brother knew that their mother did not want to be intubated and kept artificially in a vegetative state. They were unsure if they had made the right decision. Mrs. D also wondered what her mother might be feeling. Her mother then explained that she had never said that she did not want to be resuscitated, but only that she did not want to be kept alive artificially in case of a vegetative state.
Participant
Mr. Charles C. had a short stay in the intensive care unit (3 days). He was sedated with morphine for pain management and relief of shortness of breath but was not in a comatose state. He compared this stay to a previous one-month hospitalization in the ICU in 2012.
Participant
Mr. Quentin Q was in ICU for a week, including 3 days on mechanical ventilation and in an induced coma. He remembers the care team but also moments of hallucinations where he saw different people when it was not possible. The COVID environment only allowed him to communicate with his wife by phone. He understood later that the situation had been very distressing for her.
Participant
Mr. Georges G. was admitted to the intensive care unit due to an accident. The diagnosis was difficult, with many twists and turns. In the end, he stayed in the ICU for only 4 days without being intubated or going into a coma. The memories of what he experienced, the ICU and the hospital team are precise.
Participant
A great trust in God and the support of his wife and friends helped Mr. Markus M. while he had to be treated in the intensive care unit. One thing that particularly impressed him was the excellent teamwork in the clinic and rehabilitation. That's why he wants to share his ICU experience with others and the team.
Participant
Ms. Evelyn E. can no longer remember exactly when she was admitted to the intensive care unit. It all happened very quickly. When she woke up after the two weeks in the coma, she was very confused. She reports feelings of anger, questions or apologies, and the importance of communication in the ICU.
Participant
Mr. Charles C. had a short stay in the intensive care unit (3 days). He was sedated with morphine for pain management and relief of shortness of breath but was not in a comatose state. He compared this stay to a previous one-month hospitalization in the ICU in 2012.
Participant
Mr. Fabio F. lives alone and has his fragile health well under control. He tries to avoid hospitalization as much as possible. He came to the intensive care unit because he had lost control. He was sedated but not put into an induced coma. He compares those three days in the ICU to an earlier stay of one month in 2012. The stories are intertwined.
Participant
White light and unclear memories accompany Mr. Igor I.. After a serious traffic accident he was treated in the intensive care unit for 3 weeks. Various operations were performed. To share these experiences in the intensive care unit with the need for ventilation, strong medication and restrictions in individuality he would like to make a film.
Participant
Mrs. Johanna J., a single mother, had to be admitted to the intensive care unit as an emergency case. With acute shortness of breath, she was dependent on ventilation and intensive medical treatment for many weeks. A lot of patience was needed to cope with this long time on equipment, helplessness and subsequent rehabilitation. She found great support in her family and children.
Participant
Mr. Alain A. does not remember his transfer to the hospital. During the two weeks of artificial coma, he remembers that he could hear the doctors and nurses but was unable to speak himself. His awakening was long and restless. It was reported that when he heard his family's voices over the phone, he moved his hands and his heart rate slowed.
Participant
Ms Anna A. never thought that her elective surgery would go so badly that she would have to go through another emergency operation and end up intubated in an artificial coma in ICU. She could have died. She also felt a discomfort in using all these sophisticated and expensive ICU health services when the surgical procedure she had agreed to do was originally a simple intervention.
16 experiences
The intensive care unit (ICU) is a very confusing place for patients and their families. Due to the urgency of entering the ICU, most patients and families are unprepared. The severity of the illnesses that require admission to the ICU requires a large number of nurses and doctors. There are a lot of machines, "tubes" and high-tech instruments with control lights and alarms that make the ICU a noisy place. It often takes time for patients to understand what is going on. Some quickly accept the situation of a serious illness with the need for intensive medical therapy, others remain confused or do not get used to it. It is also not easy for relatives to deal with the extraordinary situation. Most patients and their families remember the professionalism of the clinical team and the feeling of being safe and well cared for.
Deborah D.
Mrs. Deborah D. experienced a positive atmosphere.
Mrs. Deborah D., daughter of a patient, describes a very positive atmosphere for the patients in the intensive care unit.
General perception / overview of the intensive care
Experiences in Intensive Care
25 experiences
State of consciousness and memory issues
Dante D.
Mr. Dante D. remembers the thirst and the noise.
Mr. Dante gradually comes out of the coma and complains of intense thirst and noise.
State of consciousness and memory issues
Experiences in Intensive Care
Evelyne E.
Mrs. Evelyne E. wakes up slowly and in confusion.
Mrs. Evelyne E. slowly woke up and was confused between hallucination and beginning perception of reality.
State of consciousness and memory issues
Experiences in Intensive Care
Georges G.
Mr. Georges G.is troubled by the absence of certain memories.
Mr. George G. is confused because he woke up in a different place and can't remember how he got there.
State of consciousness and memory issues
Experiences in Intensive Care
Charles C.
Mr. Charles C. suffered from an olfactory hallucination.
Mr. Charles C. remembers very unpleasant hallucinations of smell and taste.
State of consciousness and memory issues
Experiences in Intensive Care
Markus M.
When he wakes up, Mr. Markus is missing 6 weeks in his memory.
Mr. Markus has a six-week memory gap when he wakes up. But he remembers individual moments when he was supposedly still unconscious.
State of consciousness and memory issues
Experiences in Intensive Care
Johanna J.
Mrs. Johanna J. was between dreams and confusion.
Because Mrs. Johanna J. was so confused, she had great difficulty classifying the situation in the intensive care unit.
State of consciousness and memory issues
Experiences in Intensive Care
Henri H.
Mr. Henri H remembers nightmares and fear.
Mr. Henri H had nightmares in which he saw himself lying helpless and afraid.
State of consciousness and memory issues
Experiences in Intensive Care
Zaccharia Z.
Mr Zacharia Z thinks he was kidnapped.
Mr. Zacharia Z is between reality and delir,. He even believes he was kidnapped.
State of consciousness and memory issues
Experiences in Intensive Care
Johanna J.
Mrs. Johanna J. remembers through a diary.
Ms. Johanna J. recounts memories from a diary written for her by ICU staff.
State of consciousness and memory issues
Experiences in Intensive Care
Anonymus 4
This person experienced nightmares.
This person describes the intertwining of reality and nightmares and the resulting feelings of anxiety.
State of consciousness and memory issues
Experiences in Intensive Care
Henri H.
Mr. Henry H. uses a diary to tell his story.
For Mr. Henry H., the diary written by a friend was helpful to remember.
State of consciousness and memory issues
Experiences in Intensive Care
Anna A.
Ms. Anna A. later learns from her doctor that she has been intubated.
Ms. Anna A. learns that she has been intubated when the physician tells her in an explanatory conversation 6 months after her discharge from the intensive care unit.
State of consciousness and memory issues
Experiences in Intensive Care
Anna A.
Mrs. Anna A talks about her hallucinations.
Mrs. Anna A was aware that she was hallucinating and was trying to maintain a sense of reality.
State of consciousness and memory issues
Experiences in Intensive Care
Tabea T.
Mrs. Tabea T. does not remember anything.
Ms. Tabea only remembers dreams and says that she felt restless. She found this to be a very unpleasant feeling.
State of consciousness and memory issues
Experiences in Intensive Care
Evelyne E.
Evelyne E. recalls a confusion between reality and happy hallucinations.
Ms Evelyne E. describes the confusion, between perception of reality and moments of joyfull hallucinations.
State of consciousness and memory issues
Experiences in Intensive Care
Charles C.
Mr. Charles C. remained awake in the ICU and remembers well.
Because he was not in a coma, Mr. Charles C. remembered his ICU stay.
State of consciousness and memory issues
Experiences in Intensive Care
Alain A.
Mr. Alain A saw himself floating on a cloud.
For Mr Alain A., the dreams were pleasant. He was floating along on a cloud.
State of consciousness and memory issues
Experiences in Intensive Care
Anonymus 1
This person remembers with the help of her family.
This person reconstructed her memories of the time in the intensive care unit with the help of her family's narratives.
State of consciousness and memory issues
Experiences in Intensive Care
Anonymus 1
This person has a feeling of insecurity when faced with memory gaps.
This person talks with a relative about how embarrassed she is about not remembering, about having lost control for two days.
State of consciousness and memory issues
Experiences in Intensive Care
Henri H.
Mr. Henry H. tells us about his oscillating state of consciousness.
Mr. Henry H. explains how his state of consciousness oscillated between dream and reality when he came out of the coma.
State of consciousness and memory issues
Experiences in Intensive Care
Béatrice B.
Mrs. Beatrice B remembers dreams during her coma period.
Ms. Beatrice B. remembers her coma as a dream where she saw many friends and family she knew.
State of consciousness and memory issues
Experiences in Intensive Care
Igor I.
In Mr. Igor I. sedation causes dreams.
Mr. Igor I had unpleasant dreams during the artificial coma.
State of consciousness and memory issues
Experiences in Intensive Care
Henri H.
Mr. Henry H. was feeling a little disoriented.
Mr. Henry H. felt a little lost, and this feeling between real and unreal remains difficult to explain.
State of consciousness and memory issues
Experiences in Intensive Care
Deborah D.
Mrs. Deborah D. reports on her mother's coma.
Ms. Deborah D. was very emotional and questioning in front of her comatose mother.
State of consciousness and memory issues
Experiences in Intensive Care
Alain A.
Mr. Alain A. was put into an artificial coma as an emergency.
Mr. Alain A, during his 10 days in an induced coma, remembers that he could hear the doctors and nurses but could not talk to them.
State of consciousness and memory issues
Experiences in Intensive Care
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