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Uli F.

Uli F. was diagnosed with Parkinson's disease in 2001 at the age of 49. At that time, he is very athletic and works in an office. At the time of the interview, he has been living with the disease for nineteen years. In 2014, he started Deep Brain Stimulation therapy, which was six years ago at the time of the interview. Shortly after the deep brain stimulation, he took early retirement due to Parkinson's disease and a back problem. It is important for him to be open about his Parkinson's disease. Age at the time of diagnosis: 49 Treatment: Deep brain stimulation

VIDEO

Changes in sport

Ulli F. notices first changes in sports.

Video Interview

TRANSCRIPT

Ulli F.: I didn't notice that much either, I have to say, at the beginning it was still a very small tremor. And another aspect, why I also felt this disease, or thought that something could be, is that I also went jogging a lot. And I always practiced that and tried to stay on the ball, and this jogging, I also did three, four runs every year. Interviewer: Do you still do that? Ulli F.: That was the B [place] run. No, no, I don't do that now. Around 2010 I did the last runs, that was the G [place] run, they have one like that through the city of G [place] or also in B [place] in the canton of Fribourg, is such a run. And there I suddenly just had - I didn't know why - just five to ten minutes more. I didn't actually run any worse, I had the feeling. And that was also one of the reasons why I reported it. Or also when I was swimming, I noticed that when I swim, I always suddenly get to the right side.

Other experiences by Uli F.

PDI07.jpg

Uli F.

Uli F. was diagnosed with Parkinson's disease in 2001 at the age of 49. At that time, he is very athletic and works in an office. At the time of the interview, he has been living with the disease for nineteen years. In 2014, he started Deep Brain Stimulation therapy, which was six years ago at the time of the interview. Shortly after the deep brain stimulation, he took early retirement due to Parkinson's disease and a back problem. It is important for him to be open about his Parkinson's disease. Age at the time of diagnosis: 49 Treatment: Deep brain stimulation

PDI07.jpg

Uli F.

Changes in sport

Ulli F. notices first changes in sports.

Diagnosis

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

The effect of the medication wears off

In Uli F.'s case, the effect of the medication wears off and he can no longer walk well.

Symptoms and course of disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Movement activities

Ulli F. can no longer go on long hikes.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Communicating the disease

Ulli F. is open about his illness.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Keyboarding

Ulli F. can no longer type so quickly and sometimes makes mistakes.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Increase in dose and number of medicines

Uli F. reaches the point where increasing the medication no longer helps.

Medication

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Procedure

Ulli F. describes the stages of the operation.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Noises during the operation

Ulli F. sometimes remembers a sound he heard during the operation.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Different groups

Ulli F. reports that there is a small group of those who have been treated with Deep Brain Stimulation.

Further therapies and support

Parkinson's disease: deep brain stimulation and duodopa pump

View all experiences

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