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Uli F.

Uli F. was diagnosed with Parkinson's disease in 2001 at the age of 49. At that time, he is very athletic and works in an office. At the time of the interview, he has been living with the disease for nineteen years. In 2014, he started Deep Brain Stimulation therapy, which was six years ago at the time of the interview. Shortly after the deep brain stimulation, he took early retirement due to Parkinson's disease and a back problem. It is important for him to be open about his Parkinson's disease. Age at the time of diagnosis: 49 Treatment: Deep brain stimulation

VIDEO

Procedure

Ulli F. describes the stages of the operation.

Video Interview

TRANSCRIPT

Interviewer: Did you notice any differences between the back surgery and the brain surgery? Was it a different experience? Ulli F.: Yes, it was a bit different. Although I was almost less positive about the back than the brain. Interviewer: So, brain surgery was better? Ulli F.: Brain surgery, I just let it wash over me. That was clear. And what should also be said is that "there is not just nothing wrong with the head". But I didn't see that as negative. [...] I almost fell asleep there too. But that probably still happens to people a lot. You heard the first part, and you were often awake during the first part of the operation. And the second day was actually a normal operation, where they packed the wiring of the transmitter and the energy source. Interviewer: Yes. And that was one day after the brain surgery? Ulli F.: Yes, one. Interviewer: Okay, great. Ulli F.: I don't know if there are hospitals that do the whole thing in one day, but others do it in two [days].

Other experiences by Uli F.

PDI07.jpg

Uli F.

Uli F. was diagnosed with Parkinson's disease in 2001 at the age of 49. At that time, he is very athletic and works in an office. At the time of the interview, he has been living with the disease for nineteen years. In 2014, he started Deep Brain Stimulation therapy, which was six years ago at the time of the interview. Shortly after the deep brain stimulation, he took early retirement due to Parkinson's disease and a back problem. It is important for him to be open about his Parkinson's disease. Age at the time of diagnosis: 49 Treatment: Deep brain stimulation

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Uli F.

Changes in sport

Ulli F. notices first changes in sports.

Diagnosis

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

The effect of the medication wears off

In Uli F.'s case, the effect of the medication wears off and he can no longer walk well.

Symptoms and course of disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Movement activities

Ulli F. can no longer go on long hikes.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Communicating the disease

Ulli F. is open about his illness.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Keyboarding

Ulli F. can no longer type so quickly and sometimes makes mistakes.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Increase in dose and number of medicines

Uli F. reaches the point where increasing the medication no longer helps.

Medication

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Procedure

Ulli F. describes the stages of the operation.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Noises during the operation

Ulli F. sometimes remembers a sound he heard during the operation.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Uli F.

Different groups

Ulli F. reports that there is a small group of those who have been treated with Deep Brain Stimulation.

Further therapies and support

Parkinson's disease: deep brain stimulation and duodopa pump

View all experiences

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