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Salome G.-I.

Salome G.-I. is a teacher by profession and married to Theo I.. Shortly after the birth of her second child, Salomé G.-I. learns of his diagnosis of Parkinson's disease. She is glad that Theo I.'s disease is progressing slowly and that they can still pursue their activities together. After Theo I.'s Parkinson's symptoms became increasingly severe over the years, Salome G.-I. is very happy that her husband had deep brain stimulation performed. She considers the result a great success. Age at the time of diagnosis: 38

VIDEO

Responsibility

Salome G.-I. sometimes finds it difficult to assess whether she should express concerns.

Video Interview

TRANSCRIPT

And if you are still very active, like us, and you want to do different things and you do them, then there was the situation where I was alone with him and I thought, "OK, are we going to do this? But actually, he was able to decide a lot of things very well. For example, last year we were still in the 4000 and 5000 metre high mountains in Kyrgyzstan. We did a trekking tour and a mountain tour. Then I went with our friends to this 5000-metre mountain. He then returned with the mountain guide from 4500 metres because he realised, yes, now it's no longer possible. That means he was still able to judge what was possible and what was not. [...] But sometimes, as a partner, you always have to think about "what is it now?" or "should I say something or should I say nothing?

Other experiences by Salome G.-I.

PDI06.jpg

Salome G.-I.

Salome G.-I. is a teacher by profession and married to Theo I.. Shortly after the birth of her second child, Salomé G.-I. learns of his diagnosis of Parkinson's disease. She is glad that Theo I.'s disease is progressing slowly and that they can still pursue their activities together. After Theo I.'s Parkinson's symptoms became increasingly severe over the years, Salome G.-I. is very happy that her husband had deep brain stimulation performed. She considers the result a great success. Age at the time of diagnosis: 38

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Salome G.-I.

Stiffness

Salome G.-I. tells that her husband was stressed and as a result his muscles stiffened.

Symptoms and course of disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Want to regulate everyday life themselves

Salome G.-I. reports that her husband wants to do everything himself, but he is increasingly reaching his limits.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Closure

Salome G.-I. finds her husband to be more withdrawn.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Childcare

Salome G.I.'s husband has a slow progression and can join in with childcare.

Family and society

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Responsibility

Salome G.-I. sometimes finds it difficult to assess whether she should express concerns.

Family and society

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Sexuality

Salome G.-I. reports changes in sexuality.

Family and society

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Complications

Salome G.-I. is glad that her husband decided to have the operation, but was also afraid that something would go wrong.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Movement and facial expression

Salome G.-I. is glad that her husband has facial expressions again and can move.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

View all experiences

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