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Salome G.-I.

Salome G.-I. is a teacher by profession and married to Theo I.. Shortly after the birth of her second child, Salomé G.-I. learns of his diagnosis of Parkinson's disease. She is glad that Theo I.'s disease is progressing slowly and that they can still pursue their activities together. After Theo I.'s Parkinson's symptoms became increasingly severe over the years, Salome G.-I. is very happy that her husband had deep brain stimulation performed. She considers the result a great success. Age at the time of diagnosis: 38

VIDEO

Want to regulate everyday life themselves

Salome G.-I. reports that her husband wants to do everything himself, but he is increasingly reaching his limits.

Video Interview

TRANSCRIPT

He still worked part-time 40%, or he still works 40%. That means that on working days he could do everything on his own, for example go to M [place] and do the work. He could do all that. He told me that it just took more and more strength. It took a lot of effort, but he could do everything himself. He always wanted to do it, even difficult things like putting on shirts, although he was already worse, he never wanted to accept help. He rarely did that. He could still work independently, but he had more and more trouble, for example with walking. He told me that he used to drag himself from the train station to the office in M [town], because it was getting more and more difficult to walk. That started about two to three years before the deep brain stimulation. Then he still did a lot of sport, kayaking, hiking. And then, of course, there were some restrictions because he suddenly could no longer move.

Other experiences by Salome G.-I.

PDI06.jpg

Salome G.-I.

Salome G.-I. is a teacher by profession and married to Theo I.. Shortly after the birth of her second child, Salomé G.-I. learns of his diagnosis of Parkinson's disease. She is glad that Theo I.'s disease is progressing slowly and that they can still pursue their activities together. After Theo I.'s Parkinson's symptoms became increasingly severe over the years, Salome G.-I. is very happy that her husband had deep brain stimulation performed. She considers the result a great success. Age at the time of diagnosis: 38

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Salome G.-I.

Stiffness

Salome G.-I. tells that her husband was stressed and as a result his muscles stiffened.

Symptoms and course of disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Want to regulate everyday life themselves

Salome G.-I. reports that her husband wants to do everything himself, but he is increasingly reaching his limits.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Closure

Salome G.-I. finds her husband to be more withdrawn.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Childcare

Salome G.I.'s husband has a slow progression and can join in with childcare.

Family and society

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Responsibility

Salome G.-I. sometimes finds it difficult to assess whether she should express concerns.

Family and society

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Sexuality

Salome G.-I. reports changes in sexuality.

Family and society

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Complications

Salome G.-I. is glad that her husband decided to have the operation, but was also afraid that something would go wrong.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Salome G.-I.

Movement and facial expression

Salome G.-I. is glad that her husband has facial expressions again and can move.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

View all experiences

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