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Urs C.

Urs C. is married to Mariella C., who has Parkinson's disease and is being treated with deep brain stimulation. He is glad that his wife still actively participates in social life and has created her own tasks after leaving her job. Urs C. also sees positive aspects of Mariella C.'s illness, especially that the cohesion in the family has become stronger since then. He makes sure that he has space in his everyday life where he can pursue his own interests and needs.

AUDIO

Feeling closer

The Parkinson's disease brings Urs C. and his wife even closer together.

Video Interview

TRANSCRIPT

Mariella C.: I don't think I can always be with my husband. Urs C.: No, we can't always be in the flat together either. She is sometimes knitting for hours and sits in there. Then I have to get some exercise. Then I go out once and do something and I always have something to do. Interviewer: Yes, that's nice. So if you have fun together and separately, that's perfect, isn't it? Mariella C.: Yes. Urs C.: Yes. Interviewer: To have the two things. Mariella C.: It has to be. Interviewer: Exactly. Mariella C.: Otherwise you upset each other. Urs C.: Yes. Interviewer: Yes. Mariella C.: With time. Urs C.: Too long together, always concentrating on each other, I don't want that. Interviewer: Yes, I understand. Urs C.: I have my freedom, she has her freedom and [...] at dinner we are together. We walk a little bit every day, a few 100 metres together, go up a little hill nearby, ride our bikes up to our daughter, to K [place]. And so we also have our things together. But otherwise we have separate rooms. She has a room because she is a bit restless at night, gets up three, four, five times and then I want to have my peace. In the hotel, of course, we are always together again. Then I have my earplugs. Interviewer: So for sleeping? Urs C.: Close myself off a bit. So I can sleep. I: So you sleep separately because you can sleep better that way? Urs C.: Exactly. Yes. Yes, yes, exactly. Interviewer: So sleeping well is something important. Mariella C.: Important, yes. Urs C.: But we never really argue with each other. There are always a few discussions, but we don't argue. Interviewer: I can see that. Mariella C.: Yes, not any more. Urs C.: Not any more, yes, exactly. Mariella C.: You have to say. Urs C.: The illness, it brings us even closer together, right? Yes. Mariella C.: Yes, it's not worth it, so for me it's not [to argue] anymore. Urs C.: No. Mariella C.: Arguing. Urs C.: No, she's not quarrelsome. Interviewer: That's good. Urs C.: I have it very good with my wife then, yes.

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