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Theo I.

Theo I. was diagnosed with Parkinson's disease at the age of 42. Together with Salome G.-I., he has two small children at this time. Due to the slow progression of Parkinson's disease, he does not have to change his usual lifestyle from one day to the next and can still fulfil family duties, such as childcare. At the time of the interview, he has been living with the disease for twenty-three years. Theo I. works as an organisational consultant. Sport and exercise play a central role in his life. In 2018, he started deep brain stimulation therapy. Age at the time of diagnosis: 42 Treatment: Deep brain stimulation Occupation: Office worker Treatment: Deep brain stimulation

VIDEO

New life

Theo I. describes the time immediately after the operation.

Video Interview

TRANSCRIPT

It was really like a new life. So even on the first day after the operation, when I woke up from the anaesthetic and my wife and son came, I was fully there. Like before! So, like before the illness. [...] I was fully fit. But after the operation there is this so-called "honeymoon", the swelling in the brain, which makes you feel very good. And that then weakens and is compensated for by the adjustment of the current strength.

Other experiences by Theo I.

PDI05.jpg

Theo I.

Theo I. was diagnosed with Parkinson's disease at the age of 42. Together with Salome G.-I., he has two small children at this time. Due to the slow progression of Parkinson's disease, he does not have to change his usual lifestyle from one day to the next and can still fulfil family duties, such as childcare. At the time of the interview, he has been living with the disease for twenty-three years. Theo I. works as an organisational consultant. Sport and exercise play a central role in his life. In 2018, he started deep brain stimulation therapy. Age at the time of diagnosis: 42 Treatment: Deep brain stimulation Occupation: Office worker Treatment: Deep brain stimulation

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Theo I.

Slow progression

Theo I. is glad that the disease is progressing only slowly and that he can still do sports.

Symptoms and course of disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Theo I.

Change in the division of tasks

Theo I.'s wife has increased her workload, but he now does the housework, which gives him more exercise.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Theo I.

Social contacts

Theo I. increasingly finds social contacts exhausting.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Theo I.

Sitting for long periods

Theo I. can't sit at the computer much longer.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Theo I.

Emotionality

Theo I. has become more emotional on the one hand, but feels strong emotions less intensely.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Theo I.

Decision-making process

Theo I. tells how deep brain stimulation came about.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Theo I.

Irreversible damage

Theo I. is afraid that something will go wrong during the operation and that he will then be even worse off than before.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Theo I.

Putting on the steel frame

Theo I. finds the steel frame uncomfortable to sit on.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Theo I.

New life

Theo I. describes the time immediately after the operation.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Theo I.

Being able to work again

Theo I. can work again.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Theo I.

Fatigue

Theo I. feels more tired after deep brain stimulation than before.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Theo I.

Battery types

Theo I. is glad that he has a non-rechargeable battery that lasts for three years.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

View all experiences

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