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Marie V.

Marie V. was diagnosed with Parkinson's disease in 1997 and has been living with the condition for twenty-three years. Before she starts Deep Brain Stimulation therapy in 2012, she suffers severely from hypermobility. At the time of the interview, the Deep Brain Stimulation surgery was eight years ago. She is a member of a self-help group, which helps her a lot in dealing with the disease. Age at the time of diagnosis: 51 Treatment: Deep brain stimulation

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Control unit

Marie V. uses the control unit.

TRANSCRIPT

Interviewer: And you have a remote control device, don't you? Marie V.: Yes. Interviewer: Do you use that? Marie V.: Yes. Now with the full battery I look at it every month and write the battery level down. And then when it gets towards the end I look at it every day or every other day [and then I see it going down]. I've been writing all this down for twelve years. And there I can also see how long it goes [until the battery is empty]. Interviewer: So you only use that to look at the battery, but you don't make any changes [to the setting]? Marie V.: Yes, I do that too. I can do that already. Interviewer: And how do you use it? So what changes in the settings do you make? Marie V.: If I have to set higher, more volts. But there I have now sworn to myself, I don't do it as much as I did [before]. Not so often any more. I used to, when it was hard for me to walk, I'd put it back up and now I was at four volts. And it goes up to four-point-five. So now I put it down to three-point-eight.

Other experiences by Marie V.

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Marie V.

Marie V. was diagnosed with Parkinson's disease in 1997 and has been living with the condition for twenty-three years. Before she starts Deep Brain Stimulation therapy in 2012, she suffers severely from hypermobility. At the time of the interview, the Deep Brain Stimulation surgery was eight years ago. She is a member of a self-help group, which helps her a lot in dealing with the disease. Age at the time of diagnosis: 51 Treatment: Deep brain stimulation

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