Anonymous 3

This person has a feeling of insecurity when faced with memory gaps.

This person talks with a relative about how embarrassed she is about not remembering, about having lost control for two days.

Credits

Susanne Jöbges

Dr. med. Susanne Jöbges works as a postdoctoral researcher in bioethics. She holds a degree in anaesthesiology and intensive care medicine and a masters degree in medical ethic. She’s been working as a consultant for anaesthesiology in the department for anaesthesioloy and intensive care (head of the department Prof. Dr. med. C. Spies) at the charité Berlin. On an intensive care unit she was leading senior assistant.

After she joined the DIPEx team in May 2019 and coordinates the module about experiences with self-determination and intensive care.

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This person has a feeling of insecurity when faced with memory gaps.

“R: So when you first said this, these gaps, I had the impression that it bothers you a lot. Because there’s just a piece of the puzzle missing in this picture. There’s something missing and you had no control over that time.
E That’s bad anyway.
R: That’s what I felt there. But the fact that your teeth were brushed and you were cared for, I know that. That took place.
E: That’s good. Yes, well, it’s just a memory gap, and I think it’s just a matter of trusting that everything has gone right. You can imagine or think up things that are not at all realistic. What happened in those 24 hours a day. That’s what makes me, when you don’t know anything at all…. How was I taken care of? You know, all those things that I actually care about. The hole, that’s what bothers me. That I can remember what was up there for two days at the most, and nothing else. Nothing else. That makes trouble for me.
I: And you said earlier about having no control.
E: Yes, you give up control when you have an operation. And I am actually a bit of a control freak. Yes, you just have to say that, that’s part of my character. And then to have this confidence that everything went right, that’s what I miss. I probably still miss that today, I can’t say it any other way.And I can’t put it any other way, I wouldn’t know how to at the moment. Well, let’s stay with that.

Experiences in the intensive care unit

With the technical and medical possibilities on intensive care a patient can be able to survive life-threatening illnesses. These experiences of critical illness and intensive care medicine are challenging for patients and families. Often experiences made on intensive care unit (ICU) can be life changing.
In small video- or audio-sequences we would like to illustrate the experiences made by patients on ICU and how they handled their stay in this critical situation.
Many patients share their experiences on intensive care unit and show how these experiences influenced their life.

We are curious about your story!

Credits

Susanne Jöbges

Dr. med. Susanne Jöbges works as a postdoctoral researcher in bioethics. She holds a degree in anaesthesiology and intensive care medicine and a masters degree in medical ethic. She’s been working as a consultant for anaesthesiology in the department for anaesthesioloy and intensive care (head of the department Prof. Dr. med. C. Spies) at the charité Berlin. On an intensive care unit she was leading senior assistant.

After she joined the DIPEx team in May 2019 and coordinates the module about experiences with self-determination and intensive care.

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