PDI41.jpg

Céline G.

Céline G. is married to Alain G., who was diagnosed with Parkinson's disease in 2010. The time before receiving the diagnosis, Céline G. experiences as very challenging and marked by uncertainty and fears. Alain G.'s social withdrawal and the changes in his mood and personality are things that concern Céline G..

VIDEO

Imaging techniques

Only after several months does a SPECT provide Céline G. and her husband with certainty about the diagnosis.

Video Interview

TRANSCRIPT

Céline G.: So at the beginning, it took a long time to get the final diagnosis because there was this presumption of Parkinson's disease. But until the PET scan was done, we weren't really sure that this was it. So there was no treatment that was put in place. And so it lasted a few months. It was during the summer, so it was quite difficult. Interviewer: What was difficult? Céline G.: We don't know if that's what it is. There's no treatment that's being put in place, so you have to carry on living knowing that, well, the ceiling is already falling in when you're told the diagnosis. And then, in fact, there is no treatment in place. So you continue to live with these symptoms without any treatment that actually starts? Interviewer: And when was the diagnosis formally made? Céline G.: The disease was declared in April and we spent the whole summer. I think it was September or October. When we did it, we got the results of the PET scan. Interviewer: What did they tell you? Céline G.: They were able to certify that it was really that. Because at the very beginning before the neurologist said it was Parkinson's, we had done MRT. There had been MRTs done, and then, it's true, everything was positive, so there were no symptoms. So we thought, well, it's nothing serious. In the end, positive ? normal ? But then, negative, everything was negative. I don't know how to say. There was nothing alarming on the MRTs, so he had done a cervical, I think, and then a cerebral. Everything was good. No symptoms. We thought, well, I'm fine. It's not something serious. We thought of many things. He fell on his arm, so he thought it was just from that fall. Interviewer: Was it during the summer or before? Céline G.: This was before, at the very beginning. That's it. And then afterwards, there was this diagnosis, but we weren't sure, as there was no PET scan and as there had no PET scan been done. So there were days when we said yes, that's it, that's the disease, and then other days when we said no, that's not it. There was a lot of denial during that time. Also where he was saying no, no, it's due to the fall. It's just something in my arm or shoulder. It's the fall I took on the ice. Interviewer: Was it during the summer or even after, when the PET scan had been done? Céline G.: That was when he hadn't had the PET scan yet. Afterwards, when the diagnosis is confirmed with the PET scan, then everything is turned upside down again.

Other experiences by Céline G.

PDI41.jpg

Céline G.

Céline G. is married to Alain G., who was diagnosed with Parkinson's disease in 2010. The time before receiving the diagnosis, Céline G. experiences as very challenging and marked by uncertainty and fears. Alain G.'s social withdrawal and the changes in his mood and personality are things that concern Céline G..

PDI41.jpg

Céline G.

Imaging techniques

Only after several months does a SPECT provide Céline G. and her husband with certainty about the diagnosis.

Diagnosis

Parkinson's disease: deep brain stimulation and duodopa pump

PDI41.jpg

Céline G.

Waiting for diagnosis and financial uncertainty

Céline G. describes the uncertainty during the time until the official diagnosis of Parkinson's disease, which was also accompanied by difficulties on the part of the health insurance company.

Diagnosis

Parkinson's disease: deep brain stimulation and duodopa pump

PDI41.jpg

Céline G.

First hope, then shock

For Céline G., a world collapses when her husband's diagnosis is confirmed.

Diagnosis

Parkinson's disease: deep brain stimulation and duodopa pump

PDI41.jpg

Céline G.

Symptom visibility

Because of the visibility of his symptoms, Céline G.'s husband no longer enjoys company, which is also difficult for her.

Symptoms and course of disease

Parkinson's disease: deep brain stimulation and duodopa pump

PDI41.jpg

Céline G.

Early registration with the IV

The fact that Céline G.'s husband registers early with the IV helps him later.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

PDI41.jpg

Céline G.

Cooling-off period

Céline G. and her husband need time to think before he agrees to the operation.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

PDI41.jpg

Céline G.

Appetite

Céline G.'s husband has more appetite again.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

View all experiences

© 2000-2021, All Rights Reserved