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Céline G.

Céline G. is married to Alain G., who was diagnosed with Parkinson's disease in 2010. The time before receiving the diagnosis, Céline G. experiences as very challenging and marked by uncertainty and fears. Alain G.'s social withdrawal and the changes in his mood and personality are things that concern Céline G..

VIDEO

Waiting for diagnosis and financial uncertainty

Céline G. describes the uncertainty during the time until the official diagnosis of Parkinson's disease, which was also accompanied by difficulties on the part of the health insurance company.

Video Interview

TRANSCRIPT

Céline G.: And then after that, as long as the initial exams were normal. So you tell yourself it's nothing bad. And then it took a very long time before we could do this PET scan. It was a question of insurance and then just a question of administration. The administration is very cumbersome. There are a lot of things that don't work. That's quite normal, because there's the fight against the disease, for one thing. It's something that comes at you, and you really have to tame it and then put it into action. It's an upheaval, and on top of that there's all this administrative harassment that I find equally burdensome. Interviewer: And the bureaucratic hurdles, was that before the diagnosis or after? Céline G.: Then it was already bad from the beginning because just to be able to really make this Parkinson's diagnosis, due to the fact that he was young, that there was no family history. There were some doctors who told us, "No, this is not Parkinson's" [Molson]. So, we were really like one day that's it and the other day it's not. So, even my husband, he finally said no, no, it's not. And then we were told that we could really confirm with this PET scan whether it really was or not. And finally the insurance companies refused to pay for the test. So that was the only option we had to get that answer. And then that was it. Interviewer: Despite the indication of a neurologist? Céline G.: And it was necessary for a professor to write and challenge it and say that it was really the only way that we needed this test for it to be accepted. And that was really several months later. So that's that time period that's also very, very difficult. Interviewer: Or do you not really know where you are going? Céline G.: You don't know if there is a disease, if there is no disease, if it is serious, if it is not serious, so you are a little bit in stand-by mode. So, that's the beginning of the administrative harassment.

Other experiences by Céline G.

PDI41.jpg

Céline G.

Céline G. is married to Alain G., who was diagnosed with Parkinson's disease in 2010. The time before receiving the diagnosis, Céline G. experiences as very challenging and marked by uncertainty and fears. Alain G.'s social withdrawal and the changes in his mood and personality are things that concern Céline G..

PDI41.jpg

Céline G.

Imaging techniques

Only after several months does a SPECT provide Céline G. and her husband with certainty about the diagnosis.

Diagnosis

Parkinson's disease: deep brain stimulation and duodopa pump

PDI41.jpg

Céline G.

Waiting for diagnosis and financial uncertainty

Céline G. describes the uncertainty during the time until the official diagnosis of Parkinson's disease, which was also accompanied by difficulties on the part of the health insurance company.

Diagnosis

Parkinson's disease: deep brain stimulation and duodopa pump

PDI41.jpg

Céline G.

First hope, then shock

For Céline G., a world collapses when her husband's diagnosis is confirmed.

Diagnosis

Parkinson's disease: deep brain stimulation and duodopa pump

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Céline G.

Symptom visibility

Because of the visibility of his symptoms, Céline G.'s husband no longer enjoys company, which is also difficult for her.

Symptoms and course of disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Céline G.

Early registration with the IV

The fact that Céline G.'s husband registers early with the IV helps him later.

Living with Parkinson's disease

Parkinson's disease: deep brain stimulation and duodopa pump

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Céline G.

Cooling-off period

Céline G. and her husband need time to think before he agrees to the operation.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

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Céline G.

Appetite

Céline G.'s husband has more appetite again.

Treatment with Deep Brain Stimulation

Parkinson's disease: deep brain stimulation and duodopa pump

View all experiences

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