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Mariella C.

Mariella C. was diagnosed with PD in 1999 and has been living with the disease for twenty-two years at the time of the interview. When she is diagnosed with PD, her three children are already grown up, which she is very happy about. After the tremors become too severe two years after receiving the diagnosis, she gives up her job as an asylum officer in her community. In 2015, she started Deep Brain Stimulation therapy. Deep brain stimulation was five years ago at the time of the interview. Age at the time of diagnosis: 51 Treatment: Deep brain stimulation

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AUDIO

Loss of trust

Mariella C. does not believe the neurologist when he tells her that she has Parkinson's disease.

Video Interview

TRANSCRIPT

That started already 23 years ago. And at the beginning it was a little unclear, like most of the time, right? And I trembled a little, but only with the thumb first, on the right hand. And what I also noticed then, I couldn't do as many things at the same time as I used to. Something went through the bars. And that's what I noticed. I didn't know why. And then after about two years, I went to a neurologist once and he said, "Yeah, tremors, that could be 100 different things. It doesn't have to be Parkinson's." Then I was reassured again and then I waited again for two years. Then I went to another neurologist. It was a little worse then. He just told me, "You have Parkinson's," without explaining anything. Then I was so angry at him and thought, "Oh, he doesn't know that either," and then I didn't really notice it.

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Other experiences by Mariella C.

Mariella C.

Mariella C. was diagnosed with PD in 1999 and has been living with the disease for twenty-two years at the time of the interview. When she is diagnosed with PD, her three children are already grown up, which she is very happy about. After the tremors become too severe two years after receiving the diagnosis, she gives up her job as an asylum officer in her community. In 2015, she started Deep Brain Stimulation therapy. Deep brain stimulation was five years ago at the time of the interview. Age at the time of diagnosis: 51 Treatment: Deep brain stimulation

Mariella C.

Loss of trust

Mariella C. does not believe the neurologist when he tells her that she has Parkinson's disease.

Diagnosis