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Experiences in the intensive care unit

Charles C.

Mr. Charles C. remained awake in the ICU and remembers well.

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Because he was not in a coma, Mr. Charles C. remembered his ICU stay.

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Corine Mouton-Dorey

Corine Mouton-Dorey focuses her research on patient agency and accountability. Her PhD work on biomedical ethics identified the importance of the patients’voices in medical practice for better care, trust and justice in health. She has a practical experience with patients both as a cardiologist and as a qualitative researcher. She supports  the french-speaking part of the DIPEx project and work on the possibilities to enrich DIPEx process and outcomes with digital technology.

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Mr. Charles C. remained awake in the ICU and remembers well.

“I: What do you remember, is really what you remember yourself or it’s what people have said to you after?
E: No, it’s what I remember myself. I usually write up these experiences and just keep a note what I need to remember. And then afterwards of course, a year later you still have impressions of what happened, which is what I gave you to start with. But it’s what I remember, not what other people were telling me.

I: And so you told me you have taken some notes.

E: Yes, I was reading them earlier this morning for the intensive care that I had in 2012 in the (name of the hospital) and there, it’s, I made more precise notes. This time, in (location 1) it was really not necessary because there wasn’t very much to write down. It was just a matter of keeping a check on the monitors behind me and it was that sort of thing that I was doing.”

Experiences in the intensive care unit

With the technical and medical possibilities on intensive care a patient can be able to survive life-threatening illnesses. These experiences of critical illness and intensive care medicine are challenging for patients and families. Often experiences made on intensive care unit (ICU) can be life changing.
In small video- or audio-sequences we would like to illustrate the experiences made by patients on ICU and how they handled their stay in this critical situation.
Many patients share their experiences on intensive care unit and show how these experiences influenced their life.

We are curious about your story!

Credits

Corine Mouton-Dorey

Corine Mouton-Dorey focuses her research on patient agency and accountability. Her PhD work on biomedical ethics identified the importance of the patients’voices in medical practice for better care, trust and justice in health. She has a practical experience with patients both as a cardiologist and as a qualitative researcher. She supports  the french-speaking part of the DIPEx project and work on the possibilities to enrich DIPEx process and outcomes with digital technology.

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